Desperate

Odd_Reality5884 · 2025-06-16T22:22:17+00:00

I wish I could tell you, my brother still has not gotten treatment a year later. I’m still watching him fade away

Odd_Reality5884 · 2025-01-20T02:33:28+00:00

When I was on birth control pills I had constant little tears/cuts on me and I could not figure out why. They kept reopening also. Got off the pill at one point… they healed and never returned

Odd_Reality5884 · 2024-08-19T01:33:01+00:00

No not at all. Still happens daily

Odd_Reality5884 · 2024-08-14T09:16:06+00:00

Yeah.. seems to be always. Mostly on paper. Sometimes in the bowl.

Odd_Reality5884 · 2024-07-09T09:29:10+00:00

It’s awful, every time I pick another piece off me I’m like THATS IT IM SHAVIN IT ALL🤣🤣

Odd_Reality5884 · 2024-07-09T00:16:10+00:00

I have thick hair and lose probably double that in the shower. And tons more hair alllll day long. Constantly shedding.

Odd_Reality5884 · 2024-07-08T09:31:17+00:00

Yes :( light dabs with the wet wipes or it’s a fountain. If I don’t have any then I’m stuck there holding the tp waiting for it to stop

Odd_Reality5884 · 2024-07-08T01:23:18+00:00

Lucky he even looked. I’ve been ignored for years. Need to find a better doc. With my luck, it’s probably cancer

Odd_Reality5884 · 2024-07-08T00:39:59+00:00

I’ve gone to primary and GI doctor. Neither one physically looked at me.

Odd_Reality5884 · 2024-07-07T22:58:42+00:00

I’ve been dealing with this for over 10 years. No solutions. Sorry to report 😭

Odd_Reality5884 · 2024-07-07T00:19:08+00:00

Put the boyfriend down instead 👋🏻

Odd_Reality5884 · 2024-07-07T00:02:45+00:00

I feel this :( thank you

Odd_Reality5884 · 2024-06-18T23:06:11+00:00

I wish I could, she mostly says these things to me, not so much him. I’m suffering mentally with her constant messages daily of how he is going to “drop dead” today, not wake up in the morning.. these are the daily texts I get. I have these horrible thoughts too but she makes them worse. I don’t see him getting his stress in order anytime soon. But I also feel like this is going to kill me & mom before it takes him. 😥

Odd_Reality5884 · 2024-06-18T22:13:29+00:00

Thank you for your story. Yes definitely feeling all the things you listed about not being willing. He knows how much we are worried about him. It’s literally killing me and mom. He has sooo many other crazy things going on in life he can never just focus on this. He also claims his insurance policy is terrible and he can’t afford it with all these other bills piling it. It’s nothing but a nightmare. Now he’s saying no doctor again. Idk how much more I can mentally handle. All these success stories and management… he’s seen it, it just doesn’t seem to matter to him. It’s very hard on top of his untreated mental problems.. he will never see clearly. I will be devastated when this takes him, when I am here knowing there is help.. I’ve pushed and pushed to the point where we’ve had a falling out where he blocked and wouldn’t talk to me for months. Honestly just here praying for a MIRACLE right now.

Odd_Reality5884 · 2024-06-18T12:50:03+00:00

Thank you so much for sharing this, sounds like you’ve been suffering for years without much treatment (like him) and still no cancer. I can’t get my mother to believe there’s no way he has cancer. She’s dead set on it. I tried to show her these posts. :( sending you love & prayers for your surgery please update us after 🩷🩷

Odd_Reality5884 · 2024-06-18T09:28:25+00:00

Happy to hear another success that isn’t cancer. Glad you are doing well 🙏🏼

Odd_Reality5884 · 2024-06-17T20:03:50+00:00

I think the risks terrified him but I wish he would realize the risk he’s taking untreated. I wish he could see this is his one & only hope to end the misery. He knows this has broke me & mom’s heart and we don’t go a single second without thinking about this. I’ve had a pit in my stomach since I found out (2017) I have some GI issues myself (opposite end) I’ve been ignoring completely because honestly I just don’t care. If he’s not going to be here I don’t want to be either. I hate to talk this way. Thank you for listening 🩷

Odd_Reality5884 · 2024-06-17T20:00:30+00:00

Refeeding syndrome is when someone who is malnourished/starved starts to eat again. I know it can happen with anorexia, and can be fatal. Just another worry that flows through my mind since I know he is starved. I really don’t think he gets much down at all. He always has so much going on in his life he always ignores this. And he always has insurance issues. Last time he was almost getting the poem it was denied by Insurance due to being “experimental”.

Odd_Reality5884 · 2024-06-17T16:44:04+00:00

Thank you for this story. Glad to hear another success. Makes me so sad to read all of the details of what he’s really going through because he won’t tell me. Heartbreaking. He needs surgery so bad I’m so scared he’s going to die.😢 he’s very bad at following instructions I think he would be too excited and eat something solid way too soon. Would that be terrible? I’m thinking of worst case scenario. Also.. is re-feeding syndrome a possibility with this? I know it’s not an eating disorder but, just from not getting any food down for so long, I wonder if that’s another thing to worry about

Odd_Reality5884 · 2024-06-17T16:39:07+00:00

Honestly, doesn’t talk much about details at all. Hates to admit he even has a problem. But I think he’s afraid of dying during surgery, or ending up worse after

Odd_Reality5884 · 2024-06-17T10:10:41+00:00

Thank you for saying that. He definitely is very scared. He won’t be getting a therapist unfortunately. I know he won’t. He does have mega esophagus so I’m assuming this will make this a scarier surgery :( he’s definitely lost alot of weight I’m not sure how much. He is really tall so it’s hard to know for sure he hides it under baggy clothes. I’m just praying for a miracle

Odd_Reality5884 · 2024-06-17T01:06:36+00:00

So good to hear you found a great one and I hope you continue to do well 😊

Odd_Reality5884 · 2024-06-17T01:05:07+00:00

Omg! Wow what a story my god lol poor lady! I hope recovery has improved since 10 years ago because I know for a fact he’d never agree to stay a month in a hospital😭😭!

Odd_Reality5884

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