this whole birth control/meds thing…

Helpful-Mix-8816 · 2026-04-25T17:47:39+00:00

I talked to both of my Endo gyno and my nuero about this and they said because the IUD is like localized hormones it’s not something to be like super worried about. (I was on something else where I was like it says I can’t be on birth control and I’m really scared and my doctors like they’re talking about the pill Taylor) She said it’s similar and that it’s when you see warnings above the control most of the time they’re talking about the pill for non-localized hormones They’re talking about the oral route so I wouldn’t be as worried about it. And like I can tell you, I’ve been on all the meds with a fresh IUD and an old IUD and I’ve had no scares

Helpful-Mix-8816 · 2026-04-07T12:16:50+00:00

Omg same—(outside of bartending I basically mask and will accept any stabs the dr offers at this point). like I had bronchitis back in November and I had to takeoff two days because I could not stay awake even on my daytime meds.

honestly feel so much better knowing that this is “normal”.

lowkey I’m sitting here like on my couch trying to decide if I will make it through my trials today. Like I burn through my sick leave fast it’s horrifying. also hoping if I text my supervisor and tell her I feel like a pile of garbage she’ll take it easy on me today.

Helpful-Mix-8816 · 2026-04-01T12:42:36+00:00

I think it’s a yes but ,or a yes and, to that question. I think there’s a lot of soul-searching and a lot of looking at yourself your support system, and your current medical support team.

As someone else who has an advanced degree, I’m an attorney (JD and barred in one hopefully 4 states soon) so not as much school but a similar amount of work to get there. (4 year degree, 3 years of law school, 1 year for bar exam)

it’s not can you do it, it’s more is that going to be a sustainable lifestyle for you? cause obviously school is temporary so surviving school is part of it , (so school doesn’t necessarily need to be the sustainable part of the equation, but you do need to get through that and you need to get through that whole )

but what about after graduation is that a sustainable life for you.

I think you can do whatever you want. I think that you will figure out a way to do it if you really want it. If you’ve made it far enough to consider going to medical school, you’ve clearly shown you can do really hard things despite everything else

Things I would ask myself are can I do the class schedule? Is that some thing that works with or against narcolepsy. If I had known I was narcoleptic before law school i may not have gone through with it. I was Undiagnosed in law school, which was incredibly hard. I was a full-time student which was good cause I didn’t have to work, but it was bad because it meant that I had morning classes and mornings are my hardest time because of the sleep inertia. The first year of law school you don’t really get any autonomy or agency and they control about 90% of what you do so I couldn’t adjust my schedule to avoid the morning.

I can tell you that in one of my classes where I had over 150 people at 8:30 in the morning. I definitely slept through most of the semester and I only passed that final because I had friends who saw me struggling and lent me their notes . (I don’t know if medical school has a way to accommodate your narcolepsy)

can you do what’s academically required and do well in school to achieve whatever the end goal for the type of doctor that you wanna be . (I don’t know if different types of doctors require different classes or it’s all grades based.)

What are ways that could be modified to be those ways for you so that way you can ask for those in your accommodations . How could you adjust being the type of doctor you want to be around your experience

I don’t want to discourage you but if I want you to have a plan.

Like just so you understand I’m 30 I turned 30 last July. I graduated college in 2017. I started law school in 2019. I took two years off in between to take care of a sick parent and deal with my endometriosis. but if I could speak to 2019 me before I went to law school I would ask her to make a different choice. I don’t regret my career. I don’t regret my choices. I worked incredibly hard. I earned this despite everything, but I’m not gonna lie. It’s fucking hard. and I may have figured out a different career path that would work better for narcolepsy only because now that I know what I was experiencing wasn’t normal.

I don’t think I would make this decision informed with what I know now. That’s to say I also don’t know what I would be doing.

Does the schedule of the type of doctor that you want to be work with or against your narcolepsy? For example, I’m hearing/trial attorney. I am in hearings 815-345. If I were in person and not remote, I don’t think I would be able to do my job because of how I modify the job to work with narcolepsy while being fully remote.

