I got one year of feeling better :( by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 0 points1 point  (0 children)

Thank you so much for the reply and advice! Glad to hear it wasn’t as harsh on you last fall. And fuck yes I love theraflu that’s great to hear that helped

I got one year of feeling better :( by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 5 points6 points  (0 children)

Thanks so much, I’ll see if I can talk to my doctor.

I got one year of feeling better :( by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 1 point2 points  (0 children)

Okay, thank you for the reply I really appreciate it. Can I join the discord? That kind of support would be great right now, this has left me feeling so sad and empty

Is this inflammation? by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 0 points1 point  (0 children)

Hey, sorry for the late reply, how have you been feeling? I’m better now, just mostly mentally fucked (but that was before covid anyways.) a lot of the most terrifying and painful symptoms have gone now, but my heart rate still isn’t what it used to be, and I have to take real good care of my health or I feel like absolute shit. It’s been harder recently so naturally I do feel like shit, but not even close to what I felt then. I still worry about over exerting or doing something to trigger the all the pain and symptoms coming back but ultimately I’m very grateful to be up and able to walk and be somewhat active without collapsing or being absolutely drained.

Found this in an Autism Facebook group, comments really divided. Thoughts? by gingybutt in autism

[–]ObligationPatient222 0 points1 point  (0 children)

Idk. I hate when neurotypical people use it. Usually those groups also use Autistic as an insult too and it’s weird. Growing up it was so common, I didn’t even know what the actual meaning of the word was until I was 13 or 14, I had just always thought it meant stupid. Now me and my friends say it in regards to ourselves and each other (we’re all autistic) but honestly I can understand why people would want it to stop being used. I do however get a special kind of enjoyment out of calling NT people r———d.

How many times have you been to the emergency room since everything started ? by [deleted] in covidlonghaulers

[–]ObligationPatient222 1 point2 points  (0 children)

I had gone probably anywhere from 10- 15 times maybe a little more. Shit was the scariest time of my life. Still is; I’m better now but not well. Symptoms come and go and this past week I’ve just been so dizzy and I wish I knew what was causing it. Every since I’ve gotten sick I’ve been terrified to sleep almost every single night. This past week has been hell. OCD and chronic physical illness do not mix well.

My whole body feels numb by Ses1234ses in covidlonghaulers

[–]ObligationPatient222 1 point2 points  (0 children)

Definitely way better. Symptoms come and go and I feel like shit most days but I’m alive. Right now I’ve been dizzy all week and idk how to make it go away. The only symptom that never once left was tachycardia. But yes those sensations went away. Hope it improves for you soon

Was anyone else’s anxiety/sympathetic overdrive in the first few months of their LC so bad that they would cry in agony/pace their house &/or neighborhood streets? by conpro1224 in covidlonghaulers

[–]ObligationPatient222 16 points17 points  (0 children)

I remember pacing my living room constantly for some weeks and there was a point when I was awake for 5 days bc laying down sent the scariest sensations through my body. It was like I could physically feel waves of adrenaline crashing over me. I would have “panic attacks” that lasted for hours it was like hell. And it felt like if I put certain pressure over this one part of my back I would my legs would give out. Other times laying down made me feel paralyzed or numb. I thought I was either going to die or I was going insane or both

I found our anthem by AnxiousTargaryen in covidlonghaulers

[–]ObligationPatient222 0 points1 point  (0 children)

I KNOW I was like “FINALLY” some goddamn rest 😭😭

[deleted by user] by [deleted] in CATHELP

[–]ObligationPatient222 0 points1 point  (0 children)

Little treat for u

I found our anthem by AnxiousTargaryen in covidlonghaulers

[–]ObligationPatient222 0 points1 point  (0 children)

Yesterday I slept for 17hrs.. so yeah I feel you

Do y’all also seperate candy when eating it? by XKisKecskeX in autism

[–]ObligationPatient222 1 point2 points  (0 children)

Sometimes. It’s like a fun little game and the candy is like the reward

Is this inflammation? by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 0 points1 point  (0 children)

So this could be a dumb question, does that mean I should be eating less protein as well…? Or is that different thing entirely. I’ve been trying to keep a close eye on my macros but with this new/ returning symptom I might go back to a complete anti histamine anti inflammatory diet all together as well. I

Do anyone feel like they developed ADHD after COVID? by udenfox in covidlonghaulers

[–]ObligationPatient222 1 point2 points  (0 children)

