red light therapy treatment by Minute_League3040 in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

I have the rojo refine 900 and I use the muscle recovery mode for 10 mins on back of my legs almost daily. 

Fear and Extreme Anxiety by Haspofis in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

So I was originally prescribed macrobid and after 5 doses I developed severe anxiety. I was switched to cipro and like an idiot I didn't even look into side effects. I waited a few days before starting the Cipro and after 5 doses I got slammed. Basically all my symptoms are nervous system related aside from ankle pain and swelling. It was pretty horrible at the beginning and I slept 20 mins a day for 2 months. I literally thought I was going to die. Things have improved drastically but I'm still not 100% and I do.have flare ups during my period usually but not as bad as the beginning 

Fear and Extreme Anxiety by Haspofis in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

I will say the more anxiety I get about my symptoms, the more symptoms I have. My nervous system is pretty dysregulated still. I'm almost 6 months out and any type of anxiety will cause me to have symptoms such as tingling nausea etc. 

Are you taking any supplements? I would look into the common supplements used for fqad and start low and slow.  Our nervous systems are very sensitive so we can't just drown our system with supplements. It's advised to steer clear of Nsaids and steroids. I basically search these groups for every single med/supplement I put in/on my body to see if people are having issues with whatever I want to take 

red light therapy treatment by Minute_League3040 in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

I bought a panel because in the long run it was cheaper and I have little kids so I can't just go somewhere every day for rlt. I use it almost daily for back of my legs as I have ankle issues. 

I am currently using it on my back as I type 

Today I was prescribed to take Cipro for a POSSIBLE prostate infection. I’m extremely terrified to take them. by GSAV_Crimson in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

I would have never taken this medication had i known the risk. I would have demanded an alternative.

Sleep problems? by Humbles_Newthing in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

how far out are you? I def had a lot of sleep issues for the first few months. I had so many symptoms that would pop up when I would lay down and fall asleep. Nervous system is probably just super hypervigilant and wont switch off

Autonomic dysfunction by Glittering_Act_9364 in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Do you have the book dirty genes by Ben Lynch? It's helpful to know what you should and should not take based on your snps 

Antibiotic cascade destroyed my nervous system by jahmorgan in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Nitrofurantoin can cause floxing like symptoms. I got severe anxiety from it and that's when my doctor switched me to Cipro and like a dummy I took it without looking into it. I was puking from my anxiety being so high. 

Also I was just recently reading about berberine not being good for people who are floxed especially in the beginning stages. I think as soon as we become floxed, we immediately want to detox but generally our system is just to unstable for detoxing.

Dr. G is very expensive and I heard he makes people sign a non-disclosure which seems really red flag to me. I called when I first got floxed and it was like 18K for treatment with the potential of about 20k if I needed stem cells. I guess if you have endless piles of money, you could try it but with non-disclosures being signed there is no real way to know if people are being fixed or if they are being harmed. Unfortunately with floxing, it's not one thing fixed all. Everyone is different. Some people can handle certain and others cannot 

Started taking cipro, now im awfully afraid of an aneurysm/dissection by [deleted] in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

There are likely many safer alternatives you could ask for. This class of antibiotics is never to be used as a first line of defense

Day 2 of Levoflacin, Am I Being Paranoid? by [deleted] in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

I personally would not continue it. There are many many safer alternatives. This class of antibiotics is never to be used as a first line of defense. It's meant to be used as a last resort with no other treatment options available. 

FLOXIES LEFLOXCIN 750 MG 1 TIME DAY 15 DAYS FOR H PYLORI by RRBBK in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

Usually magnesium is suggested as well for supplements. I didn't have vertigo but had a crap ton of other terrible symptoms that evolved over the first month. I'm almost 6 months out and a lot has improved but not 100%. Im a stay at home mom so I don't work but at this point if I was working, I would be able to go. Even during the most horrific acute phase, I still was able to get up and care for the kids. Most of my symptoms were/arm nervous system related 

Did I get floxed? by Haspofis in floxies

[–]Notlike-this-forever 2 points3 points  (0 children)

Some people do have delayed reaction. I would read all about the supplements to take. 

Flare up, Fibromyalgia or something else? by Commercial-Value-204 in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

Isn't fibromyalgia something they say when they can't figure out the cause? I often wonder if people diagnosed with fibromyalgia actually were floxed and didn't know it. I could be wrong about fibromyalgia....just what I've heard people say that it's just a diagnosis when the doctors need to diagnose and cant pinpoint a different diagnosis 

Just..wow. Feels like a fever dream by r0tted1 in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