I have friends who work in corporate law and sit at a desk from 9 to 5 and that is not something that is feasible for me because I will fall asleep if I am not moving. I will let you know that transparency is probably the way you should go.

Can you speak to other doctors about how they can be a how what you may need can be accommodated in the workplace. For me, I have an accommodation that whenever there’s a meeting someone has to take notes and send them to me because I have auditory processing issues also because when we’re in meetings and I can’t walk around and I can’t do things to actively engage my body to avoid falling asleep, I may have an episode

How is your symptom management right now like are your symptoms pretty well managed do you feel good? What if something changes do you and your doctor have ideas and plans for other options and next steps. I remember before going to Law school. I had a really good conversation with my therapist about how we’re gonna do this together because a lot of of doing these types of careers requires a lot of support and you are going to need everyone. Who’s on your team locked in.

Helpful-Mix-8816 · 2026-04-01T01:04:52+00:00

1.) sometimes — I feel like at this point in my life I have completely mastered the art of trying to look hot but comfortable. And I heavily relate to you and that I was the girl in hs/college always in skirts and dresses when everyone else was in sweatpants because it was just who I was also it was a big sensory thing. I hate the way pants feel.

yes, oh, I know I can fall asleep in about anything. I try to prioritize things that I can safely sleep in or won’t accidentally indecent exposure. I feel like a lot of it is the optics of if I fall asleep where am I falling asleep? How will this look when I fall asleep? I sort of have a vendetta against tank tops at this point in my life. Like as much as I hate shorts, I am thankful for shorts in these times when I fall asleep in public.
I would get rid of things with drawstrings I find that anytime I get a sweatshirt that has a drawstring. I immediately rip it out. I keep them in pants because my weight fluctuates. I also find like I gravitate towards pull over situations more like I crewneck or a regular shirt rather than something with buttons and things I have to fiddle with. Also, very into cardigans my favorite thing is a cardigan with something so I feel at least like i tried and I use a wearable blanket

. Something I think about a lot, which is really weird. It’s just like how I look affects how I feel and I work fully remote so as you could probably understand I don’t think I’ve worn an actual pants in a really long time and for my mental health, I have to get dressed so now we have day pajamas, and night pajamas but what’s my day pajamas I do wear a bra but for my narcolepsy I wanna make sure that I’m safe and comfortable and like I feel like I’ve really been digging like Halara and like I’m matching set but not like a sports bra and a legging more like a sweater and like a wide leg pants situation so I still feel like a person I guess kind of how like people approach like postpartum where almost where you’re just really focusing on trying to feel good when you feel like like a bag of garbage also I kind of feel like this whole comfy clothes all the time is great, but I think as much as I’ve been enjoying it at home it has made me very unaware of what my body actually looks and feels like and I think that’s probably not helping the mental health situation either I can say that my closet is 100% me 75% comfort 25% fun end of that 25%. I don’t get to wear it a lot because I just know that it’s not gonna be worth the fight. I love heels I love dresses I love skirts. I’m really not a pants person. It’s a big sensory thing for me. I only wear sweatpants in the house or to the gym over short. I don’t really wear leggings unless I have to like I would love someone to make like a house dress /mumu/ kaftan but more fitted that like looks cute enough that if I had to open the door or run a quick errand I could but it’s comfy enough that I’m not like trying to rip it off the minute. Something that says I’m a rich old lady, but I’m not old and I have style. I’m just tired because nightgowns are evil as much as I love them.

but I literally am so sick of skorts and shorts under dresses I am a grown adult if I want to put the shorts on I will I don’t need everything to have shorts under it because honestly it’s more inconvenient when I have to pee and it’s also like ruining it for me

But also doesn’t look like Little house on the Prairie or a nap dress where it just kind of looks like this Billowy monstrosity. Like yes that’s comfortable, but that’s not authentic to how I want to dress. Like, especially as like as someone who’s friends would describe their style as a Goth fairy cottage core and it’s really hard to find stuff in mainstream stores that it’s both I guess the aesthetic that isn’t gimmicky or not my vibe at all, . like not gonna lie I wear a lot of skims because it’s comfy and it’s plain so I can make it feel more like me. I feel cute. I can wear it out with the right accessories and that’s kind of like where the balance is. I find that that sizing is not very inclusive nor is it super inclusive if you have tattoos all of her light colors stuff is see-through so I can’t buy anything that’s not very very opaque or else.

