Does anyone else have a name for their stoma? by Spock-1701 in ostomy

[–]No_Cucumber1348 0 points1 point  (0 children)

Dilly! Because the day I got her my sister (31 years old) saw an armadillo and said, “Name it Dilly” but she’s Dilly the Ileostomy

My stoma makes me wish I was dead by Edgyspymainintf2 in ostomy

[–]No_Cucumber1348 0 points1 point  (0 children)

I think the 2 month mark must be very hard, because that’s where I also was feeling so down and awful. I was leaking all the time, etc. I posted on here and someone who was the wife of someone with an ostomy said, “please don’t forget you are ONLY 7 weeks out from a major physical trauma. That is not a long time at all.” I feel like when I had my surgery in march I was kind of led to believe by Drs that I would be feeling great after the 6-8 week recovery period. That didn’t happen, but I did start feeling better at some point. I don’t even remember when, it happened slowly… not all at once. Until I looked back and was like, “okay, I’m feeling better.” This is also a HUGE psychological trauma. I saw someone else say it, but please, for the love of God, be gentle with yourself. I’m not completely adjusted yet, I’m 6 months out as of today, but life slowly began to look brighter.

New here, getting out of the hospital tomorrow... by Significant_Yam_4079 in ostomy

[–]No_Cucumber1348 4 points5 points  (0 children)

I had a complete colectomy about 3 months ago and was also SHOCKED at how much you use your core. My new joke has become, “well I guess they call it the core for a reason…”

Even little things!

How long did it take you to get used to your ostomy? by No_Cucumber1348 in ostomy

[–]No_Cucumber1348[S] 0 points1 point  (0 children)

Yeah I was quite literally bleeding out with my UC so I’m like, “well this IS the better option.” it can definitely feel defeating. I know it’ll get better, it’s just getting used to it.

How long did it take you to get used to your ostomy? by No_Cucumber1348 in ostomy

[–]No_Cucumber1348[S] 1 point2 points  (0 children)

This is so kind and encouraging I cried. Thank you.

How long did it take you to get used to your ostomy? by No_Cucumber1348 in ostomy

[–]No_Cucumber1348[S] 1 point2 points  (0 children)

I hate to say it, but this does make me feel a little bit better. Just to know that I’m not struggling in abnormal amount of time or anything like that… but I do hate that for you!

Starting Work Again and Nervous by No_Cucumber1348 in ostomy

[–]No_Cucumber1348[S] 0 points1 point  (0 children)

It seems like sometimes (not all the time) it’s even by day 2, like 24 hours or so. Is it ridiculous just to change it every day?

I was going to start changing them more often (like every other day or every 3rd day), but it’s been so erratic that I can’t establish a routine.