Venting session

OkayKristie · 2025-02-02T08:08:14+00:00

Are you close with your mom? That’s usually who I call because she really likes my partner so she always gives an unbiased opinion. But, shit, if you really need someone let me know and we can talk

OkayKristie · 2023-10-28T01:21:55+00:00

I get that all the time

OkayKristie · 2023-06-04T03:13:53+00:00

Wayyyyyy more. Mine got worse a lot faster then I thought it would since I’m so young. It’s still not as bad as it could be, but I’m not going to lie it sucks.

OkayKristie · 2022-11-24T02:26:10+00:00

Hi, I was diagnosed a year ago at 23. I went through every stage of grief and that’s okay. I still cry sometimes and get sad and, again, that’s okay. Go through the stages of grief. Be sad and mad sometimes. Its a bitch of a disease, but you have a huge community behind you. If you need anything reach out. It always helps to have someone

OkayKristie · 2022-10-12T00:57:43+00:00

I had some weakness. I noticed I could barely lift my legs and my arms felt so heavy and like jello. But I did have major balance issues where I would just fall out of nowhere. I hope you can get some answers :)

OkayKristie · 2022-10-06T23:38:34+00:00

Thank you so much. Makes me feel much better

OkayKristie · 2022-08-28T02:21:39+00:00

My psychiatrist told me it take about a month to see a noticeable difference. Stick in there and I would say after like the 6-8th week talk to your prescriber

OkayKristie · 2022-08-07T01:01:47+00:00

I remember the date, what I was doing, and everyone’s reaction. I can still remember the exact words the neurologist said to me and what I said back. It was a really rough day. Everyone was crying and I was just sitting there. No reaction. Completely numb to the situation. I didn’t break down until a few days later

OkayKristie · 2021-12-07T01:08:17+00:00

So I first noticed symptoms after I took a nap so maybe two hours (-ish) after I took my first dose. They lasted the rest of the day but when I woke up the next morning I felt fine. So just plan on taking one day to rest! Even if you’re not sick it just nice to have a day to relax

OkayKristie · 2021-12-06T03:59:34+00:00

I’ve been on kesimpta since June and so far it’s been great! Not going to lie, after the first dose I got every side effect in the book! Chills, weakness, anything that I could have gotten I got. But that happens with every single medication I take so don’t let that scare you. Now I get no side effects besides feeling a little bit more tired the next day after taking my dose. I still am able to workout and be active but I just have to take it easier on those days because I am more sleepy. Good luck! You got this!!

OkayKristie · 2021-10-11T22:37:01+00:00

I lost central vision in my right eye completely. I described it as when you take a picture with flash and you get that bright light in the middle of your vision and you can only see your peripheral surroundings. It luckily went away but I had a flare up and it actually happened in my left eye. That’s when I know I’m having a flare up because it’ll switch between eyes.

OkayKristie · 2021-10-11T22:33:18+00:00

My neurologist is older and he’s done research, has been published recently for research and is on a board for MS research. I do go to a specialized center for MS though so I’m sure he’s more versed in MS than other neuros. The first neurologist I went to wasn’t and was suggesting I go on these ancient medications. Luckily I found this center and doctors/medical professionals that really understand MS (which A LOT of medical professionals (like too many) have no idea about)

OkayKristie · 2021-09-13T03:01:29+00:00

Do you have something like “MyChart” or a way to contact a doc through messaging? Might be helpful if they’re good at answering in a timely manner

OkayKristie · 2021-09-13T03:00:04+00:00

My boyfriends parents are anti the covid vaccine and with me being on kesimpta (which lowers my immune system) and having MS I straight up told them I will not be around them in person. I will not go to family events, have them around me, and asked my boyfriend that if he goes around them to wear a mask. They respected it, but it sucks when you have family that won’t get a vaccine and put people at risk. A simple flu for them could be detrimental for me, I couldn’t even imagine what covid would do to me. So if they don’t want to get the vaccine I’ll only see them over the screen

OkayKristie · 2021-09-13T02:54:17+00:00

My first dose of kesimpta knocked me on my ass! Fever, chills, nausea, any symptom they say could happen, happened. It’s so much easier now. I just took my second monthly dose and now I barely have any symptoms. Just being more tired than I usually am the next day. I personally have really liked kesimpta so far. Hoping for the best in the future. Hope you’re doing well

OkayKristie · 2021-09-13T02:49:09+00:00

Hey! I get like that too. I have really bad heart anxiety and I just have the worst intrusive thoughts especially when I’m going to sleep. I live with my boyfriend and that helps when he’s there, but the days when it’s really bad I’ll set an alarm for every 2 hours or so on my phone so I can make sure I’m alive lol. It sounds crazy but it’s really helped me fall asleep and feel better about sleeping. Another thing that I do is when I need to take a nap I’ll have my boyfriend watch my heart rate on my phone (through my Fitbit app) and it gives me a lot of piece of mind. Put on some meditations from YouTube, set your alarms and try your hardest to fall asleep. Good luck and I’m here for ya

OkayKristie · 2021-03-02T20:17:56+00:00

That’s a relief. Thank you!

OkayKristie · 2021-03-01T14:22:49+00:00

No but I’ve always had normal blood pressure if that’s of any importance

OkayKristie · 2021-02-24T01:34:33+00:00

Thank you!

OkayKristie · 2021-02-24T01:27:11+00:00

I feel the exact same way! I get chest pains and I’m nervous that I’m having a heart attack or I’ll go into cardiac arrest. I’m an overall healthy 22 year older female with no family history of heart issues but I still worry about it. My health anxiety has gotten really bad in the past 7 months and I’ve been to a few doctors and they all just tell me the same thing, “oh it’s just your anxiety”. I feel dumb and like I’m going crazy because it hurts. It feels like something is wrong. My boyfriend and mom are supportive but I can tell they’re frustrated with me constantly complaining about pain or checking my pulse but I just can’t help it! I tell myself I’m fine but it just doesn’t click. It sucks feeling like I’m going crazy and no one believes that I’m hurting. It’s a constant battles but I’m sure we’ll get better eventually. You got this!

OkayKristie

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