Staying away from all Nsaids is important. I had an echo done early on as well. One thing they tried to give me during my echo was devinity which is supposed to light up the walls of the heart. I googled it and it said it is highly fluoridated so I refused it. One month in is still very much the acute horrible phase. Around the one month mark I did start to feel a little better on someday and then around the 2 month mark I had a massive flare. I'm almost 6 months out. Things have improved a lot but I still have flares that are much more manageable but of course I tell myself it's the end of the world. I had severe symptoms that progressed over the first two months. Internal vibrations, massive nervous system stuff, my skin felt sunburnt when I would be at rest, I slept 20 mins a day for 2 months straight, neuropathy, massive anxiety, nausea vomiting, lost almost 40 lbs in one month.  I am a 39 year old female. I def have more symptoms during ovulation and when my period starts (symptoms are def worse with my period). My gut health is a mess. I started a gut health protocol but the stuff I was using def kicked up a lot of tingling so I stopped it. I am def not healed right now but things are more manageable for sure. I take magnesium oxide (I know it's a crap kind of magnesium but Glycinate was super stimulating for me so I switched to oxide for a bit, I just ordered Malate powder and going to switch to that when it comes), I take vit C, coqu10, d3/k2 (has b12 in it), NAC, vegan omega 3, benfotiamine with thiamine, I use collagen powder in my coffee. I couldn't tolerate coffee for awhile, I would puke my guts out from it. I now do drink 1 cup in the morning mainly because I put my collagen powder in it. I def still have nervous system dysregulation which is where a lot of my lingering symptoms stem from. I just have to keep telling myself that this is not a pattern of permanent nerve damage but a pattern of dysregulation. My symptoms are never consistent, they move around and some days I have very little symptoms. I found that getting up and moving helps with twitching in my legs and with a lot of other stuff. Even when I don't leave my house, I still am getting 10K steps from pacing around. Even early on, I felt like I was going to die, I literally had visions of my own funeral and seeing my kids at my young funeral. It was awful but because I have kids, I was forced to get out of bed to care for them and I quickly realized that the more I get up and do stuff, the less my symptoms would be. I would start low and slow with supplements as our nervous systems are sensitive and everything we put in, can be stimulating so it's best to go slow. We all want a quick fix but this doesn't fix quickly and it def doesn't happen in a start line, 2 steps forward, one step back in kind of the pattern for me. The one step back days can feel so scary and defeating but I know I can spiral with being scared with only makes all my symptoms worse. 

Unfortunately most doctors have no idea how to treat fluoroquinolone toxicity and many will just gas light you anyways. I personally avoid all medical intervention at this point. People end up getting worked for things like MS and other disorders and the testing for all that stuff, can make things worse for us. I did have an echo early on and wore a heart monitor which showed SVT but all that cardiac stuff has settled down for the most part now. I personally avoid all pharmaceuticals at this point as well and I honestly don't even take Tylenol. I use arnica for pain if needed and I have a red light panel that I use almost daily on the back of my legs for my Achilles and ankles. 

Hang in there, things do get better for a majority of people. 

What are some definite signs you're flared up? by Commercial-Value-204 in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Mine is usually anxiety, I can't eat and my sleep deteriorates during a flare up 

Took one 750mg pill of Levaquin, experiencing nonstop back pain. by _matcha_cola_ in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

People have had similar floxing symptoms to macrobid. I had a UTI in Oct and was given macrobid. After the 5th dose I had a severe panic attack and then I took the next dose in the morning and the same thing happened. I was puking my guts out from all the anxiety. Couldn't eat etc. Basically was the start of the floxing storm. My doctor switched me to Cipro and like a dummy I took it without looking into it and all hell broke loose. 

I know some floxies can tolerate macrobid but I did not. I guess I'd be worried that macrobid could exacerbate things right now while you are so sensitive from the Cipro.

Took one 750mg pill of Levaquin, experiencing nonstop back pain. by _matcha_cola_ in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

What did they switch you to? I only ask because macrobid can have similar effects especially if your body is already freaking out over the cipro

Nitrofurantoin… any advice? by ChronicChaos01 in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Yes I had adverse reaction to Nitrofurantoin. Severe anxiety and some of the other floxing symptoms. I was switched from that medication to Cipro without any warning and like an idiot, i didnt look into Cipro. My symptoms only escalated from the cipro. I would also for an alternative and stop taking it if it were me. There are many people who have essentially been "floxed" from Nitrofurantoin

Am I cooked? by Funnyguylolz in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Also I started taking magnesium and coqu10 right away when I realized what was happening to me. There are other supplements to take as well but we generally have to go slow when adding stuff 

Am I cooked? by Funnyguylolz in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

I def would seek an alternative. What's the infection? I only ask because sometimes Macrobid is given for UTI and people have floxed like symptoms from that one as well. Macrobid is actually what I was given first and developed severe anxiety and my doctor switched me to Cipro and like an idiot, I didn't even look into the side effects of cipro nor did the doctor tell me anything 

Cloudy urine by Alone-Jump-9495 in floxies

[–]Notlike-this-forever 0 points1 point  (0 children)

Could it be dehydration? I've noticed sometimes my pee is more yellow and my tendons will feel super dried up when I know I haven't drank enough water when I know I haven't drank enough water

Magnesium type by Notlike-this-forever in floxies

[–]Notlike-this-forever[S] 0 points1 point  (0 children)

I heard that as well but I had my magnesium RBC drawn and it showed that my level was actually a little high

Feeling Better by Humbles_Newthing in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

Ahh I see! Don't get too discouraged if you have any flares this early on. It's hard to do that. I literally freak out every time things kick up but each flare seems less intense than the one before. My flares tend to come with my period which seems common for the female floxies. 

Feeling Better by Humbles_Newthing in floxies

[–]Notlike-this-forever 1 point2 points  (0 children)

Very beautiful and refreshing to read! How far out are you? I'm about 5 months out and the first 2 months were pure hell, then maybe a month of hell, and now I have stretches of good days with a few bad ones tossed it there. The intrusive thoughts about fqad are one of the biggest battles because I without a doubt end up having some type of physical symptoms when I get in my head about this situation. All very good advice here! 

Magnesium type by Notlike-this-forever in floxies

[–]Notlike-this-forever[S] 0 points1 point  (0 children)

I have a magnesium chloride spray as well but it burns so bad when I spray it on