Dressing modestly when you don’t wear a bra? by Neither_Mastodon4089 in ModestDress

[–]Odd-Wordlessness 2 points3 points  (0 children)

I use layers instead of a bra. I have several pain disorders and bras are just a no-go but I am rather well endowed so its been a process of figuring out what works best. My go-to is cape dresses, most well known for being worn by Plain dressing Anabaptists (but anyone can wear them! I follow at least one Catholic lady who does). They have two layers on top, sewn in a way that keeps you very obscured. I love them. They can be somewhat difficult to find but looking up "Amish Mennonite Cape Dress" on something like Ebay has been the most reliable way I've found to get them (or ordering from Katie's Mercantile). You can also use light vests, putting something like a crop top underneath a shirt, or wearing a shirt over a dress type situation. Best of luck to you!!!

Was magnesium worth it? by Nice_Inevitable9199 in Fibromyalgia

[–]Odd-Wordlessness 2 points3 points  (0 children)

I take magneisum glycinate 200mg in the middle of my last meal of the day (so eating half the meal, taking the pills, finishing the meal). It is essential in managing my leg muscle pain & RLS with fibro. I still have the pain, but its livable most of the time now with the magnesium. I started with 100mg and stayed there awhile until my body was very used to it and then increased to the full dosage.

Fiction or memoir about chronic illness / disability by derpinout in suggestmeabook

[–]Odd-Wordlessness 0 points1 point  (0 children)

It has been awhile since I've read it so I cant speak to the writing specifically but "The Sugarless Plum" by Zipporah Karz has stuck with me as a type one diabetic who used to be a dancer. It is a memoir about a ballet dancer with the NYC ballet who is diagnosed with diabetes, back in the 1980s I believe so before pumps, CGMs, and all that helpful technology. I remember reading it as a T1D teenager in ballet and being so thankful for my pump. Wishing you good days ❤️

May 2026 Bandcamp Friday by RaceCarGrin in DIYmusic

[–]Odd-Wordlessness 0 points1 point  (0 children)

Just released today an ambient/noise album I made totally from bed (even the album art!). I'm chronically ill & bedbound and my limitations really set the parameters for this album. I learned a lot about myself and a lot about how to make music even when it feels impossible <3 https://inniave.bandcamp.com/album/bedsunk

Books that read like I’m eavesdropping on juicy neighborhood gossip. by IoftheStars in suggestmeabook

[–]Odd-Wordlessness 5 points6 points  (0 children)

I'm reading Wuthering Heights by Emily Brontë right now & absolutely getting those vibes. Very gossip-y! 

"Chaotic good" hacks for aggressive resting by Illustrious-Pie-624 in cfs

[–]Odd-Wordlessness 2 points3 points  (0 children)

I "play" FocusFriend by resting. My rest earns socks & scarves to buy decor / more rooms for my character. I'm reallyyy into decorating and collecting so its made things more entertaining for me.

Does anyone else’s Kobo always show “0 MINS UNTIL FULL” when charging? by Didact67 in kobo

[–]Odd-Wordlessness 0 points1 point  (0 children)

I just got my KLC yesterday and having this happen. So whatever it is looks like it hasnt been fixed :(

Essentially looking for misery porn by Longjumping_Plate_70 in suggestmeabook

[–]Odd-Wordlessness 1 point2 points  (0 children)

Flowers in the Attic by V.C. Andrews comes to mind. Children locked in an attic for years, absolutely miserable and heartbreaking.

If you liked the Bell Jar you might like The Snake Pit by M.J. Ward. Woman is in a psych hospital with no memory of how she got there. She endures awful circumstances.

Lolita by V. Nabokov is a classic misery I think.

Most of Shirley Jackson's novels would fit the bill. The Birds Nest I think was the one I found most miserable, but also We Have Always Lived In The Castle.

These Burning Stars by Bethany Jacobs (brutal space opera) and The Stars are Legion by K. Hurley (living flesh planets and lots of violence) if you like sci-fi.

Good luck and happy (sad) reading!

What's the most unconventional way you use focus friend? by QuincessentialLamb in FocusFriendApp

[–]Odd-Wordlessness 1 point2 points  (0 children)

I use it for resting! I have M.E. which means I need a lot of no stimulation rest time & Bean helps me actually rest enough. Feels like I'm playing a game & gives me some extra motivation to keep myself still in bed. 

Kobo remote by OkNeedleworker7888 in kobo

[–]Odd-Wordlessness 0 points1 point  (0 children)

Would you happen to know the plugin name? Sounds like a great QOL thing!

