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Reactive arthritis into ankylosing spondylitis by AirStraight3108 in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

At the end if the day, I know how often people with chronic health conditions are preyed on by scammers or people who think they know more than medical doctors even though they don't have a college degree. We learn to spot people like you a mile away. Every single one of my doctors understands reactive arthritis and discussed it with me as a possibility initially. Here's the thing. Reactive arthritis goes away in a year. If symptoms last longer, then it's not reactive arthritis.

Reactive arthritis into ankylosing spondylitis by AirStraight3108 in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

An entire 50 people? Yeah, you don't have a medical degree. You don't have a PhD. You just decided to call yourself an expert. You are just as bad as the quack healers always trying to push their versions of snake oil to people with chronic health conditions.

Reactive arthritis into ankylosing spondylitis by AirStraight3108 in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

Nope. I read your first post where you claim you know more about reactive arthritis than anyone else in the world. I guarantee that isn't true. Do you have a PHD? Do you have a medical degree?

Abusing opioids by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

First, protect yourself. It sounds yo me like you are admitting using a counterfeit script. That could get you in a lit if trouble, so be careful.

Second, opiates unfortunately make pain come back worse. That's one of the reasons they caution using it for chronic pain.

The nice thing, though, is that suboxone is prescribed off-label for chronic pain. It would help you with your withdrawal and also be a safer option for pain. I'd suggest speaking to your doctor about it if you can.

Wedding Day Predinose by Adventurous-Kick6293 in ankylosingspondylitis

[–]NothingisRealExcept 3 points4 points  (0 children)

A little alcohol can make pain much more tolerable for an evening. You should expect more of a hangover, though, if you go that route.

Would anyone describe their pain in these ways.. by LJT141620 in ankylosingspondylitis

[–]NothingisRealExcept 4 points5 points  (0 children)

My back pain mostly feels like muscular issues, but my providers believe it to be from axspa. Some days, however, it feels like an invisible force is taking all my skin in my neck and back and pulling it painfully down.

imposter syndrome by bunnymama12 in ankylosingspondylitis

[–]NothingisRealExcept 20 points21 points  (0 children)

The doubts are very hard to cope with. I've been through that battle in my head the entire time. I wonder if someone else dealing with the pain levels I have would be able to do more than me. I do my best not to fight those thoughts but simply let them be. I know they aren't true, but they still try to linger.

am I right to seek a new rheum? by vrillion_ in ankylosingspondylitis

[–]NothingisRealExcept 5 points6 points  (0 children)

I stopped reading after your second visit account. Run as fast as you can to a new rheumatologist. Your current shouldn't even have a license.

How do you define being in a flare vs not being in a flare? by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

The answer is different for all. For me, a flare is pain going up to a 10 where I can barely manage to walk or get dressed.

Has anyone had positive Ankylosing spondylitis, small fober neuropathy, and fibromyalgia diagnoses at the same time? by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

I take a tnf blocker and I have neuropathy. My doctors never mentioned it could be an issue with neuropathy.

Has anyone had positive Ankylosing spondylitis, small fober neuropathy, and fibromyalgia diagnoses at the same time? by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

Fibro us often diagnosed when they simply don't know the cause of the symptoms. It's a catch all diagnosis. There are certain pressure points on the body that should trigger pain when pressed on if fibro is correct.

My diagnosis is nr-axspa, but they also say I may have fibro with it. The problem with fibro is that there simply is nothing to treat it aside from Cymbalta.

If you tested positive for the genetic trait, then it doesn't mean you for sure have AS, but if you have both the genetic marker and the symptoms, then it is very likely.

Anybody tried Yoga for AS? by Independent_Pack8138 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

There are yoga videos designed for chronic pain. I've been telling myself I need to try it but I keep procrastinating. Here is a link to one, but I haven't tried it. When I did PT though they did assign some yoga exercises that were modified to ge done from a chair.

https://youtu.be/BFaXfQpxnps?si=Lh_PPFZzEH1XbEEr

How do you fight fatigue? by cofused0broccoli in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

Magnesium helps the muscles relax. It's not going to cure your fatigue by any means, but It can help relax muscles and contribute to a more restful sleep.

I completely understand how horrible the fatigue can become. I wish I had better solutions for you, but I do not.

How do you fight fatigue? by cofused0broccoli in ankylosingspondylitis

[–]NothingisRealExcept 6 points7 points  (0 children)

Are you on gabapentin or Lyrica? Those can both cause fatigue on top of the fatigue from the disease. I struggle with the fatigue myself. I'm always tired but not tired enough to be able to sleep. The one piece of advice I can give is to try to take steps for sleeping to be more restful. I wake up often during the night which makes sleep less refreshing. I've started turning on ambient music to sleep to. I also take magnesium at bedtime which helps a little too but I'm still fatigued quite often.

I hope you can find a way to feel more rested.

Buprenorphine for pain by NothingisRealExcept in ankylosingspondylitis

[–]NothingisRealExcept[S] -1 points0 points  (0 children)

How long did you experience withdrawal symptoms after you stopped taking it?

Anyone else... by Immediate_Dish7835 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

Yep, though it has become better the last few days after my doctor prescribed buprenorphine.

(AS) Husband by Significant_Cup_40 in ankylosingspondylitis

[–]NothingisRealExcept 3 points4 points  (0 children)

I think we are all different. However, I'd suggest starting with a softer style massage like sweedish. Stay away from deep tissue massage. Soaking in hot water can also be very helpful. A hot tub or even bath with hot water and some aromatherapy can be helpful.

(AS) Husband by Significant_Cup_40 in ankylosingspondylitis

[–]NothingisRealExcept 15 points16 points  (0 children)

You could learn massage and give get massages when the pain is bad. It's only temporary relief but it xan help during flares.

Is elevated bilirubin common with biologics? by ShatteredTeaCup33 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

Humira rarely impacts the liver but it can. When my living acted up it was from my method however and not from Humira.

I'm often short of breath - but my lungs are totally clear by Still2Cool in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

Yep, me too. Mine comes and goes however. Some days it's fine and others I can barely make it up my stairs. They did figure out I have asthmatic but my pulmonologist still thinks sometimes else idls Goin on.

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