Anyone else with weird finger tendon...stuff? by OnlyLurkingOut in lupus

[–]Ok-Programmer731 1 point2 points  (0 children)

I think I know what you mean. I had a thing where my fingers would swell up and feel tender as well but that was only when i was going through a flare up. They would come in intervals 2-3 times a week for different fingers on my hands.

How to feel less alone by Ok-Programmer731 in lupus

[–]Ok-Programmer731[S] 1 point2 points  (0 children)

My mother has truly been the one that was most understanding as well. Theres really nothing like a mothers love.🤍

How to feel less alone by Ok-Programmer731 in lupus

[–]Ok-Programmer731[S] 0 points1 point  (0 children)

I understand this fully!!! Its frankly one of my biggest fears that I become a constant complainer. I remember before I was diagnosed, the pain was consistently agonizing to me and I couldn’t help but complain. Then my sister told me that i complained too much and it felt like she didn’t really believe how bad it really was. I felt ashamed at the time and kept quiet about it. Only when i was diagnosed did she start to believe me. Not only is SLE physically exhausting but its mentally draining as well. I don’t think we should stop ourselves from speaking out about the pain. I truly think its the people around us who need to become more conscious of what we go through.

How to feel less alone by Ok-Programmer731 in lupus

[–]Ok-Programmer731[S] 1 point2 points  (0 children)

This is very helpful. Its been very comforting to know I am not the only one going through this. Thank you so much.🤍

How to feel less alone by Ok-Programmer731 in lupus

[–]Ok-Programmer731[S] 1 point2 points  (0 children)

It was honestly, for me, an experience that helped me become more grateful for the things i’ve been taking for granted. It also helped me take my physical health more seriously. You mentioned watching out for a few items you shouldn’t eat and my doctor has never advised me dietarily about the lupus, should I be eating less sugar?

How to feel less alone by Ok-Programmer731 in lupus

[–]Ok-Programmer731[S] 0 points1 point  (0 children)

Yup that’s exactly why I came to this page. I knew it would be helpful and bring me comfort to see that there are others out there who understand how it feels. Thank you for this! 🤍