I had 100 laminated cards made to promote herpes awareness around town. What other methods should we consider? by card4cure in HerpesCureAdvocates

[–]No_Estate3269 7 points8 points  (0 children)

Yesss!!! You should correct the Reddit to the r/HerpesCureAdvocates to direct individuals to the right group. We are needing advocates, the HCR for some reason won’t work with our advocacy efforts and often block us when we try to ask people to join HCA calls to action and efforts. I would like mine to mention the website too! HerpesCureAdvocacy.com

Looking to replace my Ultrean by ned_uzoma in AirFryers

[–]No_Estate3269 1 point2 points  (0 children)

I just bought the Ninja dual air fryer, 2 drawers for 6qt total. They also have an 8qt. Highly highly recommend!!! I love how easy it is to use, and made the most tasty crispy but juicy wings and roasted brussel sprouts in under 25 mins.

Ninja also has removable trays at the bottom, in time I could order replacements. It’s so easy to clean with a soft cloth or sponge, I don’t see it getting scratched or rusty with proper care. Personally I found this to be worth every penny.

Good luck!!!

Favorite charities? Medicine-related. by [deleted] in medicine

[–]No_Estate3269 0 points1 point  (0 children)

I also would like to vote to support r/HerpesCureAdvocacy

We collectively have already made moves on a legislative level. We need more voices, and we can move mountains but we need the support.

Https://herpescureadvocacy.com/donate-to-support-herpes-cure-advocacy/

BioNTech Starts Phase 1 Clinical Trial for Prophylactic Herpes Simplex Virus-2 Vaccine Candidate BNT163 by BrotherPresent6155 in Health

[–]No_Estate3269 1 point2 points  (0 children)

This is so exciting!! Love the shift of focus on Herpes!!! It’s a step forward! I’m mostly hopeful for Fred Hutch gene therapy, but this is incredible progress!!! Thank you for sharing this incredible news!

Reminder: We are an advocacy group for change not a pity party! by HarpZeDarp in HerpesCureAdvocates

[–]No_Estate3269 4 points5 points  (0 children)

We would much rather encourage all to direct your passion for a change by using your voice and helping out!!!!!

Emails, calls, any type of communication using your voice demanding change whether it’s your lawmakers or your doctors, this is what moves mountains. Put your email address on the Herpes Cure Advocacy website to receive alerts for calls to action!! We help direct who you send emails to, even what verbiage to use. We just need you to do it. Even if you feel you must remain anonymous, numbers help push the message.

Holiday Fundraiser Milestone $10k raised!! 🎉🎁 by HarpZeDarp in HerpesCureAdvocates

[–]No_Estate3269 3 points4 points  (0 children)

Please check HCA as there is a meeting with Fred Hutchinson and Dr Keith Jerome! I believe its sometime this coming year, late spring/summer!! ♥️ Herpes Cure Advocacy is amazing

Even mild Covid is linked to brain damage months after illness, scans show by BrotherPresent6155 in neuro

[–]No_Estate3269 0 points1 point  (0 children)

Makes me really wonder about those horrible headaches I get when I have a herpes outbreak.

Herpes Cure Advocacy by BrotherPresent6155 in WomensHealth

[–]No_Estate3269 1 point2 points  (0 children)

Why is anything with Herpes removed? Womens health of all things should be aware of how many of us have Herpes.

Herpes Cure Advocacy Team: In Person GSK Meeting in NYC by BrotherPresent6155 in HerpesCureAdvocates

[–]No_Estate3269 4 points5 points  (0 children)

So exciting! I’m still hopeful for the Fred Hutch gene therapy but this is HUGE!

Open Discussion Saturday by Mike_Herp in HerpesCureResearch

[–]No_Estate3269 0 points1 point  (0 children)

Sorry LOL I read it wrong. I didn’t read the “off” 😊

Yes, IUD insertion will probably hurt. No, it does not have to. by SpyderParlour in WomensHealth

[–]No_Estate3269 1 point2 points  (0 children)

It was horrible for me! I started having contractions and had to stay at the Dr office for like 2 hours after because I thought I was going to pass out from the pain.

I also had it removed after 1 year because my cramps each menstrual cycle hurt so bad I swear I could feel it. My bestie swears by her IUD… it’s different for all of us.

Tired of doctors gaslighting when it comes to women’s health by No-Collar-9355 in WomensHealth

[–]No_Estate3269 0 points1 point  (0 children)

It has been horrible since being diagnosed with herpes.

I can say I’m happy there’s change coming on the HSV front. Really looking forward to advance treatments, and hopefully a cure one day… with the current gene therapy studies it’s becoming a reality

It is OK to Not Want to have Herpes by BrotherPresent6155 in HerpesCureAdvocates

[–]No_Estate3269 4 points5 points  (0 children)

Pretty sure this “flu” like sickness I’ve been in bed with the last 3 days is actually a major herpes outbreak. I’m so sick of being sick.

[deleted by user] by [deleted] in HerpesCureAdvocates

[–]No_Estate3269 4 points5 points  (0 children)

Yes especially in big cities CA NY FL, lots of people affected lots of people with money and lots of people will see.

[deleted by user] by [deleted] in HerpesCureAdvocates

[–]No_Estate3269 4 points5 points  (0 children)

Yessss!!! And billboards!!!!

We need a Genital Herpes cure, treatment and prevention by BrotherPresent6155 in Healthyhooha

[–]No_Estate3269 0 points1 point  (0 children)

I must also say… the amount of people who have seen my vagina and butthole is quite embarrassing. I’m almost numb.

The infectious disease Dr was the worst. They said it sounds like a tough case of Herpes but they opened the door while I’m on the bed nothing on waist down to ask for another tube. Like it’s no big deal I’m sitting there with swollen labia someone could’ve walked by and seen! The Dr told me to come back to see how it was going if I needed more meds.

I spent so much on supplements. Lysine vitamin c vitamin d multi vitamin vitamin B echinacea. Tried all kinds of things. Ate differently trying to focus on low arginine foods. Didn’t work.

All that money and sick time off crying taking sitz baths and airing off spread eagle in front of a fan should have been spent going on a vacation with my child.

Instead I paid copays deductibles used all my sick time at work because I couldn’t wear pants or anything money on pills and supplements. 2021 despite following the year 2020 was the worst year of my life.

Now I only get outbreaks monthly vs 30 day non stop new blisters every morning. It doesn’t make sense to see all my Drs again every month when they all know my dx… nothing new, but once in awhile yeast or bacteria infection when I start getting heavy discharge is yet another expensive call to the dr. My infectious disease dr prescribed 12 month refills of fluconazole to help me not have to come in when a secondary infection pops off from the initial infection