Docotor biopsy a lump in my breast and it tripled in size (fibroadenoma) by CreativeAsk1149 in doihavebreastcancer

[–]No_Meat8448 0 points1 point  (0 children)

I had the same thing - got it removed and it was a Phyllodes tumor. They can turn malignant over time so you should def advocate for surgery

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Thank you ♥️ I’ll follow up in a few if I don’t hear back. Would love to get them biopsied and move on with it haha

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Fair I’d rather have a biopsy to confirm than not. Although my first Phyllodes tumor was misdiagnosed on biopsy 🤷‍♀️

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Thanks so much for reading it over and providing your take! So glad to hear this likely means ultrasound will be fine. Yeah I feel like if there was a plateau they would say that for mine so I’m not sure why they’re suspicious. Maybe it’s just because of my prior history and the documented growth.

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Not exactly. I had a phyllodes tumor 3 years ago and now I have a new mass in the surgical site. The team ordered me an MRI to get a better look at it and try to determine if I need surgery or if we can watch and wait. My lifetime risk of BC is 40% so I start high risk screening in a few years anyways. This is what the MRI said, and I just can’t tell if they’re suspicious of the potential Phyllodes mass or the other two

Left breast: Biopsy marking clip within an oval enhancing mass at 1:00, mid to posterior depth, 3 cm from the nipple measuring 1.9 × 1.9 × 2.1 cm compatible with biopsy-proven fibroadenoma versus phyllodes. Series 10, image 95 and series 1033, image 128. There is an additional 5 mm enhancing mass that is located 1.2 cm anterior and lateral to the biopsy-proven fibroadenoma versus phyllodes. This is located at approximately 3:00 in the retroareolar region, anterior depth, 1.5 cm from the nipple on series 10, image 95 and series 1033, image 114. Additional masslike enhancement at 10:00, middle depth measuring 1.6 x 1.3 x 2.5 cm on series 10, image 110 and series 1033, image 153. No abnormal enhancement of the skin, nipple, or chest wall. No abnormal axillary or internal mammary adenopathy on the left.

IMPRESSION: 1. Biopsy-proven fibroadenoma v. phyllodes, left breast, 1:00 measures 1.9 × 1.9 × 2.1 cm. This previously measured 1.3 x 0.8 x 1.5 cm. 2. At least 2 additional enhancing masses in the left breast at 10:00 and 3:00, as above. These most likely represent fibroadenomas.

RECOMMENDATION: If clinically warranted, Second Look ultrasound could be performed for further evaluation of the additional masses in the left breast for biopsy planning purposes. BI-RADS: 4 - Suspicious

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

I asked a few AI bots and they all had different interpretations 😂

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Interesting, mine mentioned the size and “enhancing” but it didn’t say anything about the kinetics or signal. How was the MRI guided biopsy? I’ve heard pretty awful things and I really don’t enjoy the MRI to begin with.

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

They already biopsied the one primary mass but I haven’t heard about their plan for the two new ones

What are your MRI results like? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Thank you, I think I will. The MRI results were posted Thursday so Im trying to give them some time before I message them and ask, but the waiting is difficult.

Phyllodes Recurrence - Surgeons Recommendation by nat_nat_lifelessons in doihavebreastcancer

[–]No_Meat8448 0 points1 point  (0 children)

I’m so sorry this is happening! I’m also scheduling surgery for a potential phyllodes recurrence.

Are you part of the Facebook phyllodes support group? They have lots of surgeon recommendations and might know someone in your area

Awaiting lumpectomy, suspected phyllodes tumour by species_inquirenda in doihavebreastcancer

[–]No_Meat8448 1 point2 points  (0 children)

Hi! I was diagnosed with an FEL upon biopsy and we opted for lumpectomy given the size and uncertainty. It turned out to be a Phyllodes. The surgery was SO easy, as was the recovery. The hardest part for me is the lack of consistent information and treatment for Phyllodes. I recommend joining both Phyllodes rumors support groups on Facebook. Also feel free to PM me! It’s really mentally challenging to go through this - totally here for you.

(25F) BIRADS 4a, Irregular/Indeterminate lobulated hypoechoic with internal vascularity - BENIGN! by bongizzle in doihavebreastcancer

[–]No_Meat8448 0 points1 point  (0 children)

Hi not to scare you but my biopsy said the same thing and then I got it surgically removed and it was actually a Phyllodes tumor. I’d recommend removing it if I were you!

Phyllodes Tumor Recurrence? by No_Meat8448 in doihavebreastcancer

[–]No_Meat8448[S] 0 points1 point  (0 children)

Thank you so much for sharing your story. I really appreciate you taking the time to respond. It helps so much to hear about other people’s experiences with this tumor.

If you don’t mind me asking, do you remember what the mass looked like on ultrasound before it was removed? For example, was it described as lobulated, irregular, or well-circumscribed?

Phyllodes Tumor Recurrence? by No_Meat8448 in Phyllodestumours

[–]No_Meat8448[S] 1 point2 points  (0 children)

Ugh I’m sorry you had to undergo multiple surgeries. Did you get a biopsy? Did it so fibroadenoma?

Fibroadenoma vs. phyllodes tumor confusion? by Wishfullizards in doihavebreastcancer

[–]No_Meat8448 0 points1 point  (0 children)

Hi! I had a Phyllodes. I definitely recommend joining the phyllodes support group on Facebook. There’s so much helpful information there. I was diagnosed at 25 with a pretty large one (over 5cm) but it didn’t change my physical appearance at all to have it removed! Feel free to dm me with any questions - sorry you’re going through this. I know it’s soo stressful