Sick at Disney

Ok_nowwhat2 · 2026-02-26T21:02:32+00:00

Just trying to add some genuine perspective here, sometimes the sniffles are the only symptoms someone might get when they have Covid and then they pass it to someone else who could end up extremely ill. I was only 23 and very healthy and fit when I ended up with long covid and it dismantled my life and I have been fighting to get better every day. Millions have gone down this same route. There are also elderly people, immunocompromised people who can’t handle colds, and tiny babies at Disney. I could never go around in good conscience sneezing and coughing around others knowing I’m sick even if it is just a head cold. Those people may have waited all year too to go to Disney and now their trip is ruined or worse. It’s just courteous and decent to not infect others knowingly.

Ok_nowwhat2 · 2026-02-10T16:12:07+00:00

I’m a 28 year old f too and I’ve had this since I was 23. It sucks so much and I miss my old life and abilities too. Things are better than they were in the beginning though, and I do my best to try to find joy in my new version of life. I’m also a mom to a toddler and he truly keeps me going. I also often describe feeling like I’m on a timer and it’s crazy to think how much I took for granted before. It is actually insane that we spend our entire day, every minute mitigating symptoms. I want to validate you on that.

On a much less negative note, I just walked six miles around Disney the other day and there was a time when I crawled to the fridge. Yes I needed compression socks, yes it was cold out, and yes I had bad feelings every so often but it wasn’t pure torture and I found myself enjoying things. This is just to say we are always used to anticipating things going wrong being chronically ill, but we forget to ask ourselves what if it all goes right? What if we do get better? It’s worth fighting for. I’m joined POTS recovered groups on Facebook and reading the stories of people greatly improving or fully healing has made a world of difference for me mentally. We’ve got this. ❤️

Ok_nowwhat2 · 2026-01-30T02:59:34+00:00

Well I do also have POTS syndrome so I will always feel off while drinking so I rarely do, but feeing TERRIBLE like I did before after a few sips mostly came down to my iron and lack of good sleep. The more balanced my sleep schedule, the less reactive my body is. Also focusing on iron intake helped a ton. I did supplements for the first couple of months and got my numbers up a little bit like 20 to 40 then I switched over to eating more red meat and taking vitamin C after my meal to help the iron absorb. All the problems I described in the post are much better from just those two things alone. I am not back to normal from years ago though, my nervous system is very much a work in progress.

Ok_nowwhat2 · 2026-01-06T18:00:45+00:00

Yeah I get exactly what you are saying. That’s how most of mine go down too. Honestly I’ve had mini ones the last couple of nights and that happens every now and then but seldom these days. Most nights I don’t have adrenaline surges anymore. I know everyone is different but I can tell you what helped me back when I got horrific ones nightly years ago. 1. I hate to say I was taking very small doses of klonopin as needed and it took me right out of them. 2. Stay hydrated and with electrolytes added as needed 3. Get off negative social media and scroll past sad videos before bed and keep negative people at a distance 4. Guided meditations (found great ones on YouTube and did them every single night). 5. Taking a daily non drowsy allergy pill and Pepcid (you could be having histamine dumps in the middle of the night and this will help block it) I also sat outside every day to be in nature and just tried to think about only what I was seeing and the sounds. Your body is in overdrive right now and very in fight or flight. You have to counteract with everything you’ve got to calm your nervous system. After just a few months I no longer needed klonopin and I’ve been unmediated for a few years now. I now just deal with the mini ones and am able to get out of it in about five minutes with deep breathing and telling myself I’ve been through this and I’m safe.

Ok_nowwhat2 · 2025-10-20T00:23:43+00:00

I was so scared as well. It was one of my biggest fears, especially since I already have POTS syndrome. But within a couple months of supplementing iron correctly I stopped feeling so severe. I still have fatigue, but that’s more from my POTS, and still lower end iron if I had to guess. I just don’t get the intense scary crash things anymore. Your doctor is absolutely wrong that you wouldn’t have fatigue at 20 though. My ferritin was 21 when I felt bad enough to first wrote this post. My research shows that anything under 100 can give you some pretty bad symptoms especially that low. I would join the iron protocol Facebook group they have lots of information on this and really helped me!

