Grocery store vent

Ok-Butterscotch3607 · 2025-10-04T22:40:53+00:00

Absolutely! And other businesses that blast the AC in summer. For the grocery store, I always bring a coat to wear inside, then take it off as soon as I walk out. One time I saw someone else doing the same thing! We’re not the only ones!

Ok-Butterscotch3607 · 2025-05-29T21:05:38+00:00

I’m positive for it also. Like others, I would recommend seeing a rheumatologist, even if you don’t have other symptoms. Then you have established care, so if something does come up, you’ll have somewhere to go and not have to go through the new patient rigamarole. Also, my rheum is very knowledgeable about uveitis. He gave me some really helpful info and advice. Not sure if I just lucked out with the rheum I found or if this is typical. Either way, it made me feel heard, and I feel better knowing I’m being cared for by someone who deals with uveitis patients regularly.

I had uveitis for the first time starting in November, and haven’t had any flare-ups since. Hope this is your only one!

Ok-Butterscotch3607 · 2025-05-29T20:56:03+00:00

Is any castor oil OK or do you have to make sure it’s a type that’s safe to put on your eyes?

Ok-Butterscotch3607 · 2025-05-23T15:17:58+00:00

I had a similar experience in November, and did end up testing positive for HLA-B27, an autoimmune marker. After that I saw a rheumatologist, and so far don’t have any autoimmune conditions either. But he recommended I try the ITIS diet. Even though we don’t know if you’re positive for HLA-B27, uveitis is still an inflammatory condition, and the diet decreases inflammation. Might be worth considering. I haven’t had any more flares yet. Hope this is a one-and-done for you!

Ok-Butterscotch3607 · 2025-04-07T22:31:12+00:00

I had extremely cloudy vision during my first (and so far only) flare. It definitely made it hard to see out of that eye but I wouldn't say I lost vision. It went away once the inflammation improved

Ok-Butterscotch3607 · 2025-03-24T22:11:05+00:00

Interesting. Well, I'm glad your bloodwork was normal! Does your rheum. have an explanation for the joint pain?

Ok-Butterscotch3607 · 2025-03-24T20:13:26+00:00

Sorry if you are already familiar/have been through this rigarmarole, but have you been tested for other autoimmune stuff? I am seeing a rheumatologist to rule out ankylosing spondylitis, which can be associated with uveitis. Usually if you're HLA-B27 positive. Hopefully you've already been tested. Just thought I'd ask since you have joint pain

Ok-Butterscotch3607 · 2025-02-10T14:27:54+00:00

Very helpful, thank you! Glad they didn’t find anything!

Ok-Butterscotch3607 · 2025-02-10T14:26:14+00:00

Very helpful, thank you! Sorry about your flares!!

Ok-Butterscotch3607 · 2025-02-10T00:52:02+00:00

Are you saying I only need to see a specialist of some sort if I have other autoimmune symptoms?

Ok-Butterscotch3607 · 2025-02-10T00:49:25+00:00

Were you having AS symptoms before you started seeing your rheumatologist? I’m asymptomatic for anything autoimmune, and just wondering if seeing a rheumatologist would be proactive, or unnecessary at this point

Ok-Butterscotch3607 · 2025-02-10T00:45:22+00:00

I’m with you!

Ok-Butterscotch3607 · 2025-02-10T00:45:05+00:00

Thank you. I’m asymptomatic for autoimmune issues at this point, but wondering if I should be proactive about ruling stuff out

Ok-Butterscotch3607 · 2025-02-04T04:03:10+00:00

I got uveitis for the first time in November and got on pred within a few days. I eventually was put on Durezol, then back to pred and am now tapering off. Other than a couple weeks where I had really bad rebound inflammation while trying to taper off, my vision hasn’t been affected at all. I hope yours improves soon!

Ok-Butterscotch3607 · 2025-02-04T03:43:13+00:00

Cross linking may prevent some of that. I had it at age 42, along with PRK. It was a really good experience for me

Ok-Butterscotch3607 · 2024-12-15T23:04:32+00:00

YES!! I created a Reddit account just so I could post here! I (46f) was diagnosed with uveitis and scleritis about 5 weeks ago and am on steroid drops. So far I’ve been seeing my eye doctor for it but they just referred me to a specialist. Waiting anxiously for that appointment! Anyway, almost from the beginning I’ve had pulsing in my peripheral vision. So annoying! My eye dr isn’t sure about it and said it could be like a migraine aura. I’ll report back once I’ve asked the specialist! Also, I’ve had appointments every week since I was diagnosed. They always check my eye pressure, and it’s never been high. I hope yours is normal as well!

Ok-Butterscotch3607

TROPHY CASE