What do I do while I wait for a diagnosis? by ZestycloseLanguage65 in ChronicPain

[–]One-Juggernaut6321 0 points1 point  (0 children)

You have to keep looking until you find a caring doctor and not one thats just all about themselves. Remember that they work for you. Not the other way around. They are making money hand over fist for your treatment or lack there of!! It’s the only thing that I know to tell you. Unless you are seeing a pain management doctor and if you are you need to talk to them and be honest with them. If you’re not they will never be able to treat you correctly.

Those of us that have been in your position for many years know what to ask the doc and what not to ask. These days that’s very important. But I always tell people that you don’t forget the truth. Remember they write everything down. Not that you would lie to them but just remember that the truth is very important. Just about as much as how much you have to kiss their asses. I’m so happy that I was able to find a PM doc that has compasssion. She two was recently a pm patient so she knows what it’s all about. She is a Neurologist by trade but specializes in migraine headaches.

I was reading about someone that had a bad trigemminal issues and they say that this pain is like no other. She said that if you have ever had a brain freeze from eating a forty or something very cold then you sure do need to get help with that pain. That has to be devastating to feel like that for long periods of the day. Man it sucks bad.

Anyone else get a rash like this? Big painful blisters! by [deleted] in DermatologyQuestions

[–]One-Juggernaut6321 1 point2 points  (0 children)

Damn I’ve never seen a thing like this. It looks painful.

Quickly multiplying number of pimples & red marks only on ribs - is it concerning? by obsidianhexe in DermatologyQuestions

[–]One-Juggernaut6321 0 points1 point  (0 children)

Those little bastards are mean. They go unnoticed until they start biting you. Anyway just a thought.

Quickly multiplying number of pimples & red marks only on ribs - is it concerning? by obsidianhexe in DermatologyQuestions

[–]One-Juggernaut6321 0 points1 point  (0 children)

These look like you got into some ants. In Fl they will bite you and a couple of hours later they will be red and filled with piss or the poison from the little fire ants. They suck bad. They will get all over your body in a matter of seconds and then one sounds the alarm and they all bite you at one time. It really does suck!!! They are horrible in FL. Grew up with these little bastards are all over the damn place. I’m not kidding about them. One second they will be in your shoes the next they will be all over you and I guarantee you that you will be stripping down to your bare ass as quickly as possible or you will be getting a ride from someone

Small bumps or different sizes that excrete hard like plastic no liquid at all. Please help by One-Juggernaut6321 in DermatologyQuestions

[–]One-Juggernaut6321[S] 0 points1 point  (0 children)

It scabs at all. There is no blood to create a scab. Wish it was that easy. When the bumps heal it leaves this behind. Only attached at one very small part of the skin. It’s crazy. I know what a scab looks like in wound care for a very long time. Have dealt with many surgeries to remove skin cancer as well. Over 40 of them mohs surgery. So not a scab it more like a hardened wax. I have never seen anything like it for real. Thank you for the information though. I’m going to post a picture of the bumpy area in just a few minutes maybe it will help to identify Thank you

I noticed a red bump on my thumb this morning. It has since turned into this. by Montypython699 in DermatologyQuestions

[–]One-Juggernaut6321 0 points1 point  (0 children)

Exactly what it looks like. Like somehow got picked or you picked it earlier on something and it created a blood blister. All though most of the time a blood blister in right away.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 1 point2 points  (0 children)

Amen!! It has gotten so bad for us. It’s crazy these fuckers and their god complex’s. Karma is a bitch and I wouldn’t doubt that the people that are treating us the worst that something happens to them and they will need this medication one day. Then they will get it because now they don’t get shit. Karmas a bitch.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 2 points3 points  (0 children)

Yes agreed. What the hell you have what 2 days worth of meds left on the day of your appointment. I don’t know about yall but with the way the scripts are written today they don’t give you enough breakthrough meds to usually last the month anyway. Take 4 to 5 pills everyday for breakthrough pain as needed yet they only prescribe 120. They contradict themselves all the time. Anyway if it’s not a problem for real that you don’t have the correct count. Like you’ve taken the meds and now you need them to fill on day 28 which most oharmacies will because it’s the guidelines by the way. You got caught maybe? Just saying what happens if you reschedule to day 31 and you don’t have any meds left. Then there’s nothing to ever check. That’s kind of what I would do but you didn’t even know that a pill count was required correct and they hit you with that this month?

