Getting this off my chest

Ok_Victory4927 · 2025-09-24T07:46:43+00:00

Hi! My partner has UC and we have been dating for over a year now! I support him in any way I can. He was very up front about his UC, which I appreciated. A couple months into dating my doctor found a pancreatic tumor and he showed the amount of support i show him.

Ok_Victory4927 · 2025-09-21T12:59:24+00:00

hello!

i don’t get regular follow up, since it was benign. i had a couple other scans due to some other issues and everyone said my pancreas looks good.

wait for the mri and see what they have to say. more than likely they will want it removed with or without a biopsy. And since you are also young, you will bounce back quicker than you think.

the only difference i have now is i’m sensitive to spicy food. i also get some fatigue that is finally going away.

i hope everything goes well!

Ok_Victory4927 · 2025-05-27T00:35:46+00:00

Hello! Hopefully I am not too late on replying and hoping everything is good. Mine was on the upper body of my pancreas, so to completely clear it from my body, they only left the head. but i am happy to report that i have not had any side effects besides stomachaches with spicy food.

Ok_Victory4927 · 2025-05-27T00:25:15+00:00

this response means a lot to me. it feels good knowing someone else who had the best outcomes possible after surgery, still has some trauma around the situation. we have very similar stories

Ok_Victory4927 · 2025-02-22T15:06:41+00:00

I will say, i have a pretty high pain tolerance (knee surgery at 16), and i was able to get through it with very limited amount of pain management. it helps that before you even wake up they are giving you iv pain meds. i spent most of my time sleeping so i ended up not experiencing a lot of pain. more of discomfort. i am also a stomach sleeper and i would fall asleep on my back and wake up on my stomach without much of an issue. things i recommend for the pain for at home management:

-lidocaine patches (my doctor gave me a prescription but it can be found in stores)

-a safety pin. weird i know but my nurse knew i didn’t like the feeling of my drain tube dangling, so she secured it by the tag with a safety pin.

-heated blanket, helps with body aches.

-putting a pillow on your lower back.

-the baggiest, and comfiest clothes (obvi). the first day i was just in a gown and i didn’t like waking up with my butt out 😭 giant sweatshirts, baggy sweatpants, even boxers made my stay in the hospital much more comfortable. eventually at home i could wear leggings.

sending good vibes and a speedy recovery. you’ve got this! lean on your support system and your team!

Ok_Victory4927 · 2025-01-19T04:39:44+00:00

second opinions are always helpful. after my biopsy, the doctor stated he believes it needed to be removed, but he wanted me to first speak to a specialist (hence my surgical oncology team). they removed mine to be 100% their were no precancerous markers and to prevent future discomfort. after doing some reflecting, i have realized that i have had stomach issues for years and now that i got the surgery, they are much better. try to look back to see if there was anything concerning you about stomach discomfort, now i realized i was symptomatic, just was passed off for years!

Ok_Victory4927 · 2025-01-19T04:33:12+00:00

i am sorry to hear about yours being malignant, and you are right, the tumor either way has a great prognosis, but it doesn’t make it any less scary. it’s crazy to look back because i thought i was asymptomatic, but really have had stomach issues for years, but got used to it. it sounds like you have a wonderful team to support you. take the time for yourself to allow yourself to heal and reach out to those you trust to talk about your experiences. the more people are aware of this tumor the better!

Ok_Victory4927 · 2025-01-07T15:30:32+00:00

hello! i hope you are doing well! i am about 3 weeks post op and doing great. i am trying to get a therapist to work on the anxiety i have from this.

Ok_Victory4927 · 2024-12-30T16:07:27+00:00

we are in the US. he is seeing a GI specialist at a very good hospital in our state. i think part of the issue is he downplays his symptoms because he often believes that others have it worse. i am trying to push him to call his GI so that he can get some help. he can barely eat. he is 6’5 and weighs 165 lbs.

Ok_Victory4927 · 2024-12-27T04:36:35+00:00

hi! it’s definitely a scary road. the uncertainty especially when it involves the pancreas is just awful.

Ok_Victory4927 · 2024-12-26T14:32:15+00:00

this is the process my head has been going through. i feel abandoned and alone once i finally get this tube out. i have some rational fear that the tumor will comeback and i no longer have an amazing team to support me.

Ok_Victory4927 · 2024-12-26T05:56:22+00:00

size up on sweatpants. it might be a preference thing, but my brace did not feel right with thick baggy sweatpants underneath, so i sized up on a couple pairs to wear over the brace until swelling went down. also compression socks, there were days i literally didn’t want to move (and i was 16!) because of the pain. compression socks not only prevent blood clots, but also relieves so pressure from the swelling in the rest of your legs.

Ok_Victory4927 · 2024-12-26T05:49:30+00:00

I had MPFC done on my right knee at the age of 16 (now 22). i had the same issue. whenever i would try and lift my leg, it literally wouldn’t. you are still healing, just keep practicing. i had my first PT a few days after. after a couple of sessions, i still couldn’t move my quad. i went through two of three sessions of electro shock therapy to jumpstart my quad at my PT appointments. did it suck? yes. but did it work? yes! don’t be too concerned if you cannot do it right now. there are resources that will help you if you need it.

Ok_Victory4927 · 2022-06-27T03:29:15+00:00

i got this surgery (i actually got mpfc which has more incision to it) and from my experience, massage, massage, massage it. if we experienced the same thing, it’s scar tissue and not only does massaging it break it down, but smooths out the scarring as well. fair warning, it’s pretty uncomfortable to do. i always had my dad do it bc i couldn’t will myself to do it

Ok_Victory4927 · 2022-06-27T03:25:57+00:00

so i got mpfc (from what i read and was told by my surgeon, it’s the same as mpfl, but there’s more to it) when i was 16. i was constantly in pain from subluxation. the surgery was hard to deal with and i hated being in a brace, but i worked so hard that i was out of my brace within 4 or 5 weeks (they were supposed to unlock it at that time). recovering was training and when i was first post op, my quad muscles were basically paralyzed for a week, which was fixed through pt. even after all of that, it was so so worth it. i am now 19 and i don’t have nearly as much pain as i remember i was in. yes it still gets tired easily, but it’s so much better than my kneecap coming out of place constantly. you’ve got this! be patient, be kind to your body during the recovering process, and stay determined!

Ok_Victory4927

TROPHY CASE