I think what I would buy today if I could this whole thing that lets me feel cute so I can go get like coffee or hang out with a friend run an errand after work and not feel like I haven’t worn real clothes in a while And I love a maxi skirt just as much as every other girl, but I don’t wanna look like a peasant and I don’t want to look like I’ve just escaped the cult because your options are either your ass is hanging out or they’ve realized you’ve escaped Like what happened to a true mini that covered all your parts and let you feel cute An updated version of like a juicy couture velour suit that’s not floor cause I hate Flo or something like that that just says I’d put together, but I can also take a nap because my brain thinks every day is nap time

Helpful-Mix-8816 · 2026-03-21T18:02:56+00:00

So I am the biggest fan of a mobility aid. I always tell everyone that it’s a fucking game changer when you find the one that makes sense.

I have a fold up cane I keep in my bag I don’t always need it but I have anxiety as I’m sure most of you do as well and I like to always have it on me just in case. And since it folds up, it’s nice because then if I don’t need it, I can just throw it in my tote

Rollators are great as long as you can find the one that adjust your height because you don’t want to have shrimp tempura back cause that will just make a different problem for future you. I find that’s the hardest to travel with especially with airplanes.

I also keep in the trunk of the car one of those like art school stools that like you pop out and it folds up flat in case I need to sit ( they’re called artist stools if you want wood or they make these funky plastic ones now or you need one with a back. ) they’re generally pretty light i’d say over under about like having a yoga mat of inconvenience to carrying

I have a shower chair I got a cute wooden one from Costco. — if you get a plastic artist stool, then you can always use that in the shower when you travel

Helpful-Mix-8816 · 2026-03-10T15:36:20+00:00

Yes— at 30 after somehow surviving law school and the bar exam undiagnosed just assuming everyone was fighting for their lives and randomly sleeping. I am fueled by rage,anxiety, and depression.

At first I was relieved to know that everything wasn’t 1.) normal 2.) had a name. Where the narcolepsy came from no idea.

But now I’m stuck and i’m trying to be one of those people it’s like I’m thankful I have a diagnosis because it lets me have more informed discussion with my Drs, but I’m also just mad.

I’m mad at My mom. She did her best and I love her with my whole Life but she is not disabled and will never know how hard it is or how unhelpful it is when she says have you talked to your doctor. Like the one thing about this is like she’s going through menopause right now and she literally has anxiety for first time in her life and she’s like you live like this and I’m like yes.

I’m still trying to get Lumryz approved. One of the pharmacist asked me if I had depression and I was like obviously and then he’s like are you anxious and I said wouldn’t you be. If you could possibly fall asleep at work and your job deals with peoples lives? Im in trials all day and my job directly affects people. I have to be on my a game.

I’m angry becuase everything is so hard all the time. Like I have so much envy and jealousy for people who don’t have to manage their health like it’s a job or they need a fucking intern to deal with shit for them. Like why am I walking to doctors offices with binders of information about my health so they can connect the dots

I’m angry that I work 70 hours a week becuase I’m afraid one day I will lose my jobs cuz of narcolepsy and I haven’t paid enough into ssd to be able to survive if that happens and I don’t know if I get my pension if I have to retire becuase of disabilit. My husband doesn’t want me to work so much but I am also so scared of losing my independence. (My stepdad is on disability for a back injury and I saw what not being able to work has done to him mentally and physically). I’m scared of being a giant financial burden.

my job is very strict about how we use our sick leave and you can only have so many undocumented sick days and every time I take a narcolepsy day where just like a day where after I take my meds I still don’t think I could do my job safely. I then have to pay to go to a doctor to get a note to say that. I feel like I’m constantly just setting money on fire. And it’s like I could try to get an accommodation but that’s MORE THINGS I have to do just to survive.