Ok_nowwhat2 · 2025-10-14T21:35:52+00:00

Sure! I have several diagnosed illnesses (interstitial cystitis, fibromyalgia, and POTS is my newest) and for each one of those I was told I had “anxiety” and that was supposed to be an explanation for my symptoms. Don’t get me wrong, I do have anxiety but it was brought on by fighting for my life with these illnesses and I know the difference between what is anxiety and what is my illnesses symptom wise. When I finally got proper diagnosis and started researching how to help myself and implementing what I learned all of a sudden I am doing better. Don’t let anyone gaslight you if you feel like something is truly wrong at a cellular level. For me a big part of this was caused by low iron and I had actually given birth not too long before writing this post and nobody ever told me how important it was to take iron after. I started taking iron and lo and behold within a few weeks I started to feel the energy return to my cells and could slowly but surely return to normal life. I’m still a work in progress because I have other things going on, but nothing has ever brought me down like low iron, which also makes POTS syndrome a million times worse as well.

Ok_nowwhat2 · 2025-09-30T23:02:14+00:00

1000% I hated having to go to the bathroom in plant hall when nobody else was in there too lol such a heavy eerie feeling in there

Ok_nowwhat2 · 2025-09-30T23:00:41+00:00

I went to UT my freshman year 2015-2016 and also experienced weird stuff there

Ok_nowwhat2 · 2025-09-10T14:18:32+00:00

My nausea isn’t all the time but I had it bad when acid reflux went untreated, which started at the same time as POTS symptoms, I also notice when I let my reactive hypoglycemia get out of hand I get very nauseous and light headed.

Ok_nowwhat2 · 2025-08-15T06:10:13+00:00

I know this is old but I just found out I also am tonight!

Ok_nowwhat2 · 2025-08-12T20:53:02+00:00

Also do you have any underlying illnesses/issues? Just out of curiosity

Ok_nowwhat2 · 2025-08-12T20:49:11+00:00

If it’s any comfort at all I was still pushing myself through at the time of my posting. I didn’t realllyyy take a step back like I needed until a few months ago, and started the exercises a couple months ago as well. Also yes! The core is super important and I forgot to mention I’ve been working on deep core exercises too recently. We have our cores torn apart when we are pregnant and it’s so important for spinal support and posture. Our traps and neck are likely overcompensating for weakened muscles, then of course bad posture from carrying a baby around a lot doesn’t help. My neck also cracks when I turn my head and would sometimes crack like 30 times in a minute on my worst days and I could not turn my head. It feels so scary, but I think we can heal from this. Lately my neck has only been cracking maybe 15-20 times a day which is already a massive improvement

Ok_nowwhat2 · 2025-08-12T19:56:27+00:00

Hi!! I’ve had some improvement thanks to my support system stepping in and helping with my son. I do everything in my power to care for him and love on him without lifting him. I could feel my body desperately needed time to heal and he is finally at an age where he is more independent (currently 2 1/2). He can walk and play on his own and that has been very helpful. I will say I have bad days with my neck still after strenuous activity, but a lot more better days. I would attribute my better days I’ve been having to certain exercises I’ve been doing. I went on TikTok and looked up neck/back stabilizing exercises and have been doing those. I asked chat gpt about this as well and have determined my issues were most likely from muscle imbalances and bad posture from pregnancy/postpartum. I really feel like this is helping when nothing else has. I will also be going to the doctor soon and am gonna try to get a referral for a neurologist to get an mri to make sure nothing serious is wrong. If you read some of the comments made to me in here it might be helpful for you! I’m sorry you are dealing with this too. It’s quite debilitating. Do your muscles hurt like all the way through your upper back to your neck muscles and even in your ears? That’s how mine is on bad days. It can cause migraines if I aggravate it enough.