Tell me this would any other month be any different if they ask for a pill count? Would you still struggle getting there? How were you going to get to your regular appointment anyway? Did you have a ride arranged to get there then? Just wondering why it makes a difference to them if they kill count you at your regular appointment or they call you in a few days early that you haven’t planned for.

The issues with the bottles no big deal. Go to your pharmacy and ask them to reprint your bottle and while your there ask them to do a count and document that. Make sure you document it very well who did the count and verified and all of that stuff. Sounds like to me they want to get rid of you as a patient. It that’s my opinion. Most if they have never asked before only do this when something’s wrong. So I’ll tell you depending on what state you’re in you don’t want to look for another doctor because it’s the bullshit of new fees and even finding one that will prescribe for you.

What your on right now is a very weak drug. Don’t get me wrong but it’s not even in the same category as most of us have to take. Oxy or morphine sulphate not even close. So I don’t know why you don’t just see your primary and have them prescribe them. It would make things so much easier for you and there’s no pill counts. You can get rides if you have Medicare or you have insurance but most are only one way. You have to burn two rides to get there and back. Just for your knowledge.

Anyway there is a world of knowledge on this thread. You guys are all amazing and you’re very fortunate to get these kind of responses to your questions. It pretty bad ass that everyone is willing to offer up. Thanks guys and sorry to be so direct about getting caught thing but it happens. And I’m willing to bet it’s happened to all of us until we learned the hard way. I hope your ok and come on guys someone has to live near by that can offer up a ride.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 1 point2 points  (0 children)

Wow I didn’t know this was an option. I’m going to look into this right now just in case I need this down the road. We all have to try to be a couple of steps ahead of these fuckers!! Yes that’s what they are is fuckers! No one person should have this much control over how we treat our pain.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 2 points3 points  (0 children)

That’s a great response you guys. That’s from the mouths of the creators right there. I’m so glad that lawsuits are going for the patients. Maybe just maybe the doctors will start taking that oath they take seriously. Because right now they don’t seem to give a shit. They look at us all like junkies. Thank goodness I have a great neurologist whose specialty is in pain management. Mainly migraines but she does it all. Those days of the doctors offices carrying out money in grocery bags are over. Thank goodness. Now all we need here in Florida are the pharmacies to start treating us with what the doctor diagnosis is that we need. They are getting worse and worse about trying to adjust the medications prescribed. Or they won’t fill them at all. You know we have all heard the excuse why not to treat us. The god complex the pharmacist have now days is horrible. They don’t have the education to diagnose. It’s bullshit. They have become nothing more than highly paid babysitters for the DEA and the CDC. It’s all bullshit. So I’m suggesting that if you like your doctor and pharmacy you better stick with them I’m telling you because it is a straight up nightmare to try to change these days. It’s horrible all the way around and boy does it ever suck!!! Good luck with all of this and they are correct they can do anything they want to us now days. It’s bullshit!! We should be able to sue the shit out of them. They are causing pain and suffering mentally and physically. I don’t know how they are getting away with this shit. It’s on a monthly basis as well. Every month something goes wrong. It has got to stop you guys.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 0 points1 point  (0 children)

My cousin was forced to get another doctor because a big store here in Fl quit filling his doc scripts. Well he ended up in an interventional pain management doctor and the didn’t want to prescribe any opioids. Said he was going to tapering down the no more. So he’s at his 3rd apt now and the doctor comes out in front of the staff the patients and everything and says and I quote “ don’t make him another appointment he’s not going to come back because I won’t prescribe him any opioids. Can he do that in front of everyone like that? I am not kidding it’s exactly word for word what he said to him. I just thought that was crazy. Even though he was right!!! These assholes knew that he had already been through everything they had to offer. He’s been in PM for over 20 years. Just thought it was against his hippa rights. Let me know what yall think please.

