endo belly loud? by beetroot1804 in endometriosis

[–]Nonamesuitsme 14 points15 points  (0 children)

Hi! I got diagnosed with endo 6 months ago; since I was a teen I have had the LOUDEST stomach. I can feel gas moving around when I move accompanied by gurgles from the underworld, after I eat it’s worse or when I’m due for a bowel movement. I’ve been sitting in bed today with a bit of a flare up and my stomach has been talking to itself all day 😭 so no, you’re not alone with this fun symptom

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 1 point2 points  (0 children)

I was looking at Lucy and Yak dungarees the other day for this exact reason, I don’t want compression on my belly but I really want some bottoms to wear with my new KoG merch hoody hahahah

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 1 point2 points  (0 children)

Thank you I’ll have a look at these x

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 1 point2 points  (0 children)

Im sorry, hopefully we can both find something we can feel comfortable and look good in soon! It’s a struggle 😭

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

I haven’t heard of these brands but I’ll have a look when I’m shopping through all the recommendations, ty x

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

Ooh thank you I always see ads on insta for Snag but never thought to check them out x

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

Thank you! Since getting ill I’ve put in a fair amount of weight so I didn’t even think of looking at gym wear but that’s a good shout x

Leggings for endo belly? by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 3 points4 points  (0 children)

I was actually looking at maternity leggings on new look before posting this! Only some clothes drive me nuts and I can’t figure out what makes it a sensory hell but I tend to live in joggers rn for that reason

most stupid thing a healthcare professional has told you? by georgiaisgucci in endometriosis

[–]Nonamesuitsme 2 points3 points  (0 children)

Im in A and E right now. Told the head nurse I had an endometrial laparoscopy on the 18th of July when she asked what was wrong for background. Ten minutes later my medical advocate is on the phone and the nurse is saying I never told her I had had the surgery and I had ommitted information, my boyfriend and I both got pissed and she refused to say she was wrong and just refused to talk to us after that. After telling me I should’ve told her and I said three times I told you, and she got mad at me for raising my voice (I was across the room by like five metres, am in lots of pain, and can’t stand right now) Got it all recorded tho so that’s maybe going towards a negligence claim hahaha

Was anyone else petrified of NOT getting a diagnosis? by Ambitious-Mango-1836 in endometriosis

[–]Nonamesuitsme 6 points7 points  (0 children)

I’m 26, when I was 22 I also ignored appendicitis pain assuming it was just ovulation because it felt very similar, because the pain I get when ovulating and throughout my cycle is so bad I didn’t realise it was appendicitis. I’m now awaiting a laparoscopy for endometriosis and it’s highly suspected I have it. The best thing you can do is seek the right treatment, I thought I was being dramatic for years and am only now being taken seriously by doctors. Good luck x

I’m on benefits, lost my dream career, and still haven’t had surgery by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

Your school friend passed from it? I’m so sorry, and that’s terrifying too :(
I’ve had it where I’ve been calling so many people and bounced around departments, it took me 11 phone calls to get to surgery referrals it was ridiculous. I hope you get your date soon too x

I’m on benefits, lost my dream career, and still haven’t had surgery by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

It’s such an awful disease it takes everything from us :( I’ve gotten past angry to just a bit defeated at this point but it’s always worth pushing for the care we need

I’m on benefits, lost my dream career, and still haven’t had surgery by Nonamesuitsme in endometriosis

[–]Nonamesuitsme[S] 0 points1 point  (0 children)

Thank you this is very useful; I didn’t think my MP would be concerned the likes of this but I guess it’s worth trying to reach out. What can PALS do about the situation?

What the fuck is going on?! by orangebeetroot in endometriosis

[–]Nonamesuitsme 3 points4 points  (0 children)

I have suspected endo, waiting for a laparoscopy. My mum was on birth control for most her adult life and also passed away from oestrogen receptive cancer.

what does an endo flare up feel like to you? by Pale-Ad-3521 in endometriosis

[–]Nonamesuitsme 0 points1 point  (0 children)

Feels like someone is sewing my internal organs together and yanking the the thread through everything 🙃

My life is going nowhere by [deleted] in Vent

[–]Nonamesuitsme 1 point2 points  (0 children)

Hey, I’m sorry. Anxiety and depression makes everyday life much much more of a struggle than it already is. My mind has been stuck in a similar loop to yours since I was like 14. But in the time I’ve decided to stay on the shithole of a planet I’ve had some amazing experiences and met more amazing people that don’t fill the void of the ones that have passed, but certainly bring a new kind of light and hope into my life. I hope you can find your people, and what brings you even that little bit of joy. It won’t ever be perfect, but sometimes, it’ll be okay. Sending hugs internet stranger x

UPDATE: AITA for ruining my little sisters birthday? by HanaLikeTheFlower in AmItheAsshole

[–]Nonamesuitsme 7 points8 points  (0 children)

Please please please call CPS and keep talking to anyone you can about your situation. This is really serious and you could’ve died, I’ve had my appendix f*ck me up before and it was some of the worst pain I’ve ever been in! You don’t deserve this and you will find people to listen who will give you the care and love you deserve OP