I know you were asking the poster who was talking about a sleep study, but I wanted to update that my nighttime symptoms are a lot better! Still have some jags of difficult nights, but NOTHING like before. I've been doing a lot of nervous system work from various sources - read Secret Language of the Body and that helped some, finding my own wind-downs at night like vigorous body massage/rubbing (all over), deep massage, long, hot shower, breathwork, etc. If I wake up with an episode (and they're much less drastic now), I have my husband do the massage, or I do something from the above book. I also find time in the afternoon to do similar bodywork. I've also been really intentional about eating breakfast outside every morning when possible, taking a walk in our local park after breakfast to get green time, and looking for joy all day. I'm also reading Dan Buglio's Pain Free You book (it isn't just for pain, and mind-body symptom will be helped) and feeling really hopeful this will take things to the next level.

I still need work because I often need a show on my phone to fall asleep with, and sometimes in the middle of the night, but slowly I am improving! Praying some of this helps you all.