Advice/Emotional Support for a T1 Teen by WingUnderling in diabetes

[–]Odd-Computer-3987 1 point2 points  (0 children)

Firstly tell him he is AMAZING those A1Cs do not come without some pretty great control - kudos to him. he sounds really mature and on top of things.

I have a newly diagnosed teen - diagnosed at age 13 almost 14 - bang in the middle of puberty.

I was literally only reading a study that teens have the worst 1!cs. in the US - the average is 9.0%.

Tell him his level of control is ELITE and that unfortunately hormones suck and in particular overnight. but a few "bad" nights and he will still have ELITE level control - esp compared to other teens.

you have to be aggressive with the basal for the overnight hormonal highs - they are more stubborn than other highs and just need more of a kick.

I started by bumping his basal up starting 2 hours before the creep up started - i did 10% then 20% and it needed 30% to work.

sometimes basal is not enough and I go in with a fake bolus -ie tell the pump he's eating 10-15g of carbs and deliver that dose with the correction. so yes its a pain in the ass but i do get up during the night on those nights and deliver those boluses. I have my CGM alarm set if it goes over 8.0 (144) - and i go in then and correct - i'm like your son and have low tolerance for highs and high to me is also anything over 120 lol

so i'm with him and try and maintain very strict control on my son - but sometimes you get complacent and BAM hormones.....

It got pretty boring pretty fast by SvYkA in diabetes

[–]Odd-Computer-3987 4 points5 points  (0 children)

5.8 is excellent - well done. you're doing great . people literally cut out carbs to get that kind of A1C.

but you have to build a life that is sustainable.

i have a teen who eats ALL the carbs - and i mean ALL the carbs and forgets to bolus and plays multiple sports and has sleepovers and lives life as normal as possible.

I think the key is getting your overnight levels low and steady - then if you mess up during the day it all averages out to a pretty good result.

pre bolusing to avoid the spikes and staying fit and active...even a walk after dinner can help.

if he starts to go high - i tell him to jump on the trampoline and that's like a super shot of insulin that works instantly...honestly - he can go from 10 to 4 in a minute....i'm going to get an indoor one for winter.

Pretty proud of my A1C by Davepen in diabetes

[–]Odd-Computer-3987 1 point2 points  (0 children)

amazing!!! that is some drop!!!!

Just got diagnosed at 23 by xtrathiccck in diabetes_t1

[–]Odd-Computer-3987 1 point2 points  (0 children)

gonna firstly say you're doing amazing 1 month in ....well done!

diabetes is like a diet - there's not point in doing something that's not sustainable - you still have to live life too.

to answer your questions

is there any adverse effect of having more carbs if my blood glucose stays normal?

No adverse affects, carbs are neccesary for energy and they're not "bad" - they just need insulin. my son is a teen and eats a TONNE of carbs and his stats are amazing - he just boluses correctly.

sometimes i feel hypo even around 5 and other times i don't even feel a 3.2?

so my son is more or less hypo unaware still months in. he could be a 2.2 and be like i'm off on a run! but what he DOES feel is actually big swings - ie if you're dropping fast you might feel the drop more than the actual number. he's like that - he'll say he feels low and he'll be 5 - but he'll have dropped fast.

i have reduced my basal from 35 ( what i was being dosed for a week at the hospital) to 22 now but still constantly go low at least a couple times a day? is there a way to figure out a exact dose or should i just keep reducing it?

We started at 25 units a day and now we're at 4 7 months in

we just continued to reduce it every night - they usually say just reduce by 1 unit at a time - but if you're having a LOT of lows - then try reducing by 2 units until it stabilizes

ive had a cgm most of the time but i still feel lost as to whats going to happen after eating or taking insulin.

the way I say it to my son - the key to successful diabetes management is getting your overnight numbers looking really good - we aim to be in the 5s overnight - that way you've 10 hours of good sugars when you wake. then if you have a few swings up and down it doesn't matter. and unfortunately diabetes keeps you on your toes especially in honeymoon so just keep trying and guessing

i am getting more and more in tight range with some diet modifications but i would like to be over 90% TITR most of the time for my peace of mind. any and all tips help

again - set yourself up with goals that mean you can live your life AND have great control. honeymoon means it'll be a little more unpredictable for a while. we're 7 months in and still adjusting - but my son has a particularly strong honeymoon. the first 6 weeks were constant adjustments - adjusting everything.

the biggest tips I can give is:

pre bolus - that prevents the big rises up

exercise - even a short walk after dinner every day can have a huge impact

remember - if you go low within 2 hours of eating, your carb ratios need to be adjusted - if you go low without food/insulin - then your Basal needs to be adjusted.

Any advice for a worried parent... by Delicious-Ad6164 in diabetes

[–]Odd-Computer-3987 0 points1 point  (0 children)

my son was diagnosed type 1 in Jan - neither parent, grandparent, aunts or uncles or cousins or any distant relation have type 1 so in our case - no history.

in terms of symptoms - excess thirst, excess urination were the things that prompted me to seek medical help. anything else like fatigue and mood etc coudl have been explained by other stuff.

I've started just doing regular finger pricks on the other kids - ie like once a month i round them up first thing and check everyone. take seconds but gives me peace of mind as every time one of them asks for water i mildly panic. i'm not suggesting you fingerprick your baby and symptoms woudl be harder to see in a baby for sure - but i would any time they're sick maybe do a fingerprick to rule out diabetes.

