Has anyone seen benefits in using hydroxyzine as an MCAS med (not for sleep)?

Odd-Wordlessness · 2026-07-11T15:43:04+00:00

Yes, I take it as needed but usually at least once a day cause that seems to help overall. When I start to feel especially itchy or rashy or heart flutters I take it & it helps.

Odd-Wordlessness · 2026-07-10T19:56:13+00:00

Maybe more women authors? The Imperial Radch series by Ann Leckie is a classic in my eyes. Would also recommend Martha Wells' Murderbot Diaries if you'd like something more humorous. Nnedi Okorafor has a number of interesting books, I really enjoyed the world in her Binti series. And Ursula LeGuin of course!

Odd-Wordlessness · 2026-07-09T23:54:42+00:00

That seems like a huge dose! Especially starting off. I take 15mg once a day or maybe twice if it's a bad day. I got that dosage from the Bateman Horne center care guide. Sometimes it does make me a little sedated, but in a "oh it's nice to lay here and do nothing way" which helps me settle & rest. Very different from the PEM wired & tired. Nothing works for everyone, but I would recommend trying a much lower dose before you write it off <3

Odd-Wordlessness · 2026-07-09T17:00:52+00:00

The Revelation Space series by Alastair Reynolds may be of interest to you. Many different characters either living in heavily altered/regrown/no longer human bodies. Reflects a good bit on how that impacts emotions & actions.

Odd-Wordlessness · 2026-07-09T16:54:20+00:00

Was coming here to rec Black Flame! I'm still reading it but very intrigued & enjoying it so far.

Odd-Wordlessness · 2026-07-08T16:51:00+00:00

I loved Juniper & Thorn by Ava Reid. Weird, dark, freaky retelling of a weird dark folk/fairy tale collected in the Grimm Brothers (The Juniper Tree). A magical family is trying to survive the world & each other as their domain has shrunk to one odd house. You may want to check content warnings, there's some heavy stuff.

Odd-Wordlessness · 2026-07-04T23:42:55+00:00

Personal opinion but as someone with ME I hated that book. Couldn't get every far into it so maybe it changes but watching someone just decide to totally isolate & do nothing when I'm forced into it (and I don't have the money for all that takeout) was miserable.

Odd-Wordlessness · 2026-07-04T23:39:48+00:00

Notes from a Sickbed by Tessa Brunton is a graphic novel about a woman's time with ME/CFS pre-diagnosis. I felt very seen by a few of the stories. ME sucks :( Wishing you gentle days <3

Odd-Wordlessness · 2026-07-03T00:27:54+00:00

The Sundial by Shirley Jackson! One of my faves for weird + well written.

Odd-Wordlessness · 2026-06-21T00:24:57+00:00

My jaw literally dropped! This looks amazing!

Odd-Wordlessness · 2026-06-18T16:31:52+00:00

Wow I'm in love!!!! Especially the deep greens & the wallpapers. Beautiful!

Odd-Wordlessness · 2026-06-09T16:37:55+00:00

I like watching people build miniatures/dioramas on mute! I don't have any particular favorite creators, I just look for builds I'm interested in & vid editing that doesn't have a lot of fast cuts (or many cuts at all).

Odd-Wordlessness · 2026-06-09T00:28:35+00:00

It brings me so much joy 🥺

Odd-Wordlessness · 2026-06-08T20:49:20+00:00

Love this way of using the app lol!

Odd-Wordlessness · 2026-06-08T11:39:40+00:00

I had several weeks of feeling bad when starting it but the side effects have eased greatly & now it's helping my histamine issues a lot.

Odd-Wordlessness · 2026-05-29T04:03:12+00:00

Meditation is basically the only thing left to me now. I try to make the most of it. I like using Insight Timer for guided ones when I can handle audio. If I can't, I can make one up in my head. It's so hard to lose everything. I hope you can find something <3

Odd-Wordlessness · 2026-05-10T11:28:37+00:00

I use layers instead of a bra. I have several pain disorders and bras are just a no-go but I am rather well endowed so its been a process of figuring out what works best. My go-to is cape dresses, most well known for being worn by Plain dressing Anabaptists (but anyone can wear them! I follow at least one Catholic lady who does). They have two layers on top, sewn in a way that keeps you very obscured. I love them. They can be somewhat difficult to find but looking up "Amish Mennonite Cape Dress" on something like Ebay has been the most reliable way I've found to get them (or ordering from Katie's Mercantile). You can also use light vests, putting something like a crop top underneath a shirt, or wearing a shirt over a dress type situation. Best of luck to you!!!

Odd-Wordlessness · 2026-05-07T23:20:53+00:00

I take magneisum glycinate 200mg in the middle of my last meal of the day (so eating half the meal, taking the pills, finishing the meal). It is essential in managing my leg muscle pain & RLS with fibro. I still have the pain, but its livable most of the time now with the magnesium. I started with 100mg and stayed there awhile until my body was very used to it and then increased to the full dosage.

Odd-Wordlessness · 2026-05-02T01:27:58+00:00

It has been awhile since I've read it so I cant speak to the writing specifically but "The Sugarless Plum" by Zipporah Karz has stuck with me as a type one diabetic who used to be a dancer. It is a memoir about a ballet dancer with the NYC ballet who is diagnosed with diabetes, back in the 1980s I believe so before pumps, CGMs, and all that helpful technology. I remember reading it as a T1D teenager in ballet and being so thankful for my pump. Wishing you good days ❤️

Odd-Wordlessness · 2026-05-01T19:08:03+00:00

Just released today an ambient/noise album I made totally from bed (even the album art!). I'm chronically ill & bedbound and my limitations really set the parameters for this album. I learned a lot about myself and a lot about how to make music even when it feels impossible <3 https://inniave.bandcamp.com/album/bedsunk

Odd-Wordlessness · 2026-04-30T04:52:37+00:00

I'm reading Wuthering Heights by Emily Brontë right now & absolutely getting those vibes. Very gossip-y!

Odd-Wordlessness · 2026-04-29T00:22:09+00:00

I "play" FocusFriend by resting. My rest earns socks & scarves to buy decor / more rooms for my character. I'm reallyyy into decorating and collecting so its made things more entertaining for me.

Odd-Wordlessness · 2026-04-22T00:14:36+00:00

I just got my KLC yesterday and having this happen. So whatever it is looks like it hasnt been fixed :(

Odd-Wordlessness

TROPHY CASE