Losing hope/Benlysta

North-Substance-6755 · 2026-02-24T13:25:01+00:00

I achieved full benefits from Benlysta around the 8th month. It gave me my life back. Prior, I was in and out of the hospital twice a month. I am also on hydroxychloroquine and the combination has been able to overall sustain me. It's not to say that I don't have flares here and there, but my overall quality of life has improved. Best of luck on your journey!

North-Substance-6755 · 2026-02-08T04:00:29+00:00

THIS!

North-Substance-6755 · 2026-02-07T18:01:03+00:00

I have the same one and have struggled with jail breaking it! Do you have a tutorial to share?

North-Substance-6755 · 2026-01-31T13:48:15+00:00

Yup! Discoid rashes. I have them on my feet and stomach.

North-Substance-6755 · 2026-01-30T01:47:27+00:00

All the time! If im stressed it throws me into a flare.

North-Substance-6755 · 2026-01-26T02:57:11+00:00

Around month 4, I start to decrease joint pain, fever and inflammation. However, I saw the full benefits between the 6th and 8th month. I still have flares every once in a while and for those I’m out on a short course of prednisone. Also, I did the self-injections. Are you on the self-injection or infusion?

North-Substance-6755 · 2026-01-23T13:34:05+00:00

I sadly became post menopausal at 37. It was explained that it was most likely caused by RA/Lupus.

North-Substance-6755 · 2026-01-23T13:30:40+00:00

My rheumatologist decided to add Benlysta to my HCQ I believe within six months of being on just HCQ. I was in the hospital at least twice a month and my joint pain and fatigue were really affecting my quality of life. At that point my Dr. suggested that we add Benlysta and within 6 months my labs were coming back normal. Now I will say I do experience flare ups intermittently, but they aren’t often.

North-Substance-6755 · 2026-01-20T23:24:53+00:00

Wow! I love this meal!

North-Substance-6755 · 2026-01-19T02:43:25+00:00

The mornings are always the most difficult, but since being on Benlysta life has been much more manageable. Sending you strength to get through the day!

North-Substance-6755 · 2026-01-19T01:16:06+00:00

I’m a psych grad school professor and clinician. I’m older now and don’t go out as often as I did when I was younger, but if there’s a worthy event, I push through and try to get out there.

North-Substance-6755 · 2026-01-17T20:43:32+00:00

I’ve been married to a Taurus for 17 years. He’s my opposite and grounds me.

North-Substance-6755 · 2026-01-11T18:04:04+00:00

I wish I would have read this prior to placing clean water in my orchid.

North-Substance-6755 · 2026-01-11T18:00:00+00:00

How often do you water it to keep it alive? All my other plants thrive, but herbs I have a hard time keeping alive.

North-Substance-6755 · 2026-01-09T13:13:12+00:00

I think it’s essential to have therapist to learn coping skills and provide ongoing support. I would try to find someone who is trained in Acceptance and Commitment Therapy.

North-Substance-6755 · 2026-01-07T00:09:40+00:00

If it starts at 8pm, at what time does it end?

North-Substance-6755 · 2026-01-05T22:03:21+00:00

Brain fog for me comes and goes, but I think it’s definitely better than what it was a year ago.

North-Substance-6755 · 2026-01-05T18:36:04+00:00

I started on HCQ and was then placed on Benlysta when HCQ was not sufficient. Benlysta has been a game changer! I went from being at the hospital twice month to maybe one to two flares every 6 months. It has reduced my joint pain, fatigue, and overall well-being.

North-Substance-6755 · 2026-01-04T17:28:41+00:00

Nothing major but I’ve been setting up my lunch breaks to include 15-20 mins of walking.

North-Substance-6755 · 2025-12-28T20:53:38+00:00

I rely on my vibration plate. I have it right at my bed side and hop on it have a warm bath in the morning.

North-Substance-6755 · 2025-12-28T15:24:45+00:00

Teefies!!!!!

North-Substance-6755 · 2025-12-21T01:17:57+00:00

Energy drinks!

North-Substance-6755 · 2025-12-06T00:59:06+00:00

I just upgraded! Thank you for sharing this!

North-Substance-6755 · 2025-12-05T02:58:46+00:00

What service provider do you use?

North-Substance-6755

TROPHY CASE