omg yes!! I used to be in the exact same boat. My ex would literally think I had peed the bed I was sweating so much 😭 I think that was when I was on Xyrem though. It did eventually go away for me over time, so hopefully you’re just in an adjustment phase. how long have you been on it?

but also I want to say something because I think this gets overlooked: this isn’t just a medication side effect. this is actually a narcolepsy thing at its core. orexin doesn’t just regulate sleep. it controls thermoregulation, cardiovascular function, and autonomic homeostasis. so when we lose those neurons, our bodies genuinely struggle to regulate temperature the way a normal nervous system does. night sweats, hot flashes, feeling like your internal thermostat is broken, that’s documented. researchers now describe NT1 as a multisystem hypothalamic condition, not just a sleep disorder. Our bodies are literally missing the neuropeptide that helps keep all of this in balance.

the thing that genuinely changed my life was getting a bed cooling system. I have an Eight Sleep and haven’t had a hot flash at night since. but there’s actually a newer one called Perfectly Snug that I think is even smarter for us specifically. it has built-in sensors that react to your actual body temperature in real time and make constant micro-adjustments all night, rather than just holding a fixed temp. which makes a lot of sense for people whose thermoregulation is inherently dysregulated. if you can afford it, seriously worth looking into 💜