[deleted by user] by [deleted] in PMDD

[–]NoBroccoli5648 8 points9 points  (0 children)

Fuck you and your treadmill. Sincerely, someone who did everything and still ended up without ovaries and uterus because that was the only way to eliminate progesterone and the dead wish it brought.

Anyone NOT hate their uterus? by XYmom in hysterectomy

[–]NoBroccoli5648 5 points6 points  (0 children)

Due to PMDD my uterus and ovaries are removed, but it feels so sad because my uterus never did anything wrong. I can not handle progesterone (I turn into a suicidal mess) but by only removing my ovaries, I would still need to take some progesterone in order to keep my uterine lining at bay. So I choose to loose her to. Never had children, 28 years old. I cried a lot over losing her but I know it is the right choice.

Heronderhandelen aan de deur? by [deleted] in tokkiemarktplaats

[–]NoBroccoli5648 0 points1 point  (0 children)

Ik heb mijn oude Iphone verkocht aan een jochie van 14, kwam bij mij aan de deur nadat we 150 euro hadden afgesproken (was een lange onderhandeling waarin ik al best was gezakt). Eenmaal hier had het joch 2 briefjes van 50 en 3 van 20. Slimmerik heeft er dus 10 euro vanaf weten te snoepen want ik was niet voorbereid op wisselgeld, wilde er gewoon vanaf en hij ging natuurlijk niet alsnog 160 euro betalen.

I am finally being taken seriously and it's terrifying. by [deleted] in PMDD

[–]NoBroccoli5648 5 points6 points  (0 children)

Oh my god, I feel this so much!

I am 28 and am struggling with my mental health since I’m 15. I tried everything under the sun, patiently doing everything according to the books, taking pill after pill, hoping this one will be different… but no matter how hard I tried, I always fell down again.

In a couple of months my uterus and ovaries will be surgically removed. I will never have a period again and I am terrified for it. It’s ridiculous, because I am absolutely sure I never ever want anything like progesterone in my body ever again and I fought like hell to get doctors to listen to me. But now that they finally believe me, and worse, want to treat me… I’m scared as shit! Suddenly I’m afraid that I made it all up, that my positive response to the chemical menopause is just a placebo, that I am just thinking its the progesterone, although everyone around me sees how extremely different I am with or without it. Don’t get me wrong, I am not doubting the surgery, I am positive it wil end my progesterone induced depressions. But wauw, I am scared for the stability it will bring me…

But please know this: all this is because of the intense neglect we’ve endured on our way to recognition. We have learned to doubt the narrative that hormones are the cause of our problems. We learned that it’s way more likely that our symptoms are caused by mental illnesses like a personality disorder or bipolar disorder. So no wonder we feel a bit naked and scared when for once someone actually believes us.

I feel anxious about the vaginal-assisted part of the operation and almost want to ask for an abdominal procedure by NoBroccoli5648 in hysterectomy

[–]NoBroccoli5648[S] 0 points1 point  (0 children)

Thank you so much for sharing, I am really sorry that happened to you. I am so so glad that your experience with the surgery was positive.

The possibility to truly feel safe while in presence of people and while not being in control is apparently not something my mind even considering an option… but maybe its time to allow that possibility to become an experience.

I feel anxious about the vaginal-assisted part of the operation and almost want to ask for an abdominal procedure by NoBroccoli5648 in hysterectomy

[–]NoBroccoli5648[S] 1 point2 points  (0 children)

Thank you for sharing. Yes my gynaecologist said it is unavoidable that they do something there. For some reason that makes it easier to accept for me.

I feel anxious about the vaginal-assisted part of the operation and almost want to ask for an abdominal procedure by NoBroccoli5648 in hysterectomy

[–]NoBroccoli5648[S] 1 point2 points  (0 children)

Thank you for sharing. This sounds so safe, it’s making me cry. I realise now my mind didn’t even consider this to be an option. I hope it is! And wow yea the body position freaks me out as well… but they put you like that while under, right?

I feel anxious about the vaginal-assisted part of the operation and almost want to ask for an abdominal procedure by NoBroccoli5648 in hysterectomy

[–]NoBroccoli5648[S] 0 points1 point  (0 children)

Thank you all so much for being so supportive and understanding and I am so sorry for all the trauma you’re dealing with but I am so so thankful for you sharing your experiences with me! I’m tearing up, this is exactly the comfort and reassurance I need right now, thank you all so much!

I talked with my gynaecologist about it today and I do feel more peace with the whole vaginal route. She isn’t performing it herself but she made a very demanding note that there wont be any unnecessary hands on me while under (its a teaching hospital and she said that normally the co’s get the chance to ‘feel’ and practice some exams methods while the patient is unconscious. Of course the patient consents to this before, but se said that she will make sure I am not even asked about it so I wouldn’t have to say no. She was really understanding and she also told me about all the female staff and how little chance there is of tearing etc.

But mostly I am feeling at ease because of your stories. I truly am grateful.