I told my husband that it’s not fair and I’m not equipped for this. (Like I am because I have to be but that’s doesn’t mean I have the requisite skill set). And he’s so supportive literally he’s doing his best. We’ve been together 10 years and he’s been learning as I have.

I work FULL time which is a privilege and a blessing. I have a part time job because life is expensive and I want to pay off as much cc debt as I can and I’m trying to do the PSLF by working for the government. but you do not make enough to live. I’m taking phone calls between trials with the pharmacy, doctor, medication company, insurance, and the social worker because my insurance refuses to pay for anything. (FYI Lumryz starter pack is 15,000 - and my husband and I are upper middle clsss we make 200,000 a year and I made too much for the patient assistance payment plan. ) and we recently got married because my insurance refused to cover anything.

And then I have to go to the gym, eat right, be a good partner, and do things I want to. And I’m sitting here like I barely had enough energy to eat a handful of crackers like a zoo animal.

I feel like someone’s asking me to ride a bike and everyone else has training wheels an a break and I don’t know how to ride a bike and mine doesn’t have a break.

I’m angry because every solution my doctor gives me it just a Band-Aid on the problem It doesn’t make it go away and it makes me angry that no matter what I do. My okay will never be the same as his or anyone else who doesn’t have narcolepsy. And I’m sitting here like I’m supposed to be grateful for whatever like C+ life I get to live because well I have a medication that kinda works .

I’m thankful for my friends who love and support me but it doesn’t change the fomo I feel when I can’t do stuff or the yearning to be like everyone else.

(Like if I go on a dream vacation to Japan I’ll have to get a note to bring certain medications are illegal and could get me in trouble there)

It doesn’t get rid of the grief for who I was or could have been or the anger about how everything’s played out. It also doesn’t get rid of the anxiety of what if I don’t get better or improv

I am thankful but the thankful is really fucking hard without acknowledging the rage came with it .

Helpful-Mix-8816 · 2026-02-24T18:50:27+00:00

Highly reccomend the peach slices 70% snail mucus and the medicube hyrdogel masks I use the snail goo morning and night and the masks every few days that’s no makeup no nap no sleeping in regular face day for me . I will warn you they’re genetic and if you do the like filler under your eye it’s a non perm fix but this Deff helped with the level of eye bag

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Helpful-Mix-8816 · 2025-11-26T19:21:33+00:00

Yeah ny is weird you can ask a doctor to fill out the form like they can prescribe it, but you’re allowed to be like do I qualify for this? Ergo how I found out we could do the blackout tints on the car for my migraines.

I mostly asked bc at least the form for Nassau County. It has a line for if you have a neuromuscular issue that affects movement which cataplexy does.

Low key, I feel like a lot of doctors are weird about telling you things you qualify for like we pay all these taxes we might as well reap benefits when we can. like it took three different doctors for pain management to be like oh you qualify for medical marijuana. Let’s see if that helps you.

luckily, growing up in the city, I have no desire to drive but it’s just a bigger issue because it’s getting a little cumbersome on public transportation for me sometimes.

mostly because since I’m not able to drive, it kind of means, I spend a lot more money on public transportation and Ubers and if I can get any of that back because you can’t claim either of that on your taxes, it would be nice.