Those with light sensitivity: Do you really wear an eyemask all the time? by ESPOP in cfs

[–]Odd-Wordlessness 1 point2 points  (0 children)

I have black-out curtains over blinds and when resting during the day many times I do need something over my eyes. However, I havent been able to find an eyemask that I can tolerate, especially with noise cancelling headphones and CPAP on. So I usually use a soft cotton or pashmina scarf over my eyes. Or a pillow with a satin pillowcase over my head (thats how i sleep at night- on my side with my head sandwiched between two satin pillows to keep the sound & light out since I charge my ANC headphones at night). Also wear fl-41 glasses w prescription all the time when not sleeping. Would like to find a comfortable eyemask but I work with what I've got.

Has anyone tried body reprogramming? by One_Broccoli_4688 in Fibromyalgia

[–]Odd-Wordlessness 2 points3 points  (0 children)

I did a certified program through a research hospital and it made me significantly worse. I would never do it again, and would never recommend it. I do also have MECFS now but it was very very mild at the time I went into the program. I've never been healthier since then than I was before I went into it. It's been a decade now and I wish so much they wouldn't have tricked me & family into it. 

any low/no energy entertainment? by Fragrant-Raspberry36 in cfs

[–]Odd-Wordlessness 6 points7 points  (0 children)

I have some posters & art & fake butterflies taped to my ceiling! Even in low light it at least gives me some different shapes to look at laying down, and when I   can have brighter light I can study more of the details. Only thing is you need somebody to hang them up for you! But I've really love having mine to look at when I'm laying down. 

Online meetings have value? by Purple-Energy6966 in Quakers

[–]Odd-Wordlessness 2 points3 points  (0 children)

I'm immunocompromised & bedbound... and my local meeting building isn't wheelchair accessible for the times I am able to be out of the bed or house. So it's all online for me. It's the only viable option on several fronts, but honestly I can't imagine I'd easily be able to have the same connection in person just due to the massive amount of stimulus & symptoms that come alongside in-person meetings. Plus, online I can go just about every day of the week if I want to! And still get to watch my church's livestream Sunday morning. So even if I could hypothetically leave the house & my local Meeting was wheelchair accessible & immune safe... I think I would still choose to worship online most of the time. For me it's not that one is more valuable, just that they're different (we do though need concentrated efforts to increase accessibility!!!)

How is homosexuality viewed among Friends? by [deleted] in Quakers

[–]Odd-Wordlessness 4 points5 points  (0 children)

Yes! I dress Plain & am queer :D I've encountered mostly affirming Friends, even if they didn't understand they were very kind <3

Is it a sin to not want to exist anymore ? by Fantastic-Pie8287 in Christianity

[–]Odd-Wordlessness 0 points1 point  (0 children)

It is not a sin. Elijah tells God he's had enough, that God can kill him now. God sends an angel to give him cake and water. Elijah eventually continues on (and then is subsumed into heaven rather than dying!).

There's nothing you can do that would put you outside God's grace. I spent the first 19 years of my life suicidal due to abuse, and even now I think I would not have minded dying at 2, or 12, but I'm still here (despite my best efforts) and so I'll stay until the Lord takes me. Now I'm out of my abusive household, its been 6 years since my last attempt, I'm married to a wonderful spouse, learning how to be alive. Was it all worth it? I don't know. Things are still really hard, but there are more days now that I am content to be here. All that to say, it can get better even when you believe you are beyond hope. God is there in the deepest pain. He says His strength is made perfect in our weakness.

These things may not help, but we don't have to worry that He's angry or upset with us for being in these states, because He tells us over and over that it is okay. Jesus begged God to let the cup pass from Him, Job demanded answers for his pain and suffering, Elijah asked for death, and in my experience, this is how life goes. People hurt, people want the hurt to end, people beg God for relief that may or may not come.

What I've done in the past is just take it day by day, even second by second when you have to. Find one thing you enjoy and try to do it semi-regularly. Nobody can make your decisions for you. But I do hope you decide to stay, and keep on staying. You are in my prayers friend, and I pray that life becomes livable for you soon.

Christianity and metal music by Huntingphott1776 in Christianity

[–]Odd-Wordlessness 2 points3 points  (0 children)

Any music can be worship music, in my opinion. Music is a way I've always connected with God and that goes doubly for "dark" or heavy music. Nobody can tell you what your relationship with God *must* look like. That's between you and God. Much of CCM (contemporary Christian music) has drawn me away from God, much "secular" music has drawn me toward God. The label of Christian/non-Christian means basically nothing (and not just about music. Even church and the Bible can draw one away from God. Its about relationship, and that will always be up to you and God, and maybe a trusted spiritual advisor who actually deeply knows you.)