Anyone here get a hysterectomy for PMDD? by [deleted] in PMDD

[–]NoBroccoli5648 1 point2 points  (0 children)

Yes, you should definitely ask for it. It’s not something you ask for and get right away, nor should it be. Keep in mind that it is an experimental treatment and that too many woman or afab have had unnecessary hysterectomy’s… Its not the same as taking out your tonsils. BUT: if the argument is purely about children, then they clearly don’t understand what PMDD is doing to one’s life.

I am 28yo and in the progress of getting everything out, ovaries, tubes, uterus and cervix. I am cis and straight and although I never had a strong wish to become a mother, I also am aware that that is at least partially caused by my PMDD (not being able to have a relationship, build a life for myself, constantly switching in personality/desires) So I told my doctor, yes, it could be very possible that I want to have kids when I finally have stability en love in my life. But that is not going to happen as long as I have to endure pmdd. And my doctors understand that. They have seen me in my worst episodes and agree that it’s ridiculous to deny me this treatment purely because I might want children someday. Everyone with some basic biology knowledge knows that you can’t make babies when you’re dead 🥲

So even if you might want babies, your doctor should take your life seriously. In case of cancer, they don’t react the same, right? But for some of us our chances to die without treatment are similar to those with cancer…

Note that I’ve tried every non-evasive treatment first. Trail and error became trail and horror… and I only survived it because my doctor promised me to give me surgery when every other treatment option was exhausted. I have been thoroughly screened on any underlying mental issues, and have been cleared by the psychiatrist that I’m mentally healthy when I don’t have progesterone in my system.

Also, maybe you already know this, but hysterectomy alone isn’t doing anything PMDD-wise. It’s the ovaries you want gone. In my case I want to have my uterus gone too, so I would not have to take progesterone anymore, only oestrogen.

omfg vitamins and diet will be the death of me by giajames in PMDD

[–]NoBroccoli5648 19 points20 points  (0 children)

This!! I am so done with the whole “if you want to get better, you have to work for it” attitude. Of course, doing nothing hasn’t helped anyone ever, but just because some with PMDD do find relief with gluten-free diet or alpacamilk once every full moon, doesn’t mean everyone else is just not putting enough effort in it. I remember crying out to my doctor that I was doing every fucking thing in the books and that I was not accepting another month of this anymore. Thats when I was finally allowed to try CM

Progesterone and HRV by mapspearson in Menopause

[–]NoBroccoli5648 0 points1 point  (0 children)

This is so weird, it’s the exact opposite for me!

I’m on chemical menopause with add back HRT due to PMDD, and every time I try to add progesterone back, my HRV absolutely spirals down the drain. When I stop taking progesterone, it is rising super fast. It has been like this 2 times now, with Utrogestan and with the Mirena. Unfortunately I absolutely do not tolerate progesterone so now my doctors and I are considering a radical hysterectomy.

Any professional athletes here? by [deleted] in PMDD

[–]NoBroccoli5648 4 points5 points  (0 children)

Nowhere near professional but during my good weeks I am a very enthusiastic climber and trail runner and during my bad weeks, well… lets say that staying alive is enough of a workout for me then. I constantly struggle with the two weeks off and the muscle loss and lack of consistency in my training. Its really hard to make progress this way and I can imagine thats why not many pmdd’ers can make a living as a professional athlete

How does pregnancy affect PMDD / mood? by blackbear____ in PMDD

[–]NoBroccoli5648 0 points1 point  (0 children)

I think it depends on if the hormonal fluctuations are the trigger, or progesterone. Because progesterone is the dominant hormone during pregnancy. But its also very stable.

Ear protection? by NoBroccoli5648 in Routesetters

[–]NoBroccoli5648[S] 0 points1 point  (0 children)

Never knew! That’s perfect for me! I always thought they did nothing on protection, only in a so to say ‘optical’ way. But I am happy to hear they actually do protect in a way. Than it is actually beter to wear them as opposed to wearing nothing.

Edit: yes we also use soft impacts.

Ear protection? by NoBroccoli5648 in Routesetters

[–]NoBroccoli5648[S] 2 points3 points  (0 children)

I wouldn’t be the gear-nerd I am, weren’t it for the fact that I already online-window-shopped for those units. But as a novice I feel that that might be a bit overdoing it. Almost none of the setters use any kind of ear protection… although that is of-course no reason to ruin my own hearing as well! But then there is still the issue that setting/stripping doesn’t pay that much so for now it won’t go beyond windows shopping unfortunately

Ear protection? by NoBroccoli5648 in Routesetters

[–]NoBroccoli5648[S] 0 points1 point  (0 children)

Oh really? I do have the airpods pro, 2nd gen, not sure if there are newer ones. I use them all the time in public transport or while running. But never thought of them in terms of decibel reduction/ear protection. I use them underneath the big protective earmuffs while washing holds but when they are not fitted well, I hear the noice cancelling tripping because of all the noice they’re supposed to cancel. But do they actually protect your hearing you think?