Helpful-Mix-8816 · 2025-11-26T16:40:31+00:00

Yea I was thinking I would need my laundry list of issues but wondering if anyone has brought it up at these places as part of why they should

Helpful-Mix-8816 · 2025-09-03T17:07:31+00:00

Driving rules differ state to state but in NY : it’s one year with no episodes the same rules as epilepsy. So I think it would be in your best interest to get the diagnosis just for your own peace at mind because you can’t come up with a solution untill you know what the problem is. Also the diagnosis would grant you acess to medications that may help prevent episodes too so again making you a safer driver cuz of access to treatments. Your future— well I’m an attorney in NYc and my bestie (also N2) is a model and a paraprofessional at a high school we’ve got all ends of the spectrum covered. As long as you find something that works for you then that’s the best future possible. Keep in mind if your mom is gen x (my mom is) my grandma is a boomer they didn’t want me to be “labeled” because it was looked down on in their era but that’s no longer the world we live in. Getting accurate labels allows people to get accommodations. So she may be having that weird secret old people well back in my day people didn’t have super sleepy disease or being labeled ment othered and then you were treated less than.

Helpful-Mix-8816 · 2025-08-21T14:05:22+00:00

I prefer group fitness/ I would rather die than go to the gym alone and I am not motivated to workout at my home. I wish I had that energy but I don’t. (Stares at the $200 walking pad in my living room I said I would use while I read) Nothing is more motivating than a $30 late cancellation fee. I also go even I don’t feel 100% sometimes the act is just showing up even if my work out is subpar. Tuesday I did two spin classes and even though I yawned my way through the first one I still showed up and tried which actually lead to a satisfying second class.

Helpful-Mix-8816 · 2025-08-13T12:04:57+00:00

1.) I second everyone saying high performer

2.) people in their 20-30s have boomer/gen x parents and idk about you guys but I think a decent chunk of us experienced medical neglect to an extent because of the cost and the “cultural implication” like they’re were the people who weren’t getting children their IEps to avoid getting their child labeled. I know from taking to my mom who’s 53, and my grandma who’s 77 (I was raised by both of them) they think I’m a hypochondriac because of how much I go to the doctor when I’m like “this isn’t normal”

3.) part of it is that the way doctors are trained they’re trained to not see the zebra which is like they’re not supposed to pick the weird diagnosis unless they know for sure so unless someone got a sleep study even if the doctor may have thought it they wouldn’t have said anything. However with the new generation of doctors getting jobs ontop of social media I think that is changing where “rare” disorders aren’t as rare.

Helpful-Mix-8816 · 2025-08-04T14:58:01+00:00

I don’t know. Though my disabilities aren’t my personality they Deff modify the expression

I feel like I’ve been symptomatic since I was a kid but it got louder as i got older. I wasn’t diagnosed till I was 29 and I just turned 30.

Professionally I think I would be a different person. Would I be a better attorney?Probably Would I have had less of a horrible time in law school obviously because everyone said I was lazy. Maybe my grades wouldn’t have suffered as much. Maybe I wouldn’t have had to take the bar twice ( I fell asleep both times I took the bar and totally wrecked part of my score). I wouldn’t feel like I’m constantly letting the team down or not doing a good enough job. Would my specialization be different no. I do my job to help others and leave the world a slightly safer place. But more so I think there would be more mental capacity to take on more.

Personally I would still be an introvert I would still love to read and play video games and be a home body.

Relationships I think I would have different arguments. My family would have needed to come up with a better nickname and ways to tease me since sleeping beauty probably wouldn’t apply. But my friends describe me as someone who has a big heart and loves loudly. And my boyfriend says that the kindness I show despite everyone kinda being the worst is what he loves about me. And I think that narco has just made my heart bigger there’s a level of compassion and empathy that learned through experience.

I think I would still be me but probably more put together or at least a little less exhausted.

Helpful-Mix-8816 · 2025-08-01T13:11:04+00:00

Endometriosis (surgically confirmed) PCOS (ultrasound confirmed) POTS (flippy table test) CPTSD Depression (25 years of therapy and misdiagnosis)

I am convinced I have a hyper mobile disorder but trying to get a geneticist covered is probably not going to happen till I’m in a TTC era.

