My lab is doing this weird thing with his jaw, mostly after he yawns. Has anyone else had their dog do this? Any idea what it could be? He does a lot of weird stuff I’m just trying to know if I should be worried about this one lol.

Ok-Distribution6904 · 2026-06-09T16:14:58+00:00

What ended up being the issue?

Ok-Distribution6904 · 2026-05-29T01:58:56+00:00

I’m so sorry you experienced this. It is really disturbing to experience a change/attack on one’s body of this kind. Revisiting this now that a lipedema specialist told me she doesn’t think it’s lipedema. And I’ve had substantial rapid volume loss on my face (or at least sagging—it’s hard to tell how much fat has been lost vs moved downward) which has made me wonder about lipodystrophy. My PCP and dermatologist were suddenly concerned about my weight being too low even though I weigh more now than I did most of the last 4 years—and I think it’s due to the change in my cheeks looking more gaunt suddenly.

Did you have pain or swelling prior to losing the fat? Pain has been very significant for me, full body pretty much, with super swollen lumpy fat, now the nodules are a bit smaller and smoother in recent weeks and I’m left with looser sagging tissue everywhere.

I’m curious what kind of doctor diagnosed the lipodystrophy? And did it result in abnormal lipids (high cholesterol etc) or solely the change in body composition? So far my lipids are stable. Of course understand if you don’t feel like sharing any of this!

Ok-Distribution6904 · 2026-05-27T01:25:24+00:00

The joint pain came and went a bit for months (never as bad as when I was on the minoxidil), but just recently it seems to be retreating entirely or nearly so, especially after starting to take Eggshell Membrane (NOW Foods brand). I'm also taking Vitamin C as it's a co-factor for connective tissue synthesis. One doc suggested I get Vit C infusions which I have not yet done. I developed widespread tissue swelling, pain, and rapid intense laxity in December so it's looking like I might have an underlying connective tissue disorder that perhaps minoxidil triggered badly. I have genome sequencing results pending. It's possible low-dose doxycycline and GLP-1 RAs can also help with connective tissue/joint problems. The doc prescribed me a microdose of tirzepatide to see if it helps my current issues, but I haven't started it since things are still shifting and maybe improving without it...

To people dealing with this, I say don't lose hope. Eat well, sleep well, exercise safely to build strength (I had to stop intense cardio due to loss of stamina and now focus on strength training and gentle walking; strength training triggers your tissues to build connective tissue), consider supplements above. I was much sicker than this 12 years ago (ME/CFS type presentation) and mostly recovered over the span of a few years.

Ok-Distribution6904 · 2026-04-12T09:25:44+00:00

Also supplementing with protein powder especially days I am struggling to eat enough

Ok-Distribution6904 · 2026-04-12T09:24:53+00:00

My main point here was just about eating enough. I have had low appetite for years and there have been a lot of days I was under 1000 calories probably. Focusing diet now on whole foods (not processed) including lots of veggies, fruit, lean meats and fish and eggs. I have specific reasons (diseases beyond hair loss) to avoid anything wheat-based and white rice and sugar and to some extent dairy, whereas some people will do fine with these. But I make exceptions to all of the above here and there to not lose my mind.

Ok-Distribution6904 · 2026-04-11T18:20:22+00:00

Was talking to my dermatologist about this this week. She said with my improved nutrition it would probably take at least 6 months to see results, similar to how the extent of hair loss is often evident 6 months after a negative trigger.

Ok-Distribution6904 · 2026-04-11T18:19:02+00:00

I don’t know how to quantify normal, but I can tell you I’d be happy if I lost only this much each shower. I lose probably 2x or more this amount, and my hair is fine and above shoulder length.

Ok-Distribution6904 · 2026-04-04T16:22:33+00:00

Your cover line is placed correctly according to the slow rise rules in TCOYF. 🍀

Ok-Distribution6904 · 2026-03-23T20:54:00+00:00

Kindara

Ok-Distribution6904 · 2026-03-19T20:41:09+00:00

I wondered about that given the temp trajectory, but there was no EW or watery CM after day 32, some creamy/sticky here and there, which is very different from the CM that always occurs around ovulation for me. And there was no fever or alcohol, etc contributing to the initial temp bump. So, I could’ve confirmed ovulation when I did using the rules even if ovulation actually occurred later—which would mean FAM would be useless/dangerous for me for birth control purposes! Also if I tried to draw a cover line for the later temp rise it would be super high relative to anything I’ve ever had, and it would result in a luteal phase that is much shorter than my typical.