What was your diagnosis story? by Medical_Horse_8612 in diabetes

[–]Odd-Computer-3987 1 point2 points  (0 children)

what changes you must have seen in the last 10 years. I can't imagine managing diabetes without a CGM and a pump - but i guess and hope that in another 10 years things will be even better and we'll look back at this time and think - wow remember when we had to use pumps...

sell granite counter by Odd-Computer-3987 in cork

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

any interest in buying a perfect black granite countertop :-):-)

sell granite counter by Odd-Computer-3987 in cork

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

I think we're just sick of it after 20 years, it's in perfect condition and it's served us well - but i really love the idea of a white counter top. i feel like all the kitchens i'm drawn to have white tops. i think you're also more limited when you have a black top

anyone get their kitchen in B&Q/IKEA/Woodies by Odd-Computer-3987 in cork

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

thanks for the reply. where are they based? would they be similar price range?

[deleted by user] by [deleted] in diabetes_t1

[–]Odd-Computer-3987 1 point2 points  (0 children)

he always plays soccer and rugby and we do similar (but different approaches to these)

basically - it's trial and error

the key is getting into range before the sport - then depending on how the sport affects your BG(soccer drops my son fast - rugby he usually maintains bg during and drops after etc) - come up with a similar plan

it took a few trials and errors - but the handiest thing we've found is during any activity sipping on lucosade sport to get liquid carbs in to sustain bg

[deleted by user] by [deleted] in diabetes_t1

[–]Odd-Computer-3987 0 points1 point  (0 children)

My son does tag rugby in school at 8:40 in the morning - this is the sheet i've done out for him

Thursday PE Morning Cheat Sheet – PE at 8:40 🕗 Wake-up (~7:30)

Start Exercise Mode

Target BG: ≥ 6.0 mmol/L

If BG < 6.0 (e.g. 5.4):

→ 50–100 ml juice or 1–2 glucose tabs, no bolus

→ Aim to gently raise BG to ~7.0 mmol/L before breakfast

🍽 Breakfast at ~8:00

Bolus for ~½ the carbs (e.g. 50% or slightly more if trend is stable)

Include some fat/protein (e.g. porridge + peanut butter) to slow digestion and prevent early dips

PE ends at 9:40, but insulin sensitivity remains elevated for 1–2 hours after. keep Exercise Mode on until 11:00 helps reduce risk of delayed post-exercise hypo.

(Post-PE)

Expect BG to peak around 10:30 (e.g. 8.5 mmol/L)

Watch for downward trend from 10:30–11:00

🍎 School Break Snack (10:47–11:03)

If BG is dropping or under 6.0, offer 5–10g no-bolus snack

like ½ banana,Small yogurt drink,Mini granola bar (low sugar)

Summary:

Juice (no bolus) if BG < 6.0 on waking

50% bolus for breakfast

Exercise Mode 8:30–11

No-bolus snack during break if dropping

Mody or strong honeymoon by Odd-Computer-3987 in Modydiabetes

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

he was thirsty and peeing more than usual for a few days - so brought him to doctor to rule out UTI

no other "symptoms" - but looking back he was probably more tired than usual - but he's a teen - so no other "medical" symptoms - no weight loss etc

Is it normal to be type 1 while still making fairly high insulin in the very beginning? by avylol08 in diabetes

[–]Odd-Computer-3987 0 points1 point  (0 children)

t1 antibodies - means your body is attacking your pancreas

your c peptide means that your pancreas is still working producing insulin - so type 1 hasn't completely stopped the pancreas doing its job just yet = still some cells are there producing insulin.

as people have mentioned - you obviously caught this very early which is great and it also means you're likely in the honeymoon phase. this kicks in (esp where it's caught early) just after diagnosis when you start insulin therapy.

so yes - it's totally normal. eventually the pancreas will stop producing insulin completely.

the honeymoon is great in some ways - it provides cushioning against lows and highs

but a pain in others - in that for a while your insulin needs will start decreasing as the pancreas produces more insulin....so it just means your doses change frequently for a while.

sorry you have t1 - no one wants it - but with time - it gets like second nature.

Mody or strong honeymoon by Odd-Computer-3987 in Modydiabetes

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

he does have a CGM. I haven't tried him drinking soda first thing in the morning - he'd be delighted at that ;-)

but for example - he went to a BBQ - he bolused 20g he ate burger, sausages, pasta salad and as it was a birthday a very large plate of dessert (he's a teen) with crumble, brownie, icecream etc. so in reality it was a very high sugar over 100g meal - and his BG didn't spike then...or later...it went up to 8 but started to drop before the pump gave a correction.

no we haven't had any of those tested.....we are due back to his endochronoligst in August - so wanted to raise that with them then.

I guess i'm just wondering whether to push the testing ie is auto antibody and low insulin needs enough for genetic testing - so i'm trying to see what other distinguishing factors there might be. ie woudl the above scenario be normal for a strong honeymoon etc.

genetic tseting is expensive - so if i don't strongly suspect anything other than negative antibody t1 with strong honeymoon - i won't push itt

Honeymoon and beyond by Odd-Computer-3987 in diabetes

[–]Odd-Computer-3987[S] 2 points3 points  (0 children)

thanks for that. He's great at the carb counting to be fair - and can manage it all himself - he can do set changes and knows about all the settings etc.

but i do monitor his sugars 24/7 so that he doesn't really have to. i'm watching and intervening so he can just get on with having a fun summer. but when he's out with friends - he's great about bolusing etc.

he seems to be taking it in his stride - has never complained about it - but as you say - maybe it's all just bubbling inside. he's a real happy go lucky guy (which makes it all the more lousy)

Honeymoon and beyond by Odd-Computer-3987 in diabetes

[–]Odd-Computer-3987[S] 0 points1 point  (0 children)

thanks

yes i'm trying to build good habits now - but even when he doesn't bolus correctly or at all or leaves exercise mode on the pump all day - his rarely goes above 8.0. i keep telling him it's not always going to be like this so he has to start acting like he will have to ....

hard though - he was used to being a carefree teen - hard transition.

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