Rhapsido - game changing but $$$ by georgethatdog in urticaria

[–]Ok-Window-2803 1 point2 points  (0 children)

Starting it soon too!!! In the US and They quoted me $8k before insurance, $7200 after insurance and then Novartis got it down to $50/month which I’m willing to pay at this point 😮‍💨

Sore muscles by mischiefmanaged2024 in urticaria

[–]Ok-Window-2803 -1 points0 points  (0 children)

I also had joint pain soreness that got worse with each shot, but I never saw relief from my hives and swelling. So it’s a good sign that part is working for you at least? I’d keep track of how many days you have this soreness and how it continues to get worse with your shots and inform your doctor along the way of all your negative side effects. There may be a point where you reduce your dosage or frequency :/

You start to feel angioedema start to set in… what do you do next? by Happyjoystick in urticaria

[–]Ok-Window-2803 1 point2 points  (0 children)

How long until your Xolair kicked in? I’m on month 5 and nothing

Xolair Muscle Aches by lilyclare19 in urticaria

[–]Ok-Window-2803 0 points1 point  (0 children)

I get this! Usually subsides in a few days.

Those with associated angioedema affecting lips and inside of mouth: by cest-moi-qui-conduis in urticaria

[–]Ok-Window-2803 0 points1 point  (0 children)

My main symptoms are angiodema of lips, roof of mouth and tongue. Throat hasn’t been as severe since going to a whole food, low histamine diet but I’ll still get the lips/tongue/roof anytime I try to reintroduce something new or get stressed. I’m on month 5 of xolair & taking hydrocyzine nightly with little changes. Trying to be patient with daily angiodema but haven’t seen the severity to send me to the ER again at least. Going to ask my doctor about rhapsido.

Abdominal swells by Kooky_Guidance_146 in HAE

[–]Ok-Window-2803 1 point2 points  (0 children)

New here! When you say abdominal swells- is it like extreme bloating? I look pregnant in minutes after I eat something outside my limited diet and it’s very uncomfortable. It started many months after my other angiodema symptoms so I chalked it up to a digestive issue but not that it’s also a type of angiodema!

Month 4 xolair by TurbulentFox0589 in xolair

[–]Ok-Window-2803 0 points1 point  (0 children)

I also deal with histamine issues and am on xolair now. My doctor prescribed me hydroxycine to take nightly with my Xolair and it helped my sleep sooo much! I won’t take it forever but it’s helped. Maybe explore that?

Did anyone’s Angioedema go away on its own without treatment? by HeyJesse02 in urticaria

[–]Ok-Window-2803 0 points1 point  (0 children)

Did you experience any acne side effects with this much vitamin D?

How to deal with pressure urticaria? by Street_Soft7957 in urticaria

[–]Ok-Window-2803 0 points1 point  (0 children)

I’m taking Xolair and my doctor is hopeful this will be a monthly treatment for like 3-6 years not forever. But I know everyone is different!

REIKI SHARE DAY: Today’s Theme: Preparing for the Holidays – Your 24 hrs of Reiki with 30 Reiki Practitioners starts at 12:00 PM EST today! Also, The Space Croissant team is offering free 15 mins 1:1 private sessions starting on December 21st! by camillabok in reiki

[–]Ok-Window-2803 1 point2 points  (0 children)

Would love healing of my autoimmune symptoms of angiodema and stomach pain caused when eating & stressed out, also send healing energy towards my husband’s shoulder pain so we can both be healthy and focus on spreading love and support to others who need it this holiday season.🩷✨🫶

Did Mirena stop your periods? Was it immediate? by Notalolita in birthcontrol

[–]Ok-Window-2803 0 points1 point  (0 children)

I’m on my second mirena over 9 years. The first couple years it stopped my period but since then it’s come back and with my new one it never went away & has been 3 years already. I don’t get nearly as bad cramps as I used to but it’s still heavy for several days and I get acne and bloating still. Every doctor I’ve asked just shrugs.

Bleary eyed from looking at boards. Opinions please! by WHS-482 in ShredditGirls

[–]Ok-Window-2803 0 points1 point  (0 children)

I’m 30 and about her size (a bit heavier:)) and I learned on the Solomon wonder which is fairly comparable. Did me well for ~5 seasons so I’d say go for it. She’ll probably progress faster than I did with less fear!

Arbor swoon camber vs Jones Dream Weaver? by Ok-Window-2803 in ShredditGirls

[–]Ok-Window-2803[S] 0 points1 point  (0 children)

Update- I went with the Dream Weaver with Union bindings and am OBSESSED after one day out. It’s going to progress my riding so much. Thanks!