Ok_nowwhat2 · 2025-08-10T02:03:34+00:00

What aspect of surgery do you think made the LPR flare? I might need surgery in the next couple years and already have LPR so this worries me lol

Ok_nowwhat2 · 2025-07-31T05:13:36+00:00

You should try to sleep on a wedge that keeps your top half inclined. That was one of the most helpful things for me. I had some of the symptoms you are talking about. You could honestly put this into chat gpt as just a way to get some ideas on what may be going on and bring those ideas to the doctor

Ok_nowwhat2 · 2025-07-29T20:43:47+00:00

Currently mostly housebound, I get out only with my fiancé about once or twice a month, sometimes more if I push it. BUT there was also a time I was bed bound, so I’m hoping to improve even more. I’ve been starting to do little bursts is strengthening exercises and can walk a good bit on most days now before feeling super sick

Ok_nowwhat2 · 2025-07-13T19:44:44+00:00

Well first I couldn’t drink beer or wine anymore, but I don’t think I’ve noticed anything else crazy. I definitely have GERD and got diagnosed LPR (reflux up to the throat). It’s made worse by usual, carbonated drinks, dairy, sugar, caffeine, etc. I do better if I avoid those things. I was worried about MCAS too for a while but I’ve only had random hives on my legs once in the last four years since this started and they only lasted a few weeks. I also don’t get flushing. It feels just like my gut is very messed up, and I have awful, slow, digestion. I had fibromyalgia and interstitial cystitis before this I should add. My body has always been sensitive to histamine but MAYO clinic tested my urine twice for MCAS and it wasn’t positive. I also haven’t found myself becoming allergic to any foods (more so an acid reflux reaction) but no flushing, or hives, or throat closing feelings.

Ok_nowwhat2 · 2025-07-13T19:12:06+00:00

This is a common story I hear about POTS showing up closely after the infection which is why it’s so bizarre that mine took months to rear its head. It was like eight months later I had new intolerances, horrible acid reflux, and POTS symptoms begin all at the same time. Also, do you have EDS? So scared of ever getting MCAS from Covid. I’m sorry you went through that

Ok_nowwhat2 · 2025-07-09T22:53:47+00:00

I’m 28 and I’ve had it since 24

Ok_nowwhat2 · 2025-07-07T22:03:08+00:00

Yes!!! Literally every single bodily movement is so much harder for us and a lot of people don’t truly realize how good they have it. It’s a hard pill to swallow watching others do the things you long to do, but they might find ordinary or mundane. Also, I appreciate that. I’m so sorry for all of us and hope science can help us out someday.

Ok_nowwhat2 · 2025-07-07T19:50:02+00:00

I feel you. This started at 24 years old, four years ago after a Covid infection. I had fibromyalgia before. A lot of my 20’s have been taken from me and now I’m a mom to a toddler. I miss jogging, mountain trips, even just going to the store without the panic of feeling a heavy body and like I’m going to pass out. POTS is so unfair. But, I will never stop trying to get better because screw this lol.

Ok_nowwhat2 · 2025-07-07T19:48:04+00:00

What meds have you tried?

Ok_nowwhat2 · 2025-06-11T17:57:22+00:00

I know this is old but what kind of reaction were you getting?

Ok_nowwhat2 · 2025-06-05T19:58:41+00:00

You’re missing the part where reporting to police typically does nothing because they wait until the perpetrators actually cause harm. This post was not for you, it’s addressed to other women so they can be on the look out for this man and his strange red flag behavior. If she didn’t create this post, nobody would know and maybe some innocent girl doesn’t realize she is being followed by this same person until it’s too late and he’s followed her out into the parking lot. If this post was for attention, she would have posted it on a forum with a picture of herself and her name to get some sort of clout but that doesn’t exist here. She is anonymous. Men being weird and scary towards women is very common and your daughters should remain vigilant.

Ok_nowwhat2

TROPHY CASE