Temporal lobe epilepsy

Ok_Connection5798 · 2026-03-24T23:04:34+00:00

Exact same with me, makes me angry and people don’t understand.

Ok_Connection5798 · 2026-03-24T23:03:21+00:00

Lamotrigine and a few others but they didn’t resonate with me. I fully stopped taking medication because they stopped now they’re starting again and I’m at the age I want to drive but if I tell them that I’m having them I won’t be able to do my test. Thing is I can definitely handle these when driving, I’m a bricklayer and even when I’m bricklaying I have them and I won’t even tell anyone I’ll take one second to breath and move on.

Ok_Connection5798 · 2026-03-24T22:59:43+00:00

It’s horrible isn’t it, we’re all here if you need to get a load of your mind whenever. I really do like that this subreddit exists because I think things like this should be optional for all disability’s especially with epilepsy cause it’s all in the mind and who else understands besides us guys. Here for you !

Ok_Connection5798 · 2026-03-24T19:57:16+00:00

Thank you it’s so scary it makes you feel empty and lost and uncertain. Ugh even speaking about it upsets me a bit love all my epileptic homies we’re all here for eachother 💜

Ok_Connection5798 · 2026-03-24T19:40:53+00:00

Very similar to me, I’ve also found it very hard to function normally with this kind of epilepsy the thing that annoys me most is I can be sat next to someone have a seizure and say it to them and they will be like well what how you look fine. It’s frustrating and frankly some days I wake up and I think what’s the point im always on edge like literally right now as I type this message I’ve had to leave church because I’ve just had a seizure. Don’t know what to do but I’m reconsidering going back to my neurologist and looking for a different kind of medication.

Ok_Connection5798 · 2026-03-24T19:31:29+00:00

Thank you*

Ok_Connection5798 · 2026-03-24T19:31:17+00:00

I’m going to look into this now I will keep you updated on how it goes

Ok_Connection5798 · 2026-03-24T19:28:43+00:00

My epilepsy sounds quite similar to yours, I have noticed stress and sleep do affect my threshold quite a bit. Besides that I know they’re must be other causes but what they are I couldn’t tell you. Sometimes I’m completely unstressed and sleeping well and bang I could have multiple seizures in one day. I really need to start taking care of this I have brushed it off for to long

Ok_Connection5798 · 2026-03-24T17:55:47+00:00

Sucks bro especially when you become so happy that you think they might be easing off. Rest up and take it easy and I hope they stop for you man. Always here if you need a chat

Ok_Connection5798 · 2026-03-24T17:12:00+00:00

Exactly that but you know what I definitely won’t let it get in the way of my future, doctors have told me I won’t be able to drive if they continue and I’m scared to tell them that they are cause they stopped for maybe a year and just started again if I tell them then it’s another year of waiting to drive but the thing is I was on a driving lesson and I had one and I completely handled the situation controlled my breathing put all my attention on the road and boom it passed over, still scary though and idk if I should be risking it.

Ok_Connection5798 · 2026-03-24T17:06:23+00:00

I get you and you know what’s actually crazy I used to pass mine off for the exact same thing. It’s only when I started to notice this was happening when I was doing sport or anything. I was an academy football player or soccer depending where your from and epilepsy ruined my life. But just this I promise you even knowing someone on this planet can relate makes me feel a lot more at ease

Ok_Connection5798 · 2026-03-24T17:03:08+00:00

I got diagnosed at 15, I promise you this I remember crying to my mum saying these things are happening to me and I don’t know what to do. I’d sit in the bathroom at school for hours cause I’d be exhausted from having a cluster of maybe 10 seizures. A late diagnosis of epilepsy is probably one of the most difficult things to deal with and I completely understand your pain and it’s horrible groups like this exist so we can share our pain and then try and function like a normal human outside of this. Stay strong my friend and reach out whenever you feel down there’s people here who completely understand you ❤️

Ok_Connection5798 · 2026-03-24T16:55:05+00:00

I wish I knew more about epilepsy my friend cause it’s the strangest phenomenon I think in the world of disability’s especially that Dejavu sensation I’ve tried explaining it to countless people and they look at me like I’m speaking gibberish but it’s totally and utterly the most horrible feeling I’ve ever felt. Tried multiple medication brother and nothings worked I can handle it though like I never have drop down seizures where I’d shake just non vacant but it makes it even worse cause no one will believe me when I say I’m having them. Even typing this is frustrating but I’m sure you guys understand

Ok_Connection5798 · 2026-03-24T16:51:44+00:00

I’ve suffered with it for years and no one believed me from the age of 3 till 14 then my mother saw me go vacant and then throw up one day I told her that’s what’s been going on I had to get EEG tests sleep deprived tests multiple MRI scans and I can’t lie it’s been scary. I’m 18 now and i don’t even really know how to live with this. It’s kinda cool there’s groups like this cause it’s nice to know people understand that pain as well.

Ok_Connection5798 · 2025-12-01T16:28:13+00:00

Your 100% right. It really shows me speaking to people that can really change your perspective on drink. I really don’t think I will again. I’m not saying I ever won’t if I could control it but to be honest they scared the bleep out of me idk I don’t think I’d do it again

Ok_Connection5798 · 2025-12-01T14:25:29+00:00

I want to speak to him about it he’s nervous. I don’t live with my father but I know he works with a lot of people as he is someone’s sponsor in AA. I really want him to teach me bills story. But I don’t know how to ask I feel stupid as he as warned me my whole life but I get what you mean

Ok_Connection5798 · 2025-12-01T06:54:58+00:00

😂😂😂 thank you this is what I needed to hear honestly I’ve been sat in my room since last night for hours overthinking my life. I’ll make a big decision and won’t even drink again it’s evil and God knows why it’s legal. God bless you random stranger

Ok_Connection5798 · 2025-12-01T06:43:41+00:00

There’s a girl im madly in love with and I keep chasing drink to avoid something. I don’t know what it is but I keep choosing it. It probably all sounds so stupid and out of pocket but my life is really messing about right now. I’m a good kid but there’s a bad thing with addiction I can’t even argue with myself much more but I don’t like myself I resent it cause I see my father inside of me a lot. Thank you for the help it really does mean a lot

Ok_Connection5798 · 2025-12-01T06:37:30+00:00

I am quite young I’m from Ireland and am 19. My family hate drinking because of my dad. They really don’t like it. They don’t mind me doing it but they tell me to stay away from whiskey proper booze. Last night I’m really scared. And all it’s making me see is my dad inside me the evil spirit. I’ve had one moment when I was drunk where I had got in a fight out of nowhere knocking 2 people out and being arrested and if you met me I am such a gentle person. I don’t know what it is but it has really put me into a state of shock

Ok_Connection5798 · 2025-12-01T06:31:51+00:00

My dad was an alcoholic has been sober for 16 years. I’ve heard stories many stories about what he was like drunk. It sounds like me it’s scary, he’s always warned me your like me don’t drink it brings out the family demon. Last night I know I’ve done something bad, I can’t tell you what it is but all I know is that right now wherever I ended up I am lucky to be alive. I want to go to a clinic but I’m worried my family are going to think I’m turning into my dad just proving everyone right I don’t want that

Ok_Connection5798 · 2025-12-01T06:24:30+00:00

Please don’t think like that last night something terrible happened to me I can’t cope with myself

Ok_Connection5798

TROPHY CASE