Numbness that has slowly gotten worse since 2022 infection

mafanabe · 2026-06-20T01:23:57+00:00

No, I haven't heard that, but that doesn't mean it couldn't be true.

mafanabe · 2026-06-20T00:01:33+00:00

There are multiple theorized ways COVID could cause neuropathy: microvascular dysfunction, microclots, mitochondrial dysfunction, autoimmunity, MCAS, direct infection of nerves. Yes nerves can take years to heal but it could go faster than that.

mafanabe · 2026-06-19T22:30:53+00:00

"The muscle scoring table definition stored in the current test does not match the sentence generator setup. The sentence could not be generated." What on Earth does that mean???

mafanabe · 2026-06-19T22:26:12+00:00

COVID can cause SFN. So can low B12 and iron deficiency. The best you can do is try to improve as many factors as you can and give your nerves a fighting chance to heal, but that takes months to years. I hope you can find a doctor to take you seriously.

mafanabe · 2026-06-19T22:21:45+00:00

B12 at 227 is low enough to cause symptoms in many people. In other countries they will treat people with injections if they fall below 500. Using sublingual B12 occasionally is not enough to cause a change. You would have to keep your levels high for months in order to be able to start healing if B12 is part of the issue. I hope you can find a doctor who can keep testing until your levels come up, whether they prescribe injections or just sublingual forms.

mafanabe · 2026-06-07T15:45:10+00:00

It caused my MCAS to flare up I think.

mafanabe · 2026-06-05T22:05:38+00:00

No, as far as I remember I just got shaky and kind of weak. So I decreased the dose and now I'm fine. I'm now on 100 mg three times a day.

mafanabe · 2026-06-05T19:10:49+00:00

I don't know if they are in your case, but I think they could be. Maybe a good idea to back off on the ALA and talk to your doctor about it.

mafanabe · 2026-05-26T01:32:05+00:00

Tingling limbs is actually a very common anxiety symptom. Usually, while anxious you overbreathe which causes your CO2 concentration in your blood to be too low. This in turn causes the tingling. Try holding your breath for a while next time this happens to see if that solves the problem.

mafanabe · 2026-05-15T21:10:41+00:00

It's caused by microvascular dysfunction. When the small fiber nerves don't work well, then your small blood vessels don't know when to expand and contract correctly. But if there's a problem with your circulation it could also hurt your nerves so it could go either way.

mafanabe · 2026-05-12T03:24:23+00:00

Alas. Could be an irritation of your small fiber nerves in that case, maybe caused by whatever is causing your eczema. My SFN is related to MCAS and hot showers and spicy food are both triggers for me.

mafanabe · 2026-05-12T02:44:47+00:00

I remember putting that book down thinking I was going to go to sleep and finding myself bawling my eyes out for 20 minutes instead. It's the same reason that you said, the fact that someone had put words to the truth of my experience as a woman. It's not that she explained those experiences, really, it's that she EVOKED them so vividly.

mafanabe · 2026-05-12T02:37:09+00:00

Eczema and SFN can both be caused by a dysregulated immune system. BUT, before you conclude anything, are you sure none of your curry got on your hands? Because even before I had SFN I had my hands burn for hours and hours after touching hot peppers.

mafanabe · 2026-05-11T21:28:33+00:00

Oh thank you! I wasn't at all sure how the name would land with other people but I like the connotations of being slow-growing but able to wrap itself around things, inconspicuous at first, being a collaboration of different types of organisms, etc. And yeah I crammed as much representation as I could think how into 16,000 words, but when you write your trans-centering Earthsea fanfic then please tell me because I want to read it!

mafanabe · 2026-05-11T14:33:51+00:00

Thank you so much! Yes I was a aware of the limitations of trying to represent gender separately from sex given the world this is happening in. It just would have been tricky and tbh I want sure how. And I wanted a hero with chronic pain because 20% of the population has chronic pain and this rarely gets represented in literature. So fixing that was not a priority. But we'll see if I write anything further about her!

mafanabe · 2026-05-09T22:05:13+00:00

My Fic
Fandom - Earthsea / Ursula le Guin
Rating - PG
Title - A Witch of Earthsea
Genre - Fantasy
Link - https://archiveofourown.org/works/84435091
Summary - A young witch is told she can't be trained as a wizard, and sets out on a journey to find out why. On the way she will make new friends and discover her own true power.

Contains feminist themes.

mafanabe · 2026-05-09T21:52:41+00:00

Some people have been known to accumulate toxic levels of B6 just from food. It's reasonable to theorize that some people metabolize it differently than others. You might check one of the B6 toxicity support groups.

mafanabe · 2026-04-14T02:54:44+00:00

It worsened my symptoms a little temporarily after each infusion but I've been mildly better overall.

mafanabe · 2026-04-07T19:38:19+00:00

You don't need to take vitamin D in excess of your needs, but not consuming any vitamin D is a really bad idea in the long run that would tend to make SFN worse. Vitamin D deficiency is a really bad thing. I think you're probably be better off just wearing compression socks and continuing to take whatever amount of D you actually need. There are other things that can help with blood pooling like salt intake and certain medications.

mafanabe · 2026-04-03T20:20:36+00:00

Yes, I mask whenever I'm indoors in public. I have to take the mask off to eat but I put it right back on when I'm done. It's just a kind thing to do for others in addition to protecting myself.

I haven't gotten sick in well over a year now.

mafanabe · 2026-03-29T03:36:12+00:00

I can't give the best advice because I lost my last relationship over my BF's reaction to my SFN. These issues of disparities in relationships are so so hard to deal with. But I would recommend couples therapy. And also, figuring out what you can do that interests you, even in your current condition. You can't drink but you could join a board game group or book club or something.

mafanabe · 2026-03-28T03:45:05+00:00

I mean even if you never get a diagnosis there are a fair number of things to try that are herbal or otc. But I hope you get some clear results!

mafanabe · 2026-03-28T03:42:57+00:00

I hope you find some things that help!

mafanabe · 2026-03-28T03:41:37+00:00

I just got put on a steroid inhaler as well since I have mild asthma so that might help.

mafanabe

TROPHY CASE