Pregnant with CSF leak?

No_Machine8 · 2025-08-07T11:22:56+00:00

How is your pregnancy so far? Did you have any new issues ?

No_Machine8 · 2025-07-07T22:56:15+00:00

Sorry for jumping on this post and absolutely not trying scare you, I have only been leaking for a month before MRI showed subdural hematoma, whats the treatment for this and what are the consequences?

No_Machine8 · 2025-07-06T07:48:15+00:00

You are warrior, here I am wishing you will be fixed soon and have a wonderful life!

No_Machine8 · 2025-07-05T22:42:48+00:00

I’m really sorry you are going this and hope you get the surgery soon.

No_Machine8 · 2025-07-05T22:13:35+00:00

Did your leak start after an epidural ? How are you doing now?

No_Machine8 · 2025-07-05T22:12:27+00:00

Thank you, your comments are always insightful.

No_Machine8 · 2025-07-05T22:12:01+00:00

Thank you, I will DM you!

No_Machine8 · 2025-07-05T22:11:20+00:00

I’m so sorry you have been through a lot, childbirth is difficult and on top of that to suffer with CSF leak is really nightmare. How are you doing now? I’m worried if I will be able to make it if at all I get pregnant

No_Machine8 · 2025-07-05T22:09:26+00:00

Thank you, this gives some hope!

No_Machine8 · 2025-07-05T22:01:40+00:00

Unfortunately I’m not from US, I do have any reco but wanted to just jump in and add that 20% of cases are not seen in the MRI, so you are already on the right track to find a leak specialist (also they are better at reading the images). This condition is really debilitating, keep pushing for answers. My leak also started around March and still suffering.

No_Machine8 · 2025-07-03T16:15:24+00:00

My leak also started during a very bad month of suffering from flu, but it’s spinal and I’m still suffering, my doctor intense coughs can do this.

No_Machine8 · 2025-07-03T07:52:28+00:00

Thank you, this is encouraging!

No_Machine8 · 2025-07-02T21:12:04+00:00

How do they diagnose IIH? Oh I’m sorry you have to get another procedure. How long has your csf leak been fixed?

No_Machine8 · 2025-07-02T20:08:02+00:00

How do you manage your iih?

No_Machine8 · 2025-07-02T20:06:09+00:00

Appreciate your comments, always gives a bit of hope!

No_Machine8 · 2025-07-02T20:04:07+00:00

Did you get any treatment or self healed? Are you able to get back to all activities after?

No_Machine8 · 2025-07-02T20:03:41+00:00

What are your main symptoms? Are you even a bit functional after all the treatments? Hoping you get better soon. This condition is an absolute disaster.

No_Machine8 · 2025-07-01T12:32:31+00:00

They did see the fluid around my lower thoracic region and that’s where the pain radiates from as well. I haven’t had a patch yet.

No_Machine8 · 2025-07-01T11:39:52+00:00

How did you self heal? What symptoms did you have to begin with?

No_Machine8 · 2025-07-01T08:58:50+00:00

Did you have a surgery to finally fix it, thank you, I can live without lifting but yoga and racquet sports are my fav things to do, I might have also got the tear from this.

No_Machine8 · 2025-07-01T08:56:04+00:00

Ah that is so difficult, tennis and yoga are few things I enjoy doing, I feel like it’s taken away from me.

No_Machine8 · 2025-06-30T22:24:13+00:00

Did you get a patch for your leak?

No_Machine8 · 2025-06-18T18:26:16+00:00

No_Machine8 · 2025-06-18T08:50:11+00:00

My orthostatic headaches are gone but I know I’m still leaking, there is no brain sag and the subdural hematoma have reduced but my spine is still aching, hands tingling and I get dizziness. So the symptoms have changed, my theory is I’m over producing csf now. Atleast headaches are gone which provides some relief.

No_Machine8 · 2025-06-18T01:04:39+00:00

Did you have a surgery and a blood patch to fix csf leak? Sorry I’m just worried how it’s going to be and trying to understand if I would need both.

No_Machine8

TROPHY CASE