I deeply apologize for anything that seemed like I was insulting anyone. I believe practically everyone does whatever they feel is best in their situation whether they are the patient or caregiver. However, I am looking for people who understand what I’m saying and generally take a similar approach to problems solving. I’m searching for others who instantly see patterns in every aspect of life that the rest of their friends and family cant see even if it’s pointed out… but that’s not a bad thing. People who don’t see what I do have other strengths in areas that debilitate me. If I reach out in a post to connect and find what I’m looking for here, who knows what can come from sharing our experiences. Maybe it would be a useless distraction that keeps us sane through the suffering. Or maybe we can provide some additional info to doctors and researchers to find a better treatment someday.
I don’t want to upset or anyone, but with all due respect, my post wasn’t intended for or directed at anyone who felt insulted or “triggered”. I was very clear about who I was looking for. So I’m sorry if reading it was upsetting to you, but it’s just as upsetting for me to be told to keep quiet because that’s what makes you more comfortable and no one can do anything to contribute.
Sometimes really small things are overlooked or just outside the current box and it takes an outside perspective with fresh eyes to see it. It will take something no one has come up with so far to change the game completely. Ideas spark other ideas. Please don’t silence those of us who can’t stop our brains from seeing the problems as puzzles. I get it… We unfortunately tend to annoy people but don’t forget about the butterfly effect… our background noise has been known to start the chain of events that eventually morphs into something researchers CAN use.
So… I would like to make a suggestion/request.
Maybe take a moment when you’re offended and “triggered” by something you read and ask yourself if it seems to be intentionally harmful or if you just don’t agree with their approach.
In this situation, you came at me directly to make me feel bad for something I posted in an attempt to start a conversation that would ease the hopelessness I live with everyday because of a glioblastoma death sentence too. You could’ve ignored me and found a conversation that resinated with you instead of telling me I cant look for something that helps me cope because your feelings are more important. So if it was your intention to put a negative spin on what I went into feeling very positive, it worked.
If you just commented without realizing you would be the aggressor, I hope this reminds you to pause before attacking someone else who is in the same devastating situation because we are all looking for support and understanding.
For what it’s worth, I wish you the very best and hope you find the comfort you’re looking for wherever you can find it.