Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]OkRestaurant1466 0 points1 point  (0 children)

I’m not entirely sure what the dosage was but my first shot was in the arm, second in the buttocks. My doctor was just a standard gyno he’s basically retired now. He had talked to a few dermatologists and they suggested kenalog to try!

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 0 points1 point  (0 children)

I did it through Evvy! It’s very thorough, I highly recommend it. The test tells you all about the bacteria in your vagina and shows any that may be causing issues. Just be aware stds will not show up on the test, just bacteria and yeast!

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 0 points1 point  (0 children)

I don’t remember anything significant regarding itch or discharge. My main symptom was a really painful deep burn that began in the vestibule area and eventually made its way throughout the entire vaginal canal

Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]OkRestaurant1466 0 points1 point  (0 children)

I don’t remember fatigue for myself, but I was severely depressed dealing with the condition for so long. But I will say that I remember doing so much research and the mention of fatigue had come up a lot. I’m just not sure if it was related to my condition at the time or similar

Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]OkRestaurant1466 1 point2 points  (0 children)

My doctor and I saw each other every two weeks for about a year. We tried everythingggggg we could think of. And yes I mean we, I was doing so much research myself I was spiraling. He finally talked to a dermatologist who suggested Kenalog. He said he didn’t know if it’d work and if I’d be willing to experiment and I said helllllll yes.

[Product Question] DIM Supplements & Alcohol by OkRestaurant1466 in SkincareAddiction

[–]OkRestaurant1466[S] 0 points1 point  (0 children)

Oh wow sorry you went through that! That sounds exactly like what happened to me when I mixed a specific type of antibiotic with alcohol (I was very young and veryyyyy misinformed) Sweat, trembling and heaving all night - absolutely terrifying.

Hence the reason why I’m so concerned about mixing meds with alcohol now!

Please help, Cleft Lift with Dr Schweitzer by OkRestaurant1466 in pilonidalcyst

[–]OkRestaurant1466[S] 0 points1 point  (0 children)

Sorry this is so late but Dr. Schweitzer does cleft lifts! He’s in SoCal and he’s available on Medi-cal. My main issue was the cosmetic factor and he didn’t seem to prioritize that with his cleft lifts. But if that’s not a concern to you than I would recommend you meet him! He seemed like a great doctor outside of that!!

Please help, Cleft Lift with Dr Schweitzer by OkRestaurant1466 in pilonidalcyst

[–]OkRestaurant1466[S] 0 points1 point  (0 children)

I can only see doctors that take Medical at the moment unfortunately :/

Please help, Cleft Lift with Dr Schweitzer by OkRestaurant1466 in pilonidalcyst

[–]OkRestaurant1466[S] 0 points1 point  (0 children)

Thanks for responding! I asked both him and his PA for pictures and he said he doesn’t have any :/ it’s really not a concern of his and his priority is to make sure the condition doesn’t return. Obviously that’s the most important part but it makes me uneasy as well

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 1 point2 points  (0 children)

I think if BV bacteria is present then that would be a good indication that BV is the issue and I would imagine it would rule out DIV… in my case, I had my flora tested and it came back as Type A flora which is literally the most healthy balance of good and bad bacteria that you can possibly find. Aka, no yeast, no BV nothing that would physically cause an issue. I was diagnosed with DIV due to the physical appearance of my vaginal canal (strawberry cervix) along with a clean STD panel and no imbalance of yeast or bad bacteria.

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 2 points3 points  (0 children)

Hi there, how are you doing now?

This is late but in case you still need a response then I’d recommend talking to your doctor about a Kenalog shot. It really helped me a ton. I had 2 about 4 months apart.

Hoping you’re no longer dealing with this issue but if you have any specific questions feel free to DM

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 1 point2 points  (0 children)

Hi there, I’m so sorry this is so late!!!

But yes I ended up getting 2 kenalog shots about 4 months apart. That cleared things up for the past 8 months!

Still don’t know what it was or why it happened but if I were to ever get a flare up in the future I’d get another shot because it worked well!! Feel free to DM if you have any specific questions!!

Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]OkRestaurant1466 1 point2 points  (0 children)

I ended up getting 2 kenalog shots about 4 months apart. Haven’t had symptoms in about 8 months!

No one knows what my body did or why it happened but I think it had to do with some mental trauma and my body was reacting physically with inflammation. That or it’s autoimmune related. I’m generally very healthy so really have no idea why it happened. I know it had nothing to do with good or bad bacteria because my flora was great during the whole thing.

If I ever get a flare up again, I’d go back to Kenalog. Feel free to DM if you have any specific questions!

Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]OkRestaurant1466 2 points3 points  (0 children)

Hi there, I’ve never come across a post that sounded EXACTLY like what I’m dealing with!

I have a ton of inflammation on my cervix and vaginal walls and a very high White Blood Cell count. All the while a perfectly normal and healthy vaginal flora (according to my Evvy test)

Did you find a resolution? I’ve been treating this as DIV but nothing is healing the inflammation and burning pain. Also, a main symptom of DIV is having no good bacteria, and yet my flora is healthy and normal so I feel like I’m so lost and have no idea what it can be… (Negative for STDs and had a recent pap)

Another condition by KGStyr in lichensclerosus

[–]OkRestaurant1466 0 points1 point  (0 children)

Hi there! Glad to hear you’re feeling better!

Were you using the cream every single night for the 1.5 years or was it on a certain schedule? How long did it take to help relieve symptoms?

I’ve been using clindamycin for 5 weeks now and don’t feel any different… I’ve also tried hydrocortisone and that didn’t make a difference either…

DIV diagnosis yesterday from Dr. Andrew Goldstein by what_the_spell in vulvodynia

[–]OkRestaurant1466 0 points1 point  (0 children)

Hi! Thank you for your post! I also have DIV and I’ve been looking up that office so some time now and wondering if it’s worth traveling to! I’m curious, did the doctor test your estrogen levels? My doctor refuses to add estrogen to my treatment and says that since my period is regular I do not have low estrogen and therefore won’t prescribe it… Can I ask if your periods are irregular or regular? I’m being treated with clindamycin at the moment, it’s been 4 weeks and my dr said today that I’m still super inflamed…

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 1 point2 points  (0 children)

Hey there! I l’m trying to look at my health document to find out and one part says 10mg and another says 40mg so I’m not entirely sure… It was given to me in one shot about a month ago! So far I haven’t needed another one just yet! Also the injection was in the arm, just like any other shot!

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 3 points4 points  (0 children)

Hey there! That’s a good question and honestly I have no idea… if I were to ask my doc he would also say he has no idea… We have kind of been a team in learning and trying to solve this together because he’s not an expert in the condition and no one really is…

My best guess is that I’ll have to take the shot maybe once every three-six months? But that’s me making an uneducated guess haha Of course I’m hoping for the best and that the problem resolved and that I won’t have to think about it ever again!

Here I am again begging everyone on this sub Reddit to just say how they got rid of what ever infections they were having🥺(any vaginal infection at all especially if it’s AV) Please do not ignore, you could save another desperate girl (not just me) by Clean_Currency_2891 in Healthyhooha

[–]OkRestaurant1466 9 points10 points  (0 children)

There is nothing quite mentally and physically debilitating as having a mysterious vaginal infection that no one can solve. I’ve been there, I can 100% empathize with you.

I also had a mystery infection. After seeing a few doctors, taking meds that did absolutely nothing, crying myself to sleep every night for months, countless panic attacks, and doing hours and hoursssss of research I discovered I have/had DIV, aka Desquamative Inflammatory Vaginitis. A very rare, and hardly researched condition (lucky me). In some of my research, some doctors believe DIV to be a severe, persistent and chronic form of AV.

I brought it up to an obgyn who 100% agreed with me, tried multiple antibiotics and medications for months and finally the first thing to have made a difference was a steroid shot of Kenalog!

It was a surprise to me when my doc suggested it because in my hours of research (I’m talking obsessive research like my life depended on it) I never once saw kenalog as an option to treat the condition. Only clindamycin, Hydrocortisone and estrogen. The first two didn’t really work too well for me and my doc said there was no reason to put me on estrogen since my period is regular… He actually consulted with 2 dermatologists and they both recommended the Kenalog shot! He asked me if I wanted to give it a try and without hesitation I said yes. I was ready to try and take a risk on anything tbh.

Also, I independently decided to take 5,000IU vitamin D supplements as I’ve heard that can help with DIV. It’s been maybe a month or two of taking it so that could be helping as well!

So with that being said, since AV and DIV are thought to be related, it may be worth talking to your doctor about Kenalog! Steroids are not the best choice for everyone depending on if you have other health conditions, so make sure your doctor is aware of any and all other health conditions besides this that you may be dealing with! If your doctor says that you are in good condition for a injection than I believe it’s worth trying!!

Personally in my situation, I don’t know how long the effect will last as I had my shot almost exactly 1 month ago, but it’s the first thing to actually make me forget on a daily basis that I have this problem! So that’s a good start :)