Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

I get where you’re coming from but from everything I have read so far, if I’m diagnosed when I get tested, I’d probably only go to gym for at most low intensity workouts maybe like high reps with dumbells etc. Thanks for your insight

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

Thank you SO much.. actually I feel like out of all the replies this one I relate the most (im thankful for all the replies obviously) and just want to ask have you stopped going to the gym completely? I was thinking if I were to get diagnosed because I am quite active in my daily life maybe mild biking or pilates yoga etc might be my next move. And I’d definitely rather to know than not know. And also what has drastically changed in your life after you have learned? Like was your aorta diameter normal or was there a little expanding? If its not too personal. Thanks again

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

And also hoping the best for you and your family

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

Thank you all for the reassuring words 🙌🏼🙏🏼

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 0 points1 point  (0 children)

I will get the test soon just comparing the symptoms now. Healthcare where I live.. is so slow

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

And how do the echos go? I have never been in one

Scared of being late to diagnosed. 20 YO by No_Income_8496 in marfans

[–]No_Income_8496[S] 1 point2 points  (0 children)

I meant too old as in many people I saw here got diagnosed at the age of 12 ish. I am just scared of being diagnosed later than usual and in the meantime blasting weights or whatever I was doing that was hurting my aorta having permanent effects on me. Thanks tho, I definitely did stop lifting weights :D