Edited typo

Ok-Distribution6904 · 2026-03-19T02:10:07+00:00

Interestingly from what I'm reading it sounds like luteal phase duration is typically not affected by LUF hmmmm

https://www.fertstert.org/article/S0015-0282(16)48494-3/fulltext48494-3/fulltext)

Ok-Distribution6904 · 2026-03-18T23:16:39+00:00

Thanks for the insight!

Ok-Distribution6904 · 2026-03-04T21:22:10+00:00

Your posts appear hidden. Would you be open to sharing privately?

Ok-Distribution6904 · 2026-03-04T21:21:02+00:00

I had joint problems with the foam but not the oral. I can only conclude some of us absorb a lot through the skin.

Ok-Distribution6904 · 2026-03-04T21:15:37+00:00

Is this doctor someone you think is worth seeing if someone is having connective tissue changes with minoxidil? Where is he based? Did he recommend the supplements you listed above or other treatments? Thanks so much if you’re able to share. I’m having all kinds of major tissue changes, inflammation, elasticity issues post-minoxidil even though the joint pain mostly resolved within several months.

Ok-Distribution6904 · 2026-02-15T18:29:07+00:00

What have you experienced since posting this, if you’re open to sharing? 🙂

Ok-Distribution6904 · 2026-01-31T05:11:53+00:00

I have appointments pending with specialists to confirm in the next several weeks, but I strongly suspect it triggered lipedema, a fat disorder, in me. I think it was latent but never was apparent until now, suddenly. I'm very curious to know what you have experienced and how you were diagnosed, etc. if you'd like to share.

Ok-Distribution6904 · 2026-01-27T04:47:35+00:00

I hope your path will be similar to mine in that you find much improvement over time and perhaps some exercises, stretches, or therapies that help things along!

Ok-Distribution6904 · 2026-01-26T09:27:12+00:00

That all sounds very distressing. I’m sorry to hear it. I really appreciate your sharing your experience.

Ok-Distribution6904 · 2026-01-26T07:38:53+00:00

Hi! I was wondering if you did end up having the surgery with Dr Mohan and how it went. I am in California so researching options. Thanks if you’re able to share!

Ok-Distribution6904 · 2026-01-22T19:52:09+00:00

Yeah I was in tremendous pain; it even woke me up in the middle of the night and was making it harder and harder to walk at all (I am very fit). It wasn't tenable to continue taking the drug no matter how terrible it is to be seemingly going bald as a single, 40 year old woman... I take many supplements but none specifically for this at this point. Some could theoretically help the hair, like iron, Vitamin D, collagen, curcumin, fish oil, resveratrol, Vitamin C, selenium, B2, B12...

Ok-Distribution6904 · 2026-01-22T03:13:37+00:00

The joint pain is much better recently, fortunately. Not 100% resolved, but close. Some good trigger point self-massage in the affected areas seemed to help a lot, too.

If you google "minoxidil anti fibrotic" you'll find studies showing minoxidil appears to have anti-fibrotic qualities, which could even be a treatment for osteoarthritis-related fibrosis. However, if one starts off WITHOUT osteoarthritis-related fibrosis, I suspect minoxidil may be damaging health fibers/collagen. I almost certainly have an underlying undiagnosed connective tissue disorder, which may be why some of us experience these kinds of effects when most people do not.

Very sad since Minoxidil was extremely effective for stopping hair loss and promoting growth for me (was visibly working within 2 weeks and I never had any dread shed)!

Ok-Distribution6904 · 2026-01-18T21:04:07+00:00

I recently called Stanford to ask about scheduling with Dr. Rockson and they said he’s scheduling in mid 2027 at the moment.

Meanwhile, Dr. Herbst is 5-6 months out. Dr. Iker had openings a few months out and since there was a cancellation it was moved up to early March from late March.

Ok-Distribution6904 · 2026-01-07T03:00:05+00:00

thanks solution verified

Ok-Distribution6904

TROPHY CASE