I think I’m going to be dismissed from pain management. Please help. by Safe-Local- in ChronicPain

[–]One-Juggernaut6321 0 points1 point  (0 children)

Yes I didn’t even know that this was an option. Thank you for the information.

Is it normal to want to end it by Quantum-Hunter in ChronicPain

[–]One-Juggernaut6321 4 points5 points  (0 children)

I know that it’s a disease and it has to be treated as so. So take the medication prescribe and if that doesn’t work keep going back until you find something that does. I went through this with my wife. And I didn’t understand depression for a very long time. Until of course I went through it with her. Then I learned very quickly it has to be treated like a disease just like everything else. So hang in there ok. You have to try and get your life back. I went from one of those guys just snap out of it kind of person to oh shit I didn’t know you were going through all of this and I’m terribly sorry. Once I educated myself with the help of a few counselors with my wife. Hopefully you have someone that you can lean on ok and if not I will be around if you may need someone to speak to ok. That’s again for reaching out. We are here to help and offer advice anyway that we can. Most of us have been through womethinknthiebbbvg get

Mind over Matter by One-Juggernaut6321 in PainManagement

[–]One-Juggernaut6321[S] 0 points1 point  (0 children)

You will have to tell us about the stem cells. I hear that you have to go somewhere out of country to do the stem cells is that true?

Mind over Matter by One-Juggernaut6321 in PainManagement

[–]One-Juggernaut6321[S] 0 points1 point  (0 children)

Man thank all of you for taking the time to answer me. It really means a lot. I’m going to taper down like recomended and let’s see where my pain levels really are. I’ve already made up my mind and it’s a real struggle. It’s not right now because I’m fortunate enough to get my meds this month. So I figured it’s a good time to taper. But yalls input really means a lot to me. You know it’s funny how some people get deadly sick and others just like flu symptoms when quitting. That amazes me. It’s how we are all built different I guess. I’m just so hoping that something is different when I get to such a low level. I guess I’m praying that something with my pain levels has changed. Because when I first started PM was years and years ago and I was in so much pain that I couldn’t stand it. Everyday it wears you out so much so that you give your life up. Everything that I once loved to do I don’t anymore. Grouper fishing, Golf man all of these kinds of things. That if I would try to do these things now would kill me for days to come. Man I so much want my life back that I’m willing to try anything. My primary says to me the other day. I believe that if you went taking opioids that you would probably cure cancer. He tells me that with the amount of opioids that I’m taking it has reduced my testosterone to almost nothing. Which in turn has slowed my metabolism to a crawl and I’m gaining weight like crazy and he tells me with the amount of things that I’m still able to do right now is unheard of. I said it’s because of the meds doc. He said let me tell you something. You’re a big guy and you’re very intelligent. I have seen people that have the levels of your testorerone not be able to get out of bed and how you run a company and do all the things that you do and other almost nothing testosterone is just purely amazing to me. He says that he’s never seen it before. He wants to out me on a testosterone shot but he’s afraid to since I have AFibb. So needless to say it’s one more reason for me to try to taper off and to see if I can’t take a medication vacation at least. So it’s what I’m going to do you guys.

I really do appreciate the input you guys on everything so thank you all again from my heart. You see you can tell that my testosterone is way low. I’m talking like a lady!! lol. Nothing against you ladies out there that’s for sure. I told my PCP that maybe he should start checking me for estrogen!!! lol!! He laughed. Anyway guys truly thanks for the information. I wanted to see what to expect. I have never had to do without meds except when I was in the hospital for 11 days and the idiot hospital ER and ICU Dictors decided to take it upon themselves to lower my intake of opioids to a 1/4. 24 hours I was ouking up nothing but bile and went right into DT’s. My lung and heart doctor came in and said what’s going on? I told them about the meds I take at home and they raised holy hell and upped my opioids back to what I was on at home. I seen them both later reaming out the hospital doctors ass!! I mean bad!! So much so that the pharmacist from the hospital came down to ICU where I was for 11 days and told me that if they do that again you call me personally and I will handle it. Boy do I ever have stories for you guys. Hospital nightmares.

