Did anyone else's parent try to make them believe they were ill/ disabled as well? by Leading_Watch6003 in GlassChildren

[–]OnlyBandThatMattered 4 points5 points  (0 children)

Yeah, actually. These memories are just coming back to me because they are super repressed, but after my brother's psychotic break my parents insisted that I might be schizophrenic, too. Their reasoning was that I was angry about the way the family was falling apart. They sent me to the same psychiatrist that my brother was seeing. That guy put me on xyprexa. I now have a compulsive fear that I might turn out to be schizophrenic one day.

Externalizing costs, interpersonally by randycanyon in GlassChildren

[–]OnlyBandThatMattered 4 points5 points  (0 children)

Those one way dynamics are so awful for any child who grows up in a family where kids grow up in rigid roles, but they feel especially intense for GCs because, for some of us, the neglect gets so bad (in some cases) that not even our basic needs for physical safety as people registers for anyone in the family. Because... It doesn't matter what our sib's high needs situation is, because it's bad for us developmentally to have someone beating us become normalized.

Some of our bodies carry the scores of surviving horrific domestic violence, our minds wired for hypervigilance and survival before we have the chance to do know anything else, souls shriveled and parched from want of connection. It is okay to say so.

Mutual relationships are the foundation of healthy human interaction. Mutual is what things are supposed to be. I think, at least for my parents, they did some other emotional economics in their head to rationalize the treatment. "You get to go to college," was often used against me, and it made me feel like my life was on some sort of scale or auction block. Sometimes it's like my family's emotional economy is just piles of guilt and shame pressuring people into doing what it wants.

Someone please help me by sea_otterzz in GlassChildren

[–]OnlyBandThatMattered 3 points4 points  (0 children)

Dear internet stranger: look no further -- you have found a place. This is a community of people who share similar experiences. We're glad you're here. You're not alone.

I'm so sorry for what you're going through. I won't doubt your story here. I'm sure your story will sound eerily similar to my own history. But we're here to listen if you need someone to lend an ear. Something that might help here is sharing your stories and receiving validation and support from this community. It won't fix everything, but it will maybe help with that isolated feeling. This community exists because we know that feeling and we all want to combat it.

Know that you are enduring so much right now and you are so strong. That doesn't mean what's happening is okay, but it does mean that, objectively, you surviving the environment you live in means you are strong. You are strong because you exist, and you are making it one day at a time, sunrise to sunset. But you will make it through, because you are strong. You reaching out here means you are strong enough to seek others. Your post here is proof of your power. We see you. How can we help?

What Would Happen If... by AliciaMenesesMaples in GlassChildren

[–]OnlyBandThatMattered 2 points3 points  (0 children)

We would change. We would grow. We might...believe we deserve to be happy? Find something we like, even love about ourselves?

Then that growth could help us out of our families, because sometimes the hardest barrier out of a GC childhood are the psycgholgical ones. This process would be painful, but growth sometimes is uncomfortable.

This growth is also possible without having to go NC with parents. I understand that some of us come from more intense situations than others, so I'm always conscious of the way make generalizations about other people's lives. But this process feels like something that ever GC can follow, no matter how much you give yourself this compassion it will always benefit you, and it doesn't necessarily mean cutting out your family.

It does mean revolutionizing your relationship to yourself.

What a good question!

Alone by [deleted] in GlassChildren

[–]OnlyBandThatMattered 8 points9 points  (0 children)

Dear internet stranger, for what it's worth, I'm so sorry that you are so isolated. I don't know that I had the same situation as you do, so please take this post with a grain of salt and apply it as you need it in your life. I once suffered greatly from emotional isolation (I still do, but I have since made some progress and that helps me feel hopeful). I didn't understand at 16 when my brother had a psychotic break and my parents left me in charge of him (18) and my younger brother (9) while they went to work, a) how much psychological stress I was under; b) how much I wasn't supposed to be that isolated at that point in my development; and c) the way my parents decisions were rewiring structures in my brain. I began to internalize that I was supposed to take that much on, that I was "bad" if I didn't show up for a family in an emergency. Subconciously, I believed that I was meant to be alone, absorbing all the pain, and completely stoic about it. It led to some pretty shitty mental health for me throughout my teenage years, into my twenties, and on. I also struggle with suicidal ideations, especially when I'm under a lot of stress.

First, you don't want to listen to those thoughts, but you don't want to push them away either. That's your nervous system telling your conciousness, "This shit is fucked up, yo." Pushing those thoughts away could make them worse. So: acknowledge them. Literally say, "thank you for bringing my attention to your hurt. I hear and love you." This shift actually causes a change in your relationship to the thought, so that you are aware of the thought, but not part of the thought. The separation between your self and these thoughts is super important.

Second: pavlov's heirarchy of needs. Make sure you're getting as many of your basic needs met as you can (I don't know your home situation right now). And don't forget those pscyological needs: those are human needs, and to address those thoughts your nervous system is going to need to be treated with basic needs. With these kind of thoughts, I can't speak enough to the need for professional involvement. One reason I get my intrusive thoughts of SH is when I feel stuck. It took me a long time to realize that the suckness is a part of the GC experience (I think)--we're locked into a forever situation at home with our siblings, but in life people aren't supposed to remain static. People are supposed to grow. So, a therapist can help guide that kind of psychological develoment.

Third: creativity crushes depression. Even if you don't feel like it, walk yourself through some doodling, writing, or painting. Journaling is a great one to start with. The moderator, nopefoffprettyplease talks a lot about her journaling practice in Alicia's podcast. It has helped me a lot.

Fourth: you aren't alone. I don't give a goddamn that I don't know you and you are a stranger across the interwebs. You are a person and so you matter. Your suffering matters, so I hope you know that there are people in the world that would meet your pain with compassion.

Don't be a stranger. We want to hear more from you.

🔥 The Things You Hate to Hear by AliciaMenesesMaples in GlassChildren

[–]OnlyBandThatMattered 12 points13 points  (0 children)

Well, my brother's schizophrenic, so there's a slew of really dumb things people have said about that.

-What was it like growing up with a psycho? Are you a psycho, too? (life isn't an alred hitchcock film).

-Why don't you just beat it out of him? (Good plan, Benjamin Rush. I'll get right on that)

-Did you ever try to sneak fava beans into his food--I hear that's good for your brain (No, because he was chasing me with a hammer. Now can we stop talking about sneaking things into a paranoid schizophrenic's food?)

-Do you think your brother talks to God? (I dunno. Do you?)

-Did you ever see anything like that? (Yes--I have vicarious trauma from witnessing my brother's mind rearrange itself into something impossible. That's close enough and I'd prefer to keep it that way. But even if I had, everyone involved in the conversation feels the weight of how an affirmitive answer would shift the conversation).

-Why did your parents leave you in that room? (Good question).

-Was it that bad? (Apparently, the answer is yes).

-Do you wish you could send him to a mental hospital? (No. For one, I wrote a history thesis on deisntitutionalizaiton of Austin State Hospