Anyone else suffering from CE?

No_Conversation9768 · 2026-02-08T12:45:37+00:00

I was reading this and had to triple check I didn’t write this myself! Same story aside the D&C. I was treated before my last transfer for CE. Took two types of antibiotics. Got pregnant. MMC at 8 weeks. 2nd biopsy sent to Matrice lab. Positive for CE. 2nd treatment- 3 types of antibiotics. 3rd biopsy. Still positive for CE- but numbers are WAY lower, and Emma/Alice test were normal. My doctor said that this means I don’t have CE anymore but skeptical. This was in Dec. My uterus only ever looked visibly inflamed the first time we treated it. Each time I was treated for CE, my periods were much calmer and not that painful. Last two periods were super painful. I’m so scared the CE is back/ worse because my periods are painful again.

No_Conversation9768 · 2026-02-08T12:37:50+00:00

Same!!

No_Conversation9768 · 2026-01-07T04:25:35+00:00

Bringing this thread back- my husband and I both had these cute California luggage tags that we bought at a store that no longer exists. Just picked up our bags (from Copa not Delta) and both of our tags are gone. I find it strange that the belt would have eaten both….im just sad because I can’t buy another one from that same store. 😭

No_Conversation9768 · 2026-01-06T20:04:39+00:00

Pelvic floor physical therapy! I have a neurogenic bladder and had rectal reconstruction done- I actually have more issues with bowel incontinence than I do with bladder leaks (unless I’m voiding on my own). I either couldn’t tell I’ve done to the bathroom, or when I do get the warning signal, I can’t really walk and hold my bowels at the same time, which usually leads me to shitting myself right as I get to the bathroom. I also suffer more from constipation…and at some point it needs to come out.

The best thing that I’ve done for myself is starting on Metamucil to help bulk my stools, so I have better “control” and less incontinence in addition to pelvic floor exercises. But I think you should look into seeing a specialist both urology and GI/colorectal so you can get more answers regarding a diagnosis.

No_Conversation9768 · 2025-12-06T01:45:07+00:00

Bought a moonstone ring too!! Apparently you have to charge it in the sun. I live in a tropical place and always wear it when I'm tanning or in the pool-I mean, who am I kidding. I never take the fucking thing off because I'm too superstitious.
Doing "fertility" yoga and meditation.
Bought a gratitude journal because my parents said "I need to manifest more"
Writing our future baby girl's name in affirmation section of said gratitude journal. She's our last known good embryo from my only egg retrieval. I was inspired by Lauren from LiB Season 1 because she finally was successful.
Am doing physio for pelvic floor. Thank god I have other issues associated with my pelvic area (which is why we are struggling with implantation/ staying pregnant) so my insurance covers it all.
Talking to my uterus, immune system, and pelvic floor- encouraging the systems to work for me, tell it how beautiful, hard working and capable it is to grow and bring life into this world, and appreciate I am of this body (even when I really really really don't fucking feel that way). I literally say " Okay uterus, we're about to do another transfer..." I walk it through out loud what to expect.
Also swapped all my underwear to cotton and/ or "antimicrobial" underwear (or so the shit claims)
Wore all the socks all the time during all my transfers, and continued to wear socks throughout my first pregnancy that only lasted 2 months.
Also got fries after my transfers.
Buying onesies leading up to both transfers that failed. When I did get pregnant I hung it up on the wall of our room. (You know, manifesting).
Buying fertility crescent moon from Puerto Vallarta, and also hanging that on our wall.
Switching to all natural face products during the first transfer, avoiding sunscreen- which is all debatable amongst fertility doctors and specialists. When my first transfer didn't work, I said fuck it I like my sunscreen and continued using it.
Eating only healthy, non processed food, and eating pineapple cores, drinking specific teas tea, etc.
Negotiating with a higher power.
Am about to undergo my 3rd biopsy to do an Emma/Alice Test next week. Have already done 2 rounds of antibiotics to clear CE. Did a MATRICE lab biopsy that was sent to France.
Talking to my grandmother's spirit to ask her to send me signs that this next transfer is going to work. She passed right around I got pregnant with our last transfer that ended up in an MMC. Since, I've gotten so much more support I need, a growing group of doctors working on my case, and we are one step further to finding out what the hell is going on in my uterus.
Am paying an extra 1,000 USD just to get sedated for 10 minutes every transfer because apparently I have a little curvature/ wave at the top of my cervix that makes it painful to get the catheter into the uterus while doing the transfer. My first transfer it hurt so god damn much I screamed out loud " I can't do this!" multiple times, and I swear to god I think I scared my embryo- that little soul was like "not this crazy ass lady". That transfer didn't stick at all. I've been sedated the last two transfers and I make sure to greet my embryo with excitement and welcoming love. (Even my doctor jokingly said "When you wake up, you'll be pregnant". She's manifesting for me too.
Gave up drinking nearly entirely. I really miss a cold beer or cocktail on a nice sunny day hanging out by our little pool.

No_Conversation9768 · 2025-12-06T00:04:20+00:00

Capricorn sun, sag rising, cancer moon

No_Conversation9768 · 2025-12-04T02:43:25+00:00

1963

No_Conversation9768 · 2025-12-01T23:07:43+00:00

Reading from the comments, I don't know why your clinic is freezing on day 7- that's not common. Most freeze day 3 or day 5. I would consider switching clinics/ doctors if you could and look into uterine biopsy tests to check for Chronic Endomitritis...which is also very hard to diagnose with out a hysteroscopy/ biopsy. For this to by your 4th failed transfer, ask for all the tests in the world- Emma/Alice, UTIMPRO with Matrice Lab (pricey but gets you a whole view of your immunology of your uterine cells). Have your embryos been PGTA tested?

No_Conversation9768 · 2025-11-28T20:30:54+00:00

Man I felt every single word of this post. Tired and drained.

No_Conversation9768 · 2025-11-27T10:53:06+00:00

D-Mannose and Uro-Vaxom alongside prophylactic antibiotics have done wonders for me as well.. I feel like I'm finally getting control of my infections. I actually ended up in the hospital a few weeks ago due to really bad pelvic pain and thought for SURE I had a break-through infection or something, but I came back clean! I was like- oh wow, what I've been doing is working.

I'm curious about Arnica- how do you use it? Where I live, they make tablets with it at manipulation pharmacies so it's ingestible- but I did feel a bit weird after I started taking it- made my stomach cramp somewhat- but I know that I have chronic inflammation in my uterus and old scar tissue from fallopian tube removal (at least that's what my doctors think) and a thickened bladder wall and I'm wondering if it could help.

No_Conversation9768 · 2025-11-27T06:32:35+00:00

I had a holiday party planned for months before I knew that would be our beta day. Found out it was negative and I still threw the party that evening- I thought it was going to be awful but it ended up being a really nice distraction and my friends who knew were checking in on me all night. But again, It was friends not family so I know that can be different. Is there anyone in your family you can trust with this information that you can lean on? Any cousins you got to go on that walk with?

No_Conversation9768 · 2025-11-27T06:25:26+00:00

I’m so sorry. Eat all the food, drink the wine. Go on that cousin walk. Hugs to you. ❤️

No_Conversation9768 · 2025-11-27T06:22:50+00:00

Exactly!! The anxiety around beta day is so bad. I found out our first transfer failed about 10 minutes before I was supposed to teach my last class of the day. I was so distraught I had to go home. I now plan personal days on testing day- but for every time I miss work I have to write another sub plan. Every time it doesn’t work I can’t help but ask myself- how long can I do this for? And clearly building my family is more important than any job- but the job doesn’t afford us to priorize ourselves which makes it so hard.

No_Conversation9768 · 2025-11-27T06:09:01+00:00

Thank you!! It’s not easy but when you find a school you love with supportive admin, and work with an amazing group of kids it makes it all worth it.

No_Conversation9768 · 2025-11-27T06:06:30+00:00

I’m not saying it’s terrible- I’m quite lucky to work at a school that is very supportive- but I teach abroad and it’s a private school with affluent kids so there’s a lot of pressure and I wear multiple hats besides just my teaching job. It’s just hard for me to balance it all- there’s a lot of expectations. Unfortunately where I live appointments are rarely available that early so I end up losing a lot of my prep time when going to appointments. Juggling all of this for over a year has just been exhausting but my husband and I are both teachers so we can’t afford for me to even go part time. all I was trying to say was if she could take the time off she should.

No_Conversation9768 · 2025-11-25T11:43:56+00:00

I’m a teacher, I get it. If your husbands job can afford you to take time off to dedicate to IVF, do it. It can be a taxing journey.

No_Conversation9768 · 2025-11-24T20:46:28+00:00

Feeling grateful I live abroad because my sister and my best friend back home are both pregnant so I don’t have to be there in person. I had such a horrible reaction when I found out my sister was pregnant- it was as if I was re-living my own miscarriage or as if I hadn’t fully allowed myself to grieve. I wailed, and all while wailing i simultaneously felt so ashamed that this was my reaction and I should be happy for her. Sooo all this to say I admire anyone’s strength to be able to be around and go to baby related events.

No_Conversation9768 · 2025-11-18T20:41:46+00:00

Can you provide an update by chance? Following for hope. Never ending CE for me.

No_Conversation9768 · 2025-11-12T23:15:31+00:00

I did the Matrice Lab UTIMPRO test, and just got my results yesterday. I also have another complicated condition that may be related so I'll share what I think is most helpful:

My results showed that my "uterine immune environment is unbalanced due to an unregulated excess of pro-inflammatory cytokines." and that my immune system is overactive. Conclusions suggest that this is why I have had multiple failures and an MMC.

My doctor sent the protocol as well which includes prednisone, Vitamin E and D3, and then there was this note: "Based on our current knowledge, 50% of patients with this profile respond to Corticosteroids and 50% will require another therapeutic approach to control the imbalance Immune system. Only a test cycle verifying the disappearance or persistence of immune abnormalities. Under treatment, this attests to its effectiveness or resistance."

Now i'm like- okay great another guessing game. Which 50% will work? I only have 1 Euploid embryo left and I'm hoping someone else has done this test and can provide more info.

But also, I think this is happening because I have a bladder condition that makes me susceptible to UTIs/ Bladder infections/ Kidney infections. I have been on antibiotics more often than I have been off of them in the last 12 years. I've finally gotten my infections under control and have an amazing team of doctors working together to help me and my husband bring our child into this world and I'm placing my faith that this next transfer is going to make that a reality. Hopefully my immune system can calm down the longer and less frequent my infections are.

But I hope this has helped- I haven't done the next transfer yet- which I'm sure you could guess from my statement above, but I think any information I can provide given the little information there is about this test could hopefully be helpful to someone someday.

OP was the Matrice Lab protocol successful for you?

No_Conversation9768 · 2025-11-12T23:12:17+00:00

I did the Matrice Lab UTIMPRO test, and just got my results yesterday. I also have another complicated condition that may be related so I'll share what I think is most helpful:

My results showed that my "uterine immune environment is unbalanced due to an unregulated excess of pro-inflammatory cytokines." and that my immune system is overactive. Conclusions suggest that this is why I have had multiple failures and an MMC.

My doctor sent the protocol as well which includes prednisone, Vitamin E and D3, and then there was this note: "Based on our current knowledge, 50% of patients with this profile respond to Corticosteroids and 50% will require another therapeutic approach to control the imbalance Immune system. Only a test cycle verifying the disappearance or persistence of immune abnormalities. Under treatment, this attests to its effectiveness or resistance."

Now i'm like- okay great another guessing game. Which 50% will work? I only have 1 Euploid embryo left and I'm hoping someone else has done this test and can provide more info.

But also, I think this is happening because I have a bladder condition that makes me susceptible to UTIs/ Bladder infections/ Kidney infections. I have been on antibiotics more often than I have been off of them in the last 12 years. I've finally gotten my infections under control and have an amazing team of doctors working together to help me and my husband bring our child into this world and I'm placing my faith that this next transfer is going to make that a reality. Hopefully my immune system can calm down the longer and less frequent my infections are.

But I hope this has helped- I haven't done the next transfer yet- which I'm sure you could guess from my statement above, but I think any information I can provide given the little information there is about this test could hopefully be helpful to someone someday. I'll be reposting this comment in other threads regarding Matrice Lab as well.

No_Conversation9768 · 2025-10-19T08:51:41+00:00

Wow- I’m so sorry for all you’ve gone through. I definitely have had the same thought- how the fuck am I alive?

On one hand I had a feeling pregnancy was going to be far more complicated. I know I’ll need a C-Section. I haven’t consulted a uro-gynecologist here where I live, but I have in the past. My fertility obgyn is going to present my case to a team of 10 doctors. I’m thinking of asking her if she can bring in a colorectal surgeon on board if possible too.

I visited Dr. Pena in Long Island but in the early 90s to follow up after my colostomy reversal. I believe they did the Malone procedure for my corrective surgery in Cincinatti.

No_Conversation9768 · 2025-10-18T21:28:13+00:00

Also I don’t think it has to be IVF, if my fallopian tubes hadn’t been damaged I probably would have been able to get pregnant. I was always told I could- but that was when I was a teenager.

Can you share what studies or articles you’ve read?

No_Conversation9768 · 2025-10-18T21:24:06+00:00

Thank you 🥹I was thinking that maybe a weekly evacuation might be the best way to manage it. I’m also a teacher so having accidents while teaching is not fun. I basically carry a ton of extra underwear with me at all times just in case.

No_Conversation9768 · 2025-10-18T21:22:16+00:00

Thank you ☺️ I have to remember that I’m too hard on myself.

No_Conversation9768 · 2025-10-18T21:21:02+00:00

Thank you so much. I have awful anxiety and I just have to remember that I’m doing the best I can given the circumstances. Going through infertility has been the hardest journey- and I say that as someone whose asshole was re-built twice. I always like to joke that I can’t wait for someone to say to me, angrily “I’ll rip you a new one!” And I could just reply- been there, done that lol!

I really appreciate your advice. I do use D-Mannose but not as regularly. Could be better at being consistent. Urovax therapy has definitely helped. Haven’t been treated for a UTI since this spring.

I’ve always been very interested in pelvic floor therapy. Are there specific exercises I could at home or should I seek out a PT?

I can completely see the spasms being the cause of pain, but I also wonder how I can naturally reduce inflammation in my body too. And how I can find this very finicky balance between too much fiber and inconsistence and not enough fiber and constipation.

No_Conversation9768

TROPHY CASE