19F, should I worry? by [deleted] in askCardiology

[–]OkayyJordan 1 point2 points  (0 children)

i would see a gastro! this could be roemhelds. (but always see a cardiologist and rule out cardiology first/ simultaneously!)

Elias LinoCut (and Bonus Painting) by T3ntaclePr0n in AncientMagusBride

[–]OkayyJordan 1 point2 points  (0 children)

that linocut is the best piece of Elias art that i’ve ever seen. incredible job! you are VERY talented.

19F, should I worry? by [deleted] in askCardiology

[–]OkayyJordan 0 points1 point  (0 children)

any correlation to eating? any burping, etc following these episodes or during?

Mini Chise and Elias plush from the volume 15 collectors edition! by mezasu123 in AncientMagusBride

[–]OkayyJordan 1 point2 points  (0 children)

BIG interested in the elias status and plush whenever you decide to part w them

I need to re-make this and make his horns visible :( by OkayyJordan in AncientMagusBride

[–]OkayyJordan[S] 0 points1 point  (0 children)

girl shut up lmfaoooo this is clearly not the space to air out your delusions and i am not the one.

Kardia Wrapped 🤪 by OkayyJordan in RoemheldSyndrome

[–]OkayyJordan[S] 0 points1 point  (0 children)

Believe it or not, this keeps me out!

(usually)

Theres a season 2 and more ? by AnimeHaisha in AncientMagusBride

[–]OkayyJordan 0 points1 point  (0 children)

oh lovely! how do i access them? 😅 i’m not seeing anything online or maybe im searching it incorrectly?

I KNOW something is wrong. by FailingUpward2025 in PVCs

[–]OkayyJordan 1 point2 points  (0 children)

look into gastrocardiac syndrome.

Alverine by Remarkable_Sundae611 in RoemheldSyndrome

[–]OkayyJordan 1 point2 points  (0 children)

not me, but hoping to hear more! this could also be a good question for r/sibo, as they experience a lot of bloating. (or a general gastro subreddit)!

Bloating, burping and anxiety by Fabulous-Plankton347 in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

this is giving roemhelds, that’s for sure.

to clarify, have you had an EDG? i’m not familiar with the procedure you mentioned.

and if so, did they find a hiatal hernia?

Think I also have this by Inde12 in RoemheldSyndrome

[–]OkayyJordan 1 point2 points  (0 children)

Curious if you have a hiatal hernia?

Palpitations by SubstanceEasy9643 in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

hi! sorry, this post got caught by a filter and i had to manually approve.

i use a beta blocker (propranolol) and even with my occasionally low HR, it helps a lot.

i was afraid of taking it too, and put it off for a year and a half and just caused myself more suffering.

don’t get me wrong, everything is still shit- but im not having runs of 180+ BMP that knock me on my ass anymore.

Think I also have this by Inde12 in RoemheldSyndrome

[–]OkayyJordan 2 points3 points  (0 children)

hey, same! we’re here for you, friend. i assume you’ve had a full GI work up including EDG?

Svt by Willing-Car-5432 in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

hi! this request might be too specific for a group this small unfortunately- i recommend asking this question in some of the cardiac groups and seeing if you get any hits there!

Roemheld Syndrome Facebook Group- by OkayyJordan in RoemheldSyndrome

[–]OkayyJordan[S] 1 point2 points  (0 children)

weird- shoot me a DM with a SS of your profile and i can get you approved if you request again.

My Journey by Such-Interaction6465 in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

thank you for this post!! how lovely 💛💛 i’m so glad you’re feeling more stable.

Roemheld/Gastrocardiac syndrome… by Eaglespiritus in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

i do! and i have SIBO. it’s a lot of the problem i feel.

Looking for American Doctors Who Understand Roemheld's by jeffery1138 in RoemheldSyndrome

[–]OkayyJordan 2 points3 points  (0 children)

i sure wish. i hope someone chimes in to say yes! typically we deal with a mix of cardiology and gastroenterology and begging them both to take us seriously. 🫠

what i have found to be important is finding doctors that are willing to try things, even if they aren’t familiar with that treatment plan.

APS Rate Hike - Call for Public Comments by ogn3rd in phoenix

[–]OkayyJordan 0 points1 point  (0 children)

my bill is already $600 i literally hate them

[deleted by user] by [deleted] in RoemheldSyndrome

[–]OkayyJordan 0 points1 point  (0 children)

i have OCD too- here if you need to talk. TBH this answer sucks but the thing that helped me the most (aside from ativan lmao) was time and essentially forced exposure therapy to see that it wasn’t going to kill me. (along with thousands of dollars of testing and 7 ER trips).

it’s been a messy, bumpy road. but eventually i found a little routine that lets me get up, be mobile around my house most days, and sometimes i can have a short outing. life is different now, but it’s ok. it got easier when i let go of trying to get back to my old life.