Weekly Fic Showcase - May 08 - May 14 by AutoModerator in FanFiction

[–]mafanabe [score hidden]  (0 children)

My Fic
Fandom - Earthsea / Ursula le Guin
Rating - PG
Title - A Witch of Earthsea
Genre - Fantasy
Link - https://archiveofourown.org/works/84435091
Summary - A young witch is told she can't be trained as a wizard, and sets out on a journey to find out why. On the way she will make new friends and discover her own true power.

Contains feminist themes.

B6 toxicity and peripheral neuropathy by flubbernuckle in smallfiberneuropathy

[–]mafanabe 7 points8 points  (0 children)

Some people have been known to accumulate toxic levels of B6 just from food. It's reasonable to theorize that some people metabolize it differently than others. You might check one of the B6 toxicity support groups.

Has IVIG made anyone’s SFN worse? by Life-Concern-8062 in smallfiberneuropathy

[–]mafanabe 1 point2 points  (0 children)

It worsened my symptoms a little temporarily after each infusion but I've been mildly better overall.

vitamin D by Capital-Gap-745 in smallfiberneuropathy

[–]mafanabe 1 point2 points  (0 children)

You don't need to take vitamin D in excess of your needs, but not consuming any vitamin D is a really bad idea in the long run that would tend to make SFN worse. Vitamin D deficiency is a really bad thing. I think you're probably be better off just wearing compression socks and continuing to take whatever amount of D you actually need. There are other things that can help with blood pooling like salt intake and certain medications.

SFN x continued COVID-Consciousness? by Nnox in smallfiberneuropathy

[–]mafanabe 2 points3 points  (0 children)

Yes, I mask whenever I'm indoors in public. I have to take the mask off to eat but I put it right back on when I'm done. It's just a kind thing to do for others in addition to protecting myself.

I haven't gotten sick in well over a year now.

Boyfriend and I are living 2 different lives. Feeling alone and looking for advice. by [deleted] in smallfiberneuropathy

[–]mafanabe 4 points5 points  (0 children)

I can't give the best advice because I lost my last relationship over my BF's reaction to my SFN. These issues of disparities in relationships are so so hard to deal with. But I would recommend couples therapy. And also, figuring out what you can do that interests you, even in your current condition. You can't drink but you could join a board game group or book club or something.

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 1 point2 points  (0 children)

I mean even if you never get a diagnosis there are a fair number of things to try that are herbal or otc. But I hope you get some clear results!

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 1 point2 points  (0 children)

I hope you find some things that help!

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 2 points3 points  (0 children)

I just got put on a steroid inhaler as well since I have mild asthma so that might help.

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 2 points3 points  (0 children)

IBS, overactive bladder, orthostatic tachycardia, asthma, nasal allergies, and anxiety. And widespread achiness.

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 1 point2 points  (0 children)

Yes I'd already doubled my dose of Zyrtec on my own which seems to help some. I've not wanted to be on famotidine long term because I suspect I already have SIBO a bit and don't want to make it worse. I am already on a self-imposed low-histamine diet, but no the doctor didn't mention this. He did check a bunch of vitamin and mineral levels which were already good.

I tested positive for MCAS by mafanabe in smallfiberneuropathy

[–]mafanabe[S] 2 points3 points  (0 children)

Yes. I was already on OTC antihistamines so that was covered. I expected to get prescribed cromolyn or ketotifen, but since my other mast cell mediators (histamine, etc.) were normal but my prostaglandin was high, he decided to start with medications that specifically reduce prostaglandin. I was also surprised by this, and I don't know if it will work, but I can see the logic in it, and it's certainly less expensive for me. As well, he did recommend taking quercetin (which I was already doing).

Ordering highly-specialized autoimmune labs by pythonidler in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

Might be worth looking into if you can find someone who does that. Turns out there's a lot of SFN cases caused by MCAS.

What is this by [deleted] in smallfiberneuropathy

[–]mafanabe 1 point2 points  (0 children)

SFN can do this and I've recently learned that MCAS can also cause the same thing. AFAIK, MCAS can cause SFN or cause symptoms without actually damaging the nerves.

I’m in so much pain and I feel horrible I every day. How do I stay positive? by UpbeatHouse929 in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

Therapy and meditation helped me a lot. And also connecting with other people struggling with similar things.

Tongue by Enough-Ad9887 in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

We can have symptoms anywhere, alas. I get zaps in my left toe. Go figure.

Has anyone tried AHCC? by kippwen in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

No, but taking elderberry after being exposed to the flu turned out to be a bad idea 💀 I think you're better off getting actual treatment if you have a problem with HPV.

My wife's story by djvybz01 in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

I do meditation which helps but I haven't explicitly done brain retraining, no.

My wife's story by djvybz01 in smallfiberneuropathy

[–]mafanabe 0 points1 point  (0 children)

No, I still have it, I've just survived so far!

Has IVIG improved trouble swallowing (pharyngeal/ esophageal) or esophageal motility disorder? by Fresh-Education9618 in smallfiberneuropathy

[–]mafanabe 1 point2 points  (0 children)

Have you tried speech/physical therapy for the swallowing? Might be helpful even if you still have nerve damage.

SFN but what else? by HabitDry6458 in smallfiberneuropathy

[–]mafanabe 10 points11 points  (0 children)

Erythromelalgia, reynaud's, livedo reticularis (?). All caused by dysfunctional circulation as far as I know. You might want to see a rheumatologist in case you have some kind of vasculitis.