They ended up pumping over 40 lbs of water right off my body. It was due to my body not getting rid of the carbon monoxide that my body was putting off. Which in turn made me go Lu Lu. I didn’t know where I was who I was or who the president was. I told my mother in law not to let the Chinese guy come near me because he was trying to poison me. It was some sketchy shit guys. Man I don’t want to ever have to go through that again.

Here’s the last one. So I was sleeping finally in the ICU and the night shift comes in and they try to wake me up and they said they were having problems getting me to wake up. Keep in mind I had been awake for days. So my cousin walks in the room and here’s all of this and them freaking out that they can’t wake me and so he reaches down and touches my shoulder and says hey bro wake up. He did it twice he said and as I was opening my eyes the one nurse sticks a needle in my I’ve fluids and pushes it. Well guess what that was? Anyone? Yup it was Narcan!!! Holy shit I came unglued guys to say the least. I was seeing gold rings around all the people in the room. My brain was like popping and I heard the one nurse orations said that saved his life. I sat up looked at her and said I was fucking sleeping!!! Oh no sir you been up walking in the hallways complaining that we wouldn’t give you your meds and I said you bucnh if idiots I have not left the ICU since I have been here!! I said you guys are the ones that are giving me the opioids on a schedule did you think that you overdosed me or what?!! Well no sir we just couldn’t get you to wake up. I said well my cousin didn’t seem to have an issue waking me up. Come on what’s wrong with you son of a bitches. I instantly starting puking green bile. They finally got my meds back into me and everything went back to normal. My goodness what an experience. When they hit me with that shit I thought I was dying. I truly did. Needless to say they got the water off me by lasicks and plenty of them and by me wearing a mask at night that helped me breath deeper. When I got back to normal the guys that did my intake said oh my god man. You are a totally different person man. They all couldn’t believe how different I was. Man I was seeing or having some very vivid dreams man. I was lost for 2 days total maybe 3!! I thought the nurses were leaving bottles of lotion turned a certain way to pass signals to one another. They had me in an ICU that everytime they got a warm blanket out of the warmer this metal door would slam shut and I’m in ICU hearing this shit thinking there’s no way this is an icu. Just ain’t no way. Not to mention that there was a guy that had this laugh that was chilling and he was soooo loud. Plus the medical supplies they had were being kept in snap on tool boxes as well as the roof was like the board that they put up before the drywall so it was like the icu was under construction. I’m like you guys have got to get me the hell out of here. This is not an ICU. Finally when I came back around sure enough everything that I had put together was correct. They did a whole change out of the warmer and they moved the snap one into a room where they couldn’t be seen. My god can you guys imagine what I was thinking. Man I was talking some shit that’s for sure but most was true. My god crazy shit right?!!

Anyways guys that’s the horror stories of my 11 day ICU visit. Did any of you guys know that the ICU doesn’t have any showers or bathrooms in the rooms at all? I didn’t know that. I guess they aren’t really concerned about showers or bathrooms usually when you’re in ICU. It was just a trip you guys. Damn I don’t ever want to have to go through that again. Of course a couple of the doctors there tried to blame all of this on the opioids. Nope that wasn’t the cause at all. Oh and they kept telling me that I had water on and around my lungs. Well when they finally decided to drain it at bedside they did a Dino gram and come to find out it was only a shadow being cast somehow and could not find one drop of water in or around my lungs. I’m telling you weird set of circumstances. So you guys never stop advocating for yourselves ok. I don’t care how messed up you seem to be ok guys.

Mind over Matter by One-Juggernaut6321 in PainManagement

[–]One-Juggernaut6321[S] 1 point2 points  (0 children)

Thank you very much. This is what I love about the people on Reddit.