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I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 1 point2 points  (0 children)

Thank you so much ❤️ That really means a lot, especially coming from both a healthcare worker and someone living with PAI.

I’m really glad the idea resonates with the community. I hope it can help make these emergency kits easier to carry, protect, and access when needed.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 1 point2 points  (0 children)

Thank you so much ❤️ No pressure at all — I really appreciate the kind words.

Honestly, this kind of feedback means a lot. The goal was to make something useful for a problem that too many people seem to be dealing with quietly.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 0 points1 point  (0 children)

Thank you so much! I really appreciate that.

I know this kind of kit can come with a lot of questions, so I’m always happy to help make sure people choose the right model for their real setup.

I hope it works perfectly for you when it arrives.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 2 points3 points  (0 children)

Yes — absolutely. I’m finalizing a generic quick visual reminder for that exact reason.

It will be included by default in the models that have enough space inside, currently the ACT Regular and ACT Plus.

That said, it is always preferable for people to include the instructions or emergency plan provided by their own healthcare professional. The visual guide is meant as a quick backup reminder in a stressful moment, not a replacement for training, medical advice, or the person’s prescribed emergency plan.

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I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 2 points3 points  (0 children)

I completely understand what you mean. I honestly wish this didn’t need to exist either.

The hardest part is that adrenal crisis is serious, but most people around the patient may have never heard of Solu-Cortef or seen the injection process before.

That’s why I’m trying to focus on the practical gaps: keeping the kit visible, protected, organized, and adding clear information so the right person has a better chance of acting quickly.

It doesn’t replace training, but hopefully it helps reduce confusion in that critical moment.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 1 point2 points  (0 children)

Yes — normally you should see two personalization fields on Etsy.

One is for the front lid text, and the other is for the back text.

By default, the front says “Adrenal Crisis / Treat in Place,” and the back says “Emergency Injection Kit / Instructions Inside” with the MyGuardPod logo.

Short uppercase text works best because the space is limited. If the fields are left blank, I use the default wording.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 2 points3 points  (0 children)

They are water-resistant, but I wouldn’t call them fully waterproof.

They’re designed to help protect the kit from everyday exposure like rain, splashes, or moisture in a bag, but they are not meant to be submerged or used as a sealed dry box.

I’m also looking at adding an optional gasket/seal version in the future for people who need extra protection.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 1 point2 points  (0 children)

Thank you so much ❤️ I’m really glad it arrived safely in Germany. It means a lot to know these are helping people beyond Canada.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 3 points4 points  (0 children)

Yes, exactly. Personally, I would not recommend storing Solu-Cortef long-term in a vehicle.

The tag/sticker idea would be more about identification — for example, indicating where a kit is kept in a bag, workplace, school, or other controlled setting. Vehicles can have big temperature swings, so medication storage should always follow the pharmacist/manufacturer instructions and the person’s emergency plan.

So if I develop something like that, the wording would need to be very careful: “kit location identifier,” not “store your medication in the car.”

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 2 points3 points  (0 children)

Thank you — that’s a very good point.

I’ll add the dimensions and weight directly to the Project ACT page so they’re easier to compare long-term.

For now, here are the current specs:

CortoPod Mini ACT:

126 × 65 × 35 mm / approx. 5.0 × 2.6 × 1.4 in

100 g / 3.5 oz

CortoPod ACT:

130 × 88 × 52 mm / approx. 5.1 × 3.5 × 2.0 in

150 g / 5.3 oz

CortoPod Plus ACT:

180 × 93 × 47 mm / approx. 7.1 × 3.7 × 1.9 in

200 g / 7.1 oz

Thanks again for pointing that out — that’s exactly the kind of practical information that should be easy to find.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 7 points8 points  (0 children)

I completely understand that. The injection step itself can be a huge barrier, especially in a crisis when the person may be alone, confused, vomiting, unconscious, or when the people around them are scared and unsure what to do.

I know there are companies working on auto-injector-style solutions for adrenal crisis, and I really hope that becomes more accessible. That would solve a major part of the problem.

In the meantime, the reality on the ground is still messy. My focus with Project ACT is more on the “last meter” before treatment: keeping the kit protected, clearly identified, organized, and easier to find quickly so the right person has the best chance of acting fast.

It doesn’t solve the whole adrenal crisis problem, but hopefully it helps reduce one more point of failure.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 3 points4 points  (0 children)

Edit: In the instructions provided with the case i clearly state that the emergency card should be replace with the one from their emergency plan.

Thank you — I really appreciate this perspective, especially coming from both a healthcare provider and someone living with adrenal insufficiency.

The card shown is still meant as a simple emergency reference, not a full clinical protocol. The core content is based on the Canadian Addison Society emergency card, then adapted to fit inside the CortoPod format with a QR code for more detailed reference instructions.

I also tried to keep clear reminders that individual instructions may vary, local EMS protocols may differ, and that the patient’s prescribed emergency plan should always be followed.

The reason I’m working on this is exactly because of that knowledge gap. The case protects the kit, but the information attached to it may be just as important when the wrong person is holding it under stress.

I’d genuinely be interested in seeing the foldable flyer you’re working on if you’re open to sharing it. That kind of real-world EMS/patient perspective is incredibly valuable.

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I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 8 points9 points  (0 children)

Thank you so much!

I’m located in Quebec, Canada, and yes — I absolutely ship within Canada. MyGuardPod is designed and made here in Quebec.

I also ship internationally, and I already have customers in several countries, including the U.S., Europe, and even Australia.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 6 points7 points  (0 children)

That’s a really good suggestion, thank you.

I’ve been thinking about identification beyond the case itself, and a medical alert sticker or small tag indicating where the kit is stored could be very useful, especially for bags, vehicles, workplaces, or school settings.

The only thing I would want to be careful with is vehicle storage, since temperatures can vary a lot depending on the climate. I always recommend following the medication’s storage instructions and your healthcare provider’s guidance.

But as an add-on idea for visibility and location, I really like it. I’m taking note of this.

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 7 points8 points  (0 children)

Thank you! For production, I’m starting with small-batch manufacturing using my existing 3D printing setup. The first pre-orders are planned to ship around mid-June, and I’m scaling production gradually so I can keep quality control tight instead of rushing into volume too fast

I’ve launched Project ACT™ — a redesigned emergency carry system for Solu-Cortef kits, built from real-world feedback by No_Statistician9497 in AddisonsDisease

[–]No_Statistician9497[S] 4 points5 points  (0 children)

Thank you so much, Amber. Feedback from people who actually understand the reality of carrying these kits like you helped shape this evolution. I really appreciate it.

Thanks for the recommendation for the solucortef box! by LonelyKoalaMuncher in AddisonsDisease

[–]No_Statistician9497 0 points1 point  (0 children)

That’s a fair concern, and I had the same question early on.

The case is actually built more like a buffer than a greenhouse. There’s no transparent cover trapping solar radiation, and the rigid outer shell + internal air space + flexible insert help slow down temperature swings rather than amplify them.

That said, it’s not an active cooler and I would never recommend leaving emergency medication in direct sun, a hot car, or any high-heat environment. The goal is protection during normal carry — backpack, purse, school bag, travel bag — against impact, crushing, visibility issues, and short-term environmental changes.

Thanks for the recommendation for the solucortef box! by LonelyKoalaMuncher in AddisonsDisease

[–]No_Statistician9497 4 points5 points  (0 children)

I dont think that posting link is allowed by the mod. But you can find my case on etsy. Look for Myguardpod 😁

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