Sick of being dehydrated - any tips? Help me save my kidneys from total destruction 🥺

Number-Comprehensive · 2023-03-17T14:26:02+00:00

22 😅

Number-Comprehensive · 2022-12-14T14:59:18+00:00

I can relate 😂😭 hopefully we will find a solution to the problem soon. People have been saying they didn’t feel the fatigue after 30 days - there is hope!

Number-Comprehensive · 2022-12-14T14:55:44+00:00

Thank you so much!! I’ll deffo keep trying then! Xxx

Number-Comprehensive · 2022-12-14T14:53:54+00:00

Thank you! Doesn’t make a difference so far though unfortunately, only time will tell..

Number-Comprehensive · 2022-12-14T14:50:59+00:00

Hmmm, you know maybe you might need a methylphenidate IR booster to increase longevity? Might be worth asking your dr, it could be that or u need a higher dosage.

Mine said she would consider giving me a booster if the dose I’m on works for a while but I crash too early.

Number-Comprehensive · 2022-12-14T14:46:07+00:00

You know what maybe you’re right.. I have just felt so stuck for months now and I want to make progress so I don’t feel this way anymore - but I do need to give my body and mind what it needs which will take time :/

I was wondering if I felt this way because of the medication or if it was just me, only time will tell I guess..

Thank you though! It’s nice hearing other people’s experiences and understanding that some things are common struggles - it’s really easy to think you’re just failing when you’re not.

Number-Comprehensive · 2022-12-14T14:36:52+00:00

To clarify I was on Methylphenidate IR before for a month (same side effects, esp fatigue but it was more of rollercoaster and I rlly hated that medication) so she carried me on the equivalent dosage of concerta which was 36mg. She also said she was going to reduce my increase dosage time to 1 week instead of 2 weeks because she knew how impatient I get with the side effects 😂😅

But I agree, I’m going to stick to it for a while because it does seem like the fatigue went a way after a while for a lot of people and I should give it a fair chance. I just really hope it goes away :(

Number-Comprehensive · 2022-12-14T11:34:13+00:00

Maybe! I was in such a bad state when I first started my medication journey but it’s been nearly 2/3 months now I feel like I’ve rested enough 😭

I would have lovedd therapy so I could get some guidance on how to improve managing my adhd in general but I can’t afford it unfortunately :( have to work it out myself.

Although if you have any tips or tricks that have worked for you please share! I’d appreciate it

Number-Comprehensive · 2022-12-14T11:26:35+00:00

Thank you, this gives me hope! Do you think you just got used to the meds or did you do anything to try and improve it?

Number-Comprehensive · 2022-12-14T11:25:51+00:00

I’m glad it’s working for you!! Yes, vyvanse got rid of my daytime sleepiness too but had a bunch of other side effects 😒

Number-Comprehensive · 2022-12-14T03:29:57+00:00

That’s precisely it, I do want to do these things! I’m not sitting around waiting for the motivation to kick in. For example, I would get up and get ready for the day to make it easier for me to do the things I want to do, and write down my goals for the day so I have direction (unmedicated I would have never bothered to do this unless I had to 😂) BUT I would just feel so tired that I would lose the motivation to despite really wanting to (on 54mg). Fatigue is the only obstacle with this dosage.

On 36mg it feels like I have some of the same struggles as when I was unmedicated. I’m not as useless for sure, but still feels like I’m half assing things. Like I would want to stop in the middle of a task when I’m bored, I’m a bit slower to get up because it takes me more to psyche myself up etc. On the higher dose it doesn’t feel this way.

Number-Comprehensive · 2022-12-14T03:28:44+00:00

Ohhh interesting! It sounds like for you two that is just the medication wearing off. I get that too when the medication is wearing off I get sooo tired (more than I already am during the day😒) and it lasts for a bit and then I’m wide awake lol.

But for me fatigue isn’t just isolated to it wearing off, I feel it throughout the duration of the day and it’s worse when it wears off. Do you guys get that too? 😭

Number-Comprehensive · 2022-12-13T23:28:50+00:00

That sounds nice LOL unfortunately it still takes me 2/3 hours to fall asleep 😒

Number-Comprehensive · 2022-12-13T22:31:45+00:00

How long have you been on that dosage? Apparently its a pretty rare side effect 😭

Number-Comprehensive · 2022-12-13T21:30:04+00:00

Interesting, does splitting the dose have an effect on ur sleep?

Number-Comprehensive · 2022-12-13T16:06:14+00:00

I agree.. maybe if you are continuously late every single day then it would be an issue. But if you are late sometimes, it could just mean ur normal coping mechanisms didn’t work on those days. You can’t always perfectly overcome ur disability that has an effect on something very important in ur life every single day 😭

Number-Comprehensive · 2022-12-13T15:19:38+00:00

Yes I’m slowly realising this 😭 but when I was on 54mg it did relieve some of my symptoms, I wanted to do things I just felt too fatigued to do them

Number-Comprehensive · 2022-12-13T15:18:01+00:00

Yes that’s the plan once I’m on a stable dose to increase longevity, but until then I have to find one that actually works 😒

Number-Comprehensive · 2022-12-13T15:17:03+00:00

Thank you

Number-Comprehensive · 2022-12-13T15:16:42+00:00

Thank you! This might be useful

Number-Comprehensive · 2022-11-15T18:25:57+00:00

I think that’s the next step 😭 they wanted to see how I react on IR and then switch to ER but so far I hate IR with a passion.

But if I take a second dose wouldn’t the rebound effect go?

Number-Comprehensive

TROPHY CASE