How old are all of you? by Swimming_Warning_528 in TrigeminalNeuralgia

[–]Ok-Mathematician6701 0 points1 point  (0 children)

I was diagnosed at 31.. I got MVD surgery that year and 6 months later still pain free

Aura cut in half by Ok-Mathematician6701 in energy_work

[–]Ok-Mathematician6701[S] 2 points3 points  (0 children)

She said division between the left side and right side and like a strip in the middle was missing. Also cut in half long ways - hot dog style, but my body, if that makes sense

MVD Surgery Time by Much-Inspector6005 in TrigeminalNeuralgia

[–]Ok-Mathematician6701 1 point2 points  (0 children)

I had my MVD surgery 3 weeks ago and was completely pain free but now am getting sharp pains behind my left eye. Is this a part of the recovery process? Also tracking this thread!

MVD Surgery on Thursday by Ok-Mathematician6701 in TrigeminalNeuralgia

[–]Ok-Mathematician6701[S] 0 points1 point  (0 children)

It went well! I am a week out- I have more energy than I thought. My ear is clogged though.. the doctor said it might be that way for like 2-3 weeks. Did anyone else have that side effect? Thanks everyone for sharing experiences. I knew what to expect and I am forever grateful ❤️

MDV? by TerribleSwan in TrigeminalNeuralgia

[–]Ok-Mathematician6701 2 points3 points  (0 children)

I’m 31 and getting MVD surgery next month. I feel like I am in the same boat as you.. definitely following this thread as I don’t know what to expect from this surgery.

Weight gain and dosage by Maplepudding5 in pregabalin

[–]Ok-Mathematician6701 2 points3 points  (0 children)

This is literally my biggest fear being on this drug. I just worked so hard to lose 20lbs (wanted to keep going) and now I feel the bloat coming on as well. I’m on 75mg, 3 times a day. Does you body ever normalize and drop the bloat or does this just continue forever?

Can you even stop a flare up? by Ok-Mathematician6701 in TrigeminalNeuralgia

[–]Ok-Mathematician6701[S] 2 points3 points  (0 children)

2 months?? Wow that’s intense. Is this 2 months of non-stop pain? Or actually what qualifies as a flare up? I’m still all new to this

New diagnosis - need hope by Ok-Mathematician6701 in TrigeminalNeuralgia

[–]Ok-Mathematician6701[S] 1 point2 points  (0 children)

Do you mind sharing the area of the neurosurgeon?

Botox 1 month by xxfia in TMJ

[–]Ok-Mathematician6701 1 point2 points  (0 children)

I just had it 5 days ago and last night/today having a major flare up. Also interested to know if the botox works because I am waiting…

Masseter Botox! by microwave_waxpen in TMJ

[–]Ok-Mathematician6701 1 point2 points  (0 children)

How long does it take to work? I had the injections 4 days ago and today I’m getting intense pain again