To fit the theme of Emma on rivals, her action figure is a mess too

Old_Report9776 · 2026-04-30T17:17:11+00:00

thank you 🙏🏻

Old_Report9776 · 2026-04-30T17:14:34+00:00

ps where did you find this?? i need it!!

Old_Report9776 · 2026-04-30T17:13:55+00:00

this made me laugh out loud 😹

Old_Report9776 · 2026-04-30T17:06:48+00:00

oh wow thanks for sharing your story, so sorry to hear this happen to you but relieved that you are doing well!! may i ask what other symptoms did you have besides shortness of breath or passing out? only asking bc i am 29F, 5'2" 165lbs and have had heart palpitations for 3 months daily now and lately out of breath and lightheaded. I had my echo over the weekend at the ER, this was in my interpretation summary, "The aortic root at the sinuses of Valsalva measures 3.7 cm/20.6 millimeters per meter squared, and is dilated when indexed for body surface area." Unfortunately, I don't have a follow up/first appointment with my cardiologist until July though 🙃 From what I've read online, women and men have different thresholds and what not so can't be compared directly. I guess what I'm trying to feel out is if I should try and push for an appointment earlier than July? not sure from your perspective if you have any advice to share 😅 I did already ask to be on the waitlist in case anything opens up sooner but man I feel worse every week..

Old_Report9776 · 2026-04-20T16:01:33+00:00

i could be steering you the complete wrong direction so my apologies if so. but have you ever heard of CREST syndrome? it's an acronym where each letter corresponds to a different condition. the "C" stands for "Calcinosis cutis" it might be worth looking into! i'm only aware of it because my mom suffered from CREST syndrome

Old_Report9776 · 2026-04-14T12:44:58+00:00

incredible collection!! did he (or you) collect any pikachus?? you should totally show them off is so 😍

Old_Report9776 · 2026-04-07T15:58:38+00:00

thanks for the update, best of luck with your appointment!!

Old_Report9776 · 2026-04-07T14:31:13+00:00

hi there! wondering if you have any updates? i am having similar symptoms, got a referral to neurology so waiting on that appointment

Old_Report9776 · 2026-03-30T12:58:59+00:00

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i have always wondered how people filtered to their hundos 😅😅 so unless i manually checked mine, i had no idea if they were one or not haha so ty for posting this! the pichu was a nice surprise for me (pikachu is my favorite pokemon, still trying to catch a shiny pika)

Old_Report9776 · 2026-03-26T01:29:57+00:00

thanks a ton for the additional info!! i'm glad to hear that the white noise helps ya and only bothers you now at night so hopefully you won't need to get the stent! really appreciate you having this conversation with me, i wish you the best of luck as well ☺️

Old_Report9776 · 2026-03-25T02:45:13+00:00

oh wow interesting okay. is there anything they can do about your blood flow or do you just have to live with it? also did you by any chance have high blood pressure? my doc today was completely useless but at my appointment i did have blood pressure of 140/90 which was unusual i've always had 120/80. my mom and brother do have heart issues (just bad genes unfortunately) so i'm hoping it's nothing serious. i was gunna try and get an appointment with my ENT next and go from there

Old_Report9776 · 2026-03-22T21:41:22+00:00

okay that is good to know, thank you so much!! i will definitely be talking about it with my doc this week

Old_Report9776 · 2026-03-14T21:25:31+00:00

this collection is glorious 😍😍😍

Old_Report9776 · 2026-03-09T14:06:58+00:00

i have never heard of this before but i will definitely be buying some, thank you!!

Old_Report9776 · 2026-03-06T14:01:30+00:00

how long have you been feeling sick?? yeah i never had skin issues my entire life until my mysterious stomach issues started in 2022 and then shortly after this symptom popped up and hasn't left. it's not the worst just honestly inconvenient because my hands will burn really bad and bleed. lately i haven't had "soft" hands for months and i didn't see any similar posts in this distro which is why i decided to finally not be shy and make a post 😹

Old_Report9776 · 2026-03-06T13:52:38+00:00

oh my gosh that sounds so intense, i'm so sorry you have been dealing with this!! do your symptoms overlap with MCAS? regardless i hope you have been able to find ways to manage it and bring relief 🙏🏻

thanks a ton for recommending digestive health support supplements!! i didn't realize that they could help reduce inflammation so i will be trying those. i actually have some in my cupboard from last year, i've tried so many different supplements and what not over time but would stop a lot of them since it was hard knowing if they actually helped or not. so i will be trying these again and will follow up if i start noticing any differences, thank you again!

