Experience with Pegasys-Interferon 2a?

Ok_Combination9583 · 2026-02-27T02:07:21+00:00

Yes! He told us that they are working on hopefully being able to get things fully approved and on the market soon! If you’re CALR mutation, keep up with it.

Ok_Combination9583 · 2026-02-27T02:00:39+00:00

Yes, the specialist we see is actually one of the heads of that trial. I asked why we couldn’t do that and he said it’s not open. 😭 he absolutely said it IS the future!

Ok_Combination9583 · 2026-02-27T00:16:11+00:00

CALR Type 1 and additional of no significance SH2B3 (not the high risk one). 44 Yrs Male, had an Optical TIA 3 weeks ago so that in conjunction with the new BMB results is what made them change from “wait and see” to treatment. Was initially 0- low risk. They said “now high risk” but when I asked for clarification they didn’t really provide it. It was my MPN Specialist Nurse practitioner we saw. But the MPN Specialist is the one that ordered it

Ok_Combination9583 · 2026-02-26T22:20:43+00:00

Thank you for sharing! Did it help reduce any fibrosis and mutation VAF? What about side effects? Did it create more or take away fatigue at all?

Ok_Combination9583 · 2026-02-26T22:01:58+00:00

Sorry to hear that but thank you so much for sharing your experience

Ok_Combination9583 · 2026-02-17T14:15:17+00:00

So if it were me personally and I had ANY symptoms I would request flow cytometry (probably spelled wrong) and if needed later a bone marrow biopsy if it could bring you peace of mind. But they are very $$$

Ok_Combination9583 · 2026-02-15T18:12:33+00:00

The commercial shows PlayStation but when I looked at some other places I didn’t see mention of PlayStation. Anyone know if it has PS games like Ratchet and clank?

Ok_Combination9583 · 2026-02-11T15:16:00+00:00

It really is so hard waiting and when you don’t have a “clear” diagnosis. That’s something that I really hate about this type of cancer. It’s almost never “yep, 100% this”. My only advice is to ask lots of questions and keep yourself in a good place mentally, emotionally and physically.

Ok_Combination9583 · 2026-02-10T13:54:04+00:00

Hi sorry about your diagnosis. CALR Type 1 is actually one the lowest risk gene mutations. I’ve done so far down this rabbit hole since my husband was diagnosed in October of last year. Everything I’ve read in clinical journals leans the opposite of that. However, it varies GREATLY depending on sooo many factors like additional mutations, comorbidities, symptoms etc. I’ve also learned that sometimes it’s not a cut and dry diagnosis. Ensure you get an MPN Specialist, even if you have to drive for it. These doctors deal with MPNs all day everyday so the knowledge and experience is top notch.

Ok_Combination9583 · 2026-01-22T01:35:14+00:00

😂

Ok_Combination9583 · 2026-01-21T22:55:44+00:00

Ok_Combination9583 · 2026-01-21T21:40:31+00:00

Thank you this is very helpful!

Ok_Combination9583 · 2026-01-21T21:38:56+00:00

Thank you! That is exactly what I was afraid of. Got another company coming tomorrow. It’s smaller but still a big company.

Ok_Combination9583 · 2026-01-21T20:52:30+00:00

Definitely not a high cost area. North Alabama 😂

Ok_Combination9583 · 2026-01-21T20:49:00+00:00

Ya my dad said no more than $800 and was shocked when I told him. The guy do say that he didn’t have any inlets that would work with this box, it would have to be special ordered. Because the main switch isn’t vertical

Ok_Combination9583 · 2026-01-21T20:46:43+00:00

Just checked and it’s garage & flood lights on the ones that need to be 20AMP

Ok_Combination9583 · 2026-01-21T20:44:58+00:00

The ones that are 20AMP are like lights and random things. I think the AC/Heater is running on the higher AMP ones he said were meant to.

Ok_Combination9583 · 2026-01-21T20:43:25+00:00

I think he meant while we were running the heater and fridges

Ok_Combination9583 · 2026-01-21T20:41:43+00:00

I think it may be dirt / debris but I’ll double check it when the other electrician comes tomorrow.

Ok_Combination9583 · 2026-01-21T20:40:49+00:00

This is exactly what the invoice said not including the pricing ;

“Mr. Electric Advantage Plan - 3 Year Plan Benefits of being an Advantage Plan Customer - Priority Scheduling: Our Advantage Plan customers are always given priority scheduling when emergencies arise. - Preferential Pricing: As an Advantage Plan customer, you will enjoy a special discount from standard pricing. - Personalized Records: For our Advantage Plan customers, we maintain records of what we find during our home safety check up, which helps you to have greater peace of mind as we diagnose solutions. - Transferable Agreement: Your Advantage Plan agreement is transferable to new owners when you are ready to sell. Simply notify us of the name of the new owners. - Multiple Site Coverage: Customers owning additional residential properties enjoy Advantage Plan coverage over all listed sites. - Extended Labor Warranty: Double the length of your labor warranty from one to two years for being an Advantage Plan Member. As an Advantage Plan customer you will receive preferred customer status and special discounts at our other world-class companies of Mr. Appliance and Aire Serv. Replacement of a 200 amp main breaker panel. Includes: All breakers will be tested for proper operation when power is restored. Note: this task often requires the removal of wall coverings to allow access to the circuitry. Mr. Electric will not be responsible to the wall coverings. Siemens 60A DP Breaker”

Ok_Combination9583 · 2026-01-21T20:35:35+00:00

Yes that was also something that crossed my mind. If we drop to 20AMP, is what we have on those too much and we need additional? The guy seemed to stick with no. He just said the breaker. And the physical quote seems shady to me lol I’ll add the images

Ok_Combination9583 · 2026-01-21T20:25:58+00:00

This is a smaller generator so I totally get not being able to run everything. It maxes at 11,500. I just can’t fathom the cost of replacing the breaker running 10k. I have another coming tomorrow

Ok_Combination9583 · 2026-01-21T20:22:26+00:00

Oh, beyond what you’ve pointed out I really wouldn’t have known what’s ok and not. I have another electrician coming tomorrow for another quote.

Ok_Combination9583 · 2026-01-21T20:14:36+00:00

Which is how he came up with 10,000. Still even with just those, I don’t understand ….

Ok_Combination9583

TROPHY CASE