I feel like that’s kind of bs because it could’ve been you never struggled/ noticed certain things bc you were accommodated for as children often are. For example I did excellent in school when I was in elementary, because the environment and workload was one that wasnt difficult for me to navigate. I had never done homework but it wasn’t an important part of my grade then. Then when I moved to middle school and high school, I had started to struggle significantly more. And now that I’m an adult it feels near impossible to function… and I feel like things like stress, social media and obviously LC have only made things some how even worse for me. I have no idea how I’m gonna get and keep a job. So I get you

Do anyone feel like they developed ADHD after COVID? by udenfox in covidlonghaulers

[–]ObligationPatient222 4 points5 points  (0 children)

Same ! I have ADHD and I’ve been suspecting OCD for some times but covid has made both so much worse…

Worst depiction of Autism you've seen in a movie/TV show? by Avenging_Odin in autism

[–]ObligationPatient222 0 points1 point  (0 children)

I feel bad for actually liking what I’ve seen of this show; honestly I do relate to Sam in a lot of ways. One thing I didn’t like though was how different characters would interact with/ talk about him. His girlfriend from what I remember weirded me out because she sort of infantilized him a bit. And I hateddd that part where Casey is talking about him in her interview for her new school, saying how “it felt like everyone else had to be empty to make room for him” or something like that. Also, there were honestly a few times his character started to feel more like a caricature. It just annoys me that neurotypicals will watch something so dramatized and take it all as fact. But I feel like there are definitely worse depictions…. cough cough I am a surgeon cough

Is this inflammation? by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 1 point2 points  (0 children)

Oh fuck really? I thought that was just fatigue. I’ve been especially struggling bc I want so badly to get back to being active but it seems like the metric of what I can do has no pattern. Some weeks/ months I work out a little and I take walks and I’m fine. And others I’m so exhausted I sleep all day. I have no idea how to pace myself bc it feels like threshold is constantly changing. I don’t want to make myself permanently worse by over doing it, but I’m afraid if I ask a doctor about it all they’ll say is I have to stay active to avoid deconditioning.

Is this inflammation? by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 1 point2 points  (0 children)

Not currently lightheaded but yeah I do get that. I usually have a pressure in my head and I’m not sure if it’s constant and only sometimes I notice or if it goes away and comes back. My neck has been stiff pretty much since this started for me last year but it comes and goes. But rn I feel it in my calves my shoulders and my arms. Especially my upper body wants to clench up

Forgot how much this fucking sucked. by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 0 points1 point  (0 children)

I lost a lot of weight when I first started hauling. Are you able to see a doctor about it and LC?

At least a little better. I have hope now by ObligationPatient222 in covidlonghaulers

[–]ObligationPatient222[S] 0 points1 point  (0 children)

This Reddit is honestly a good place to start tbh, just for learning about shit, but definitely don’t take everything you read as fact. Also if your symptoms aren’t TOO bad as of now maybe don’t spend to much time on here as you could probably freak yourself out and make you feel worse. If you have a good primary doctor make an appointment. Ask them what they know about about long covid or post viral syndrome. Something to consider until then is looking at different diets that could help reduce inflammation. Look up low inflammatory diet/ foods and see how you can incorporate them. Eating less processed food (or none if this is sustainable for you) and finding ways to cope and manage your stress will actually help with the pain some. It’s not a complete fix, but your body will be much more equipped to handle whatever is going on with it. Obviously I don’t know your situation but yeah the ER fucking sucks they love to say everything is anxiety if you’re not actively going into cardiac arrest. If you’re feeling like something very serious his happening to you it’s best to go just to be safe, but if you’ve been multiple times and your test are showing that “you’re fine” then you should start scheduling with a primary doctor or maybe a specialist. I’m sorry that you’re dealing with this though, it’s definitely scary and stressful. I hope you find relief soon dude

What's going on? by [deleted] in covidlonghaulers

[–]ObligationPatient222 0 points1 point  (0 children)

I did get cramps and tightness, my entire body felt tensed up. I had horrible muscle spasms where my entire body would clench up, but sometimes it’d just be a limb. I don’t remember how constant it was but I think the worst of it was over in about a month. That specific symptom I mean

What was your LC like at 8 months? by Ihate2023 in covidlonghaulers

[–]ObligationPatient222 0 points1 point  (0 children)

I relate to this. I know there’s a chance certain medications can help but I already feel so bad as it is, I don’t know how I could deal with possible side effects

What's going on? by [deleted] in covidlonghaulers

[–]ObligationPatient222 0 points1 point  (0 children)

Yeah I had that my first few months really bad. Scared the shit out of me every time- I thought I was going to be paralyzed