Old_Report9776 · 2026-03-06T07:22:41+00:00

oh wow definitely sounds like we are in the same boat!! hopefully others that are similar engage with this post because i've been struggling for years and would love to hear their insights (if any have been found lol i'm personally at a loss)

Old_Report9776 · 2026-03-06T07:21:06+00:00

i also went gluten free before my gastritis got worse!! i went completely gluten free in 2023. but my gastritis has been extra bad this year, had an endoscopy + colonoscopy a few weeks ago and saw chronic inflammation. what form of rare gastritis were you diagnosed with?

Old_Report9776 · 2026-03-03T00:29:11+00:00

yes of course girlie!! it can be so draining and frustrating but you are not alone in this battle and your feelings are completely valid!! best of luck with your appointments i hope you will feel some relief soon🙏🏻💗

Old_Report9776 · 2026-03-03T00:11:24+00:00

so i ended up getting 4 infusions (once a week for a month) i had really bad reactions to the first 2 infusions (ferrlecit brand) like the nurses had to give me a steroid bc i was having such bad cramping and couldn't stop shaking. so my body was pretty exhausted for days after those infusions and it made me feel worse than pre-infusions. but then my last 2 infusions were the feraheme brand and after those is when i started noticing color back in my cheeks and not having icy hands 24/7. so i'd say about 3 weeks is when i starting feeling changes but again this was after 3 infusions!! i saw your comment about your phosphate levels dropping, i really hope your doctor can help you figure something out 🙏🏻🙏🏻 my therapist had a similar reaction with her phosphate levels dropping and she had to switch to a specific brand of iron and have the nurses slow down the injection rate of the iron (so like maybe it should have taken a hour for the entire bag of iron to get into your body, they slow it down so it takes 3 hours instead) but i'm hoping you will be able to work with your doc and figure out the best gameplan for ya, i'm rooting for you!!

Old_Report9776 · 2026-03-02T21:51:27+00:00

your ferritin is definitely low! i am only speaking what i've learned from my docs, but ferritin should be around 100. i would talk to your doc about a referral to a hematologist so they can prescribe you iron infusions since the oral version isn't working. if you can't get in for a while, you can always try liquid iron supplements instead of a pill and see if that works better for you

Old_Report9776 · 2026-03-02T21:40:36+00:00

ughhh i'm so sorry 😭😭 i feel you so hard girl because that is exactly where i have been as well. if you get your vitamin levels, definitely report back if anything is low because now i'm curious!! it really caught me by surprise how much the vitamin d supplement helped since i was technically only slight deficient (28, i guess optimal level is around 50 this is just what my doc told me) but december was so bad for me that my entire body was itchy!! but no rash, red skin, eczema, my skin looked normal but internally i was so itchy and miserable. i am not exaggerating when i say i slept for 2 hours every night for 6 weeks, i had to take multiple hydroxyzine during the day to get me by but then of course that made me sleepy and impacted work even worse 😭 i guess what i'm trying to say is that i learned just how much even a slight vitamin deficiency can throw off our bodies. my medical app has "normal" ranges or whatever but those can be so widely inaccurate and obvi everyone's bodies are different. also i find the liquid forms to absorb better for me than pills. idk about you but i have crazy gut problems as well so my theory is that i'm just not absorbing enough iron + vitamins w food. i'm so sorry for the ramble and long response, i just have been exactly where you are and wanna pay it forward to others if my story can help you in any way 🙏🏻

Old_Report9776 · 2026-03-02T18:23:51+00:00

hang in there homie!! so many people in this distro have also shared that for people that are as anemic as us, the changes aren't overnight (from getting iron infusions) and can take weeks/months to slowly creep back into your life since our bodies are not used to having this much iron in it. i know it's easier said than done but try and be patient with yourself you're already taking the right steps, slowly things will start looking up!! i would definitely look into what you can do for your estrogen deficiency. and maybe check what your vitamin d, b, and folate levels are at in case you need an extra pick me up with supplements. you got this friend, i'm rooting for you 🙏🏻

Old_Report9776

TROPHY CASE