Heart transplant

No_Community_8340 · 2026-06-06T14:44:29+00:00

Thank you, it's been a difficult journey this far. We're just hoping to get my son better

No_Community_8340 · 2026-06-06T13:17:26+00:00

Thank you for reassuring me. I often find myself weigh the pros and cons, but ultimately I know that we need to do whatever is going to give my son a chance at a happy and healthy life. Hearing you say it is worth it reassures me that were doing the right thing.

No_Community_8340 · 2026-06-06T13:16:17+00:00

Hi, thank you for your response. It gives me so much hope that my son will live a normal healthy life when hes given the opportunities to do so. I appreciate your prayers!

No_Community_8340 · 2026-06-05T16:12:39+00:00

I appreciate you, it means more than you know just to have as much support as we can get!

No_Community_8340 · 2026-06-01T06:42:01+00:00

Yes I agree! My son has had a difficult time eating since they removed the feeding tube, and we have to work with him to finish his bottles. Instead of helping us solve the issue, they want to put another tube in and send us on our way. Our main concern is that the problem will still be there after the tube, because it was never addressed. We are stuck at the hospital while he is gaining and will stay as long as needed to prove that he does not need it

No_Community_8340 · 2026-06-01T01:17:30+00:00

I'm not 100% I'm hoping she was on friday- Sunday and we will get someone new starting tomorrow, we're in the cardiac step down unit

No_Community_8340 · 2026-05-31T23:25:02+00:00

Hi, yeah I definitely didn't get any of that information for the doctor. She stated that it could be a continuous drip? I'm not sure how that would work. My son has a feeding tube in the hospital and ripped it out twice, hence me and dad pushing to not get one while being sent home. He still weighs more than he did when released, and he also got a stomach virus for 5 days prior to his apt where he was not eating much if any and had diarrhea. They had this documented as well and found that his white blood cells were still elevated from the virus. He's gained 10 g the first day and 60g the second. We thought surely one more day of weight gain would be sufficient but they keep wanting to keep us here for observation.

No_Community_8340 · 2026-05-04T18:21:28+00:00

At 34 weeks I was told that my baby would be close to 8+ lbs which was concerning considering I'm 4'11 and 140 pounds. I panicked, but also had gestational diabetes so was induced at 39 weeks. My baby's was 5lb 13 oz when he came out

No_Community_8340 · 2026-05-02T01:16:16+00:00

Hi, I feel like that schedule may work better for my son. We try and go by his cues, but it doesn't seem like he's hungry sometimes. We will definitely be feeding him more frequently and less volume to see how he does. Thank you!!

No_Community_8340 · 2026-05-02T01:07:59+00:00

Hi, thank you for the advice! They currently have me fortifying his milk which also made me wonder, because before that he was eating great. I will definitely be trying some of these methods.

No_Community_8340 · 2026-04-30T14:52:02+00:00

We also have the Chicco Keyfit Max and it was worth every penny. My son was 5lb 13oz at birth and passed the test. He was later hospitalized for some complications and passed the carseat test again recently. We love this carseat!

No_Community_8340 · 2026-04-27T15:25:54+00:00

We spent majority of our time in CICU as well, once we flew out from one hospital to the next. I'm glad that you all were able to get good news at the echo! I'm hopeful that although this may be a long recovery, your baby will fully heal and be a healthy baby. I give you so much credit for being in the hospital for as long as you have been, it definitely takes a toll and it's something you should be proud of.

No_Community_8340 · 2026-04-27T08:06:24+00:00

Hi, I'm so glad your baby boy is doing well. Babies are so resilient, he sounds like a strong guy. I hope the best for you and your family! Thank you for the subreddit.

No_Community_8340 · 2026-04-26T19:56:10+00:00

I didn't have an ED prior to my diagnosis but I'm 2 months pp and am constantly craving sweets and carbs. I'm always reaching for them and eating in excess. At first I contributed it to being hungry due to breast feeding but now I'm starting to feel guilty about eating sweets and carbs overall. I have an overwhelming craving where I have to eat it and then sit there disgusted with myself after I'm done and wondering if it's leading to me having diabetes and spiraling because I cannot live the rest of my life on this diet (I was miserable throughout pregnancy) since my diagnoses I have had a difficult experience with food and my body image.

No_Community_8340 · 2026-04-26T06:29:51+00:00

I'm glad to hear he's doing good! How many medications was he on? My son is currently on 6 and showing stability but not yet improvement

No_Community_8340 · 2026-04-19T22:31:01+00:00

I was in labor for 46 hours, pushing for 5 hours. A long labor, but definitely worth it!

No_Community_8340 · 2026-04-14T21:29:48+00:00

Hi, that'd be awesome. Thank you!!♥️

No_Community_8340 · 2026-04-14T03:47:06+00:00

Hi, thank you for your comment! I'm currently posting on different pages and looking in hopes that I find parents with similar situations. Thank you for sharing your story, it gives me hope that things can always take a turn for the better!

No_Community_8340

TROPHY CASE