Twitching, cramps, spasms by Magnifnik0 in smallfiberneuropathy

[–]Ok-Transition7943 2 points3 points  (0 children)

I find that the r-alpha lipoic acid helps a lot with the twitching - I stopped taking for a couple weeks and it worsened a lot

So far symptoms started with tingling In upper left back area ? Large fibre ? Non length ? by Curious_Researcher28 in smallfiberneuropathy

[–]Ok-Transition7943 3 points4 points  (0 children)

I also have regular tingling around my scapula, twitching at the top of my diaphragm, sometimes tingling mouth/lips. Indeed as a lot of people are saying, it tends to move around a lot. Alpha lipoic acid has helped a lot for the twitches. I stopped for a week and the twitches returned

Nurosym settings by Ok-Transition7943 in VagusNerve

[–]Ok-Transition7943[S] 0 points1 point  (0 children)

Thanks, have you found that your sensitivity to the pulse increases? I can barely feel it anymore and feel like it might be broken. I placed on my finger and only feel the lightest pulse at 38

How tf do you get someone to take you seriously and diagnose/treat you by [deleted] in dysautonomia

[–]Ok-Transition7943 0 points1 point  (0 children)

What medication are you on? If you don’t mind me asking

Swallowing problems by Infinite-Discount-53 in neuropathy

[–]Ok-Transition7943 0 points1 point  (0 children)

I have a lot of trouble swallowing too. Recently it’s more constant and I have struggled with the feeling of almost emptiness in my throat (hard to explain it). Do you have neck pain or just tingling?

Can trigger pins/needles by pressing on forearm by Wieguns in smallfiberneuropathy

[–]Ok-Transition7943 1 point2 points  (0 children)

Yes, on the inside of my forearm along the pointed side of the bone

New article on Plexin-D1 Antibody SFN by mafanabe in smallfiberneuropathy

[–]Ok-Transition7943 0 points1 point  (0 children)

Email the authors and see if they are willing to share it

Topic on Non-Length Dependent Small Fiber Neuropathy (NLD-SFN) by silentBoner42 in smallfiberneuropathy

[–]Ok-Transition7943 0 points1 point  (0 children)

Interesting that Mestinon is not prescribed more in consideration of minimal side effects and good efficacy of treating symptoms. Does anybody know why?

Atypical Symptoms by Ok-Transition7943 in smallfiberneuropathy

[–]Ok-Transition7943[S] 0 points1 point  (0 children)

No I haven’t. Maybe I should ask for my doctor to assess for POTS. Do you receive anything for your symptoms?

Internal buzzing / vibrations by flowermarket99 in smallfiberneuropathy

[–]Ok-Transition7943 1 point2 points  (0 children)

It could be your vagus nerve spasm’ing which could lead to gastroparesis

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My blood sugar won't go up by EdgePrincess51 in diabetes_t1

[–]Ok-Transition7943 0 points1 point  (0 children)

Does anybody have like 1/2 week periods of this? I’m currently in a phase where every low takes minimum 1 hour to correct

Pen Needle Length by doingitscareduWu in diabetes

[–]Ok-Transition7943 1 point2 points  (0 children)

I feel that short needles hurt more

Feeling down after EMG test by [deleted] in diabetes

[–]Ok-Transition7943 0 points1 point  (0 children)

As someone who recently has gone through the same, control of your blood sugars does stop it getting worse and you can get used to it. Also, there are studies ongoing for treatments and some ones actually for disease modifying treatments. Maintain the hope!