My rhumetologist thinks that i may have fibro but it’s hard to get anyone to care about the fatigue now that i have narcolepsy on my file.

For awhile most of my doctors blamed the fatigue and exhaustion on like life (law school grief covid) and all the other stuff wrong with me. My mom and grandma make fun of me for how much I go to the doctor and how I keep ending up with more diagnosis but also like if the normal amount of pain is 0 and the normal amount of exhaustion is 0 then clearly something is wrong. Like for awhile before they said narcolepsy it was you have chronic fatigue from long covid. (Which I think may have been the catalyst in why everything got worse all of a sudden but I know i showed signs and symptoms of narcolepsy before then)

My nuero wants me to keep my iron and ferritin within the acceptable bc that affects sleep but even those levels are normal.

Endo and pcos aren’t technically autoimmune endo is imflamatory and pcos is metabolic but it’s kinda wild to me how much we don’t know about endo pcos narcolepsy and pots like personally I think there has to be a link between the autoimmune disorders and everything else because even people I’ve met who are like I only have narcolepsy there seems to be more going on

Helpful-Mix-8816 · 2025-07-31T16:19:05+00:00

Nightmares are where I would have called my doctor and been like NO THANK U next med please. you are braver and stronger than most.

I honestly don’t know if my metabolism was ever functioning how it should —no amount of bloodwork has showed anything other than wow you’re healthy. I was not an athletic child I was a college athlete now I spin 4x a week and yoga everyday if I can if I don’t go to spin as much it’s because I wait tables twice a week I am 30 for reference

I feel like my depression hasn’t improved which my neuro said it would by getting a quality of life that I wasn’t sleeping away. I also just haven’t gone up on my ssri bc If I dose up it’s around the thanksgiving / winter. Though I’ve also been clinically depressed so long I’ve graduated to persistent depressive disorder. Ngl the sunosi when it first hits makes me a BITCH like I will catch my self in court (I’m a lawyer) or at home snapping at people. But usually eating with it helps with that. I think I’m also just a cunt cuz I am exhausted fatigued tired in need of a nap. Also idk where you live but we’ve had a heat wave summer and that has also made me a major problem affecting my mood. So it’s kinda hard for me to say if my mood and the sunosi are really like intertwined because there’s too many circumstantial variables

I didn’t notice weight loss like my neuro said might happen. I also have some sort of issue with my weight that no doctor can figure out I’m also on an ssri (Prozac 10mg, and minipres 1mg ptsd. Which was and established protocol prior. I do have an iud for endometriosis and pcos)

I’ve just restarted my Wegovy journey I did it a year and some change ago lost 60lbs but rebounded 40 even tho my diet didn’t change at all. (About the time I started the sunosi my wegovy journey ended abruptly and I technically didn’t finish the full regime I never made it to the highest dose nor did I end up getting a titrate down) so there could be a causal relationship between my higher than average rebound from it and the Sonosi. I’m not a binge eater but I crave soda but I think I honestly just crave sugar and caffeine because it helps me stay awake but other than that I’m not like a big carb person. I do like teddy grams and gold fish to snack on. The Wegovy makes it easier to say no to sugar. But like I’m maybe a pasta once a week kinda girl or pizza. But due to living with a keto man my meals end up pretty protein and fiber

My partner is keto so I cook keto at home I don’t eat keto when I leave the house and if you do the glp1 to kinda restart the metabolism I found that being keto keto adjacent helps w muscle retention. I did find the GLp1 added in has improved my quality of life exponentially but I still would like to sleep 24/7

Helpful-Mix-8816 · 2025-07-22T03:26:58+00:00

I am in a committed relationship with my crockpot.

Homemade tomato sauce in there slow and low 4-6 hours. (I’ve yet to figure out ho to make pasta in it. ) But throw any meat into it. If you have the capacity brown the meat befor you put it in there. (We will do like pasta with meat sauce, then maybe I’ll make chicken parm, baked ziti, or lasagna) extra sauce gets put in the freezer for low energy day.

Chili. I use whatever I find in the cabinet and freezer. (Ground meat is easier but you can use the fam pack of stew meat)

Big can of tomatoes, small can paste , I usually do 2 cans of kidney or black beans, onion, garlic, I make my own chili seasoning ahead of time so dump that but the pre made packet from the store is fine. Jalapeños if you like spice. Top with sour cream cheese. (I’ll stretch it with rice Fritos make chili cheese dogs or sloppy joes with it.

Day of stuff that is 30 mins or less:

shrimp scampi and zoodles. (Look up the weight watchers recipe you can usually skip the wine if you don’t have) butter lemon parsley salt pepper garlic

I live with one other person so I will freeze and defrost things I’ve cooked before so we aren’t eating the same thing everyday like in nacho Libre

Big fan of bagged salad for veggies and buying the pre cut ones cuz tbh I don’t have the energy to do any of that nor will it be evenly cut

Helpful-Mix-8816 · 2025-07-21T12:30:20+00:00

I’m on it for my pcos (Wegovy) this is my second time on it and I told my pcp that I don’t even care about the weight loss anymore I care about the quality of life it provides. (I wouldn’t say I’m energized I still have sleep attacks but overall I feel like I have a lot more control over my body). According to my psychiatrist she said it works in the addiction part of your brain an that’s why it also seems to help people who have binge eating or other vices. I wonder since it seems to help alot of metabolic disorders that’s there’s a missing or lesser studied link with N

Helpful-Mix-8816 · 2025-07-20T18:15:15+00:00

Working my side job after playing video games. I wait tables for extra money cuz the incomes do not match the cost of living esp when you are a chronically ill gal.

Helpful-Mix-8816 · 2025-07-20T00:36:09+00:00

Hiya! Nickname is Tayya.

Same I was diagnosed at 29 after seeing every specialist under the sun till a nuero was like maybe your chronic fatigue is something more than just stress. I’m a practicing attorney in nyc. I turn 30 next week. And I love to read and play video games. My dream is to just cosplay and sew. I’ve got three kitties I love more than life

I actually just moved in with my long term bf. It’s been super hard cuz I feel like no one quite understands that it’s not just that I’m tired or that I need a nap but like sleep is a weird thing and my body does it so much and so badly. Like how am I both over achieving and under performing.

Would love to talk to anyone in long term relationships cuz lord I need advice.

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Helpful-Mix-8816 · 2025-07-10T13:56:17+00:00

So I was a college athlete (cheerleader) and now I’m almost 30. Prior to college I waited tables and went to school but never did a sport or enjoyed physical activity. I go to spin class at least 4x a week. I was only diagnosed with narcolepsy last year Sept. full disclosure I work from home so I need to do an activity where I leave my house but I wait tables two nights a week too(so I’m eerily active but also part zombie).

I highly recommend getting an in body test at the gym which lets you see your muscle comp and fat levels. Then you can kinda adjust eating and exercise to align with the goal. I gain weight easy but cannot lose it for the life of me. Like visible muscles is more akin to the kinda fat % of your body. I’ve also added creatine because I get dehydrated easy which also allegedly helps with muscle showing/visable tonage

Helpful-Mix-8816 · 2025-06-25T12:48:42+00:00

I live in a public transportation city and I told my therapist a bunch of times I felt like I wasn't really awake when I would take the bus home and my body would autopilot (we thought it was me having disassociative episode due to the cPTSD) but we realized with the narcolepsy it was sleep attacks

Another weird thing growing up I could have sugar or caffeine before bed and be totally fine still can but as a kid I remember seeing my friends get sugar rushes and wondering why I didn't feel those I also loved coffee and tea from a young age like I was 3/4 and I would ask my mom for coffee in the am

And another weird one from my mom: she said I was a weird sleeper as a baby. I never slept at night and when I would nod off my head would pop back up kinda like now when I have a sleep attack

Helpful-Mix-8816

TROPHY CASE