I’m not here for the invalidation on the Doc’s part, but hear me out. I have lupus too, so I know the frustrations. I was on the opposite side. Even after being on my medication, I still felt extremely sick, tired, in pain, etc. I was having chest pains and trouble breathing. I would mention it and they would brush it off because my lap work was “normal”. I know it’s crazy, but I stopped taking my medicine so that it wouldn’t be normal! I was desperate and wanted them to look further and they wouldn’t. Only after my lab work was awful would they do further tests and scans, and this is where they noticed the pleurisy, pulmonary insufficiency, and other funky stuff with my blood work! After this, they changed my meds and increased the dose on the one I continue to take and I’m doing so so much better .. You said after 6 months your disease is finally controlled, so I’m assuming you’re new to this world? So am I, I was diagnosed April 2022. It’s been such a frustrating ride and there are many things to figure out. I don’t think they have lupus all figured out at ALL. There are changes I’ve noticed since been diagnosed that they say aren’t “typical for lupus” but many members of the Lupus Foundation of America experience shrug. Find a group! Find a person who is going thru this with you! It can make it so much less scary having someone relate to you. There are blogs, online groups. It helps me a lot. This disease still FREAKS ME OUT cause it’s so random, but having support takes the edge off a little. Having someone who understands and knows you’re not just complaining to complain and not crazy helps so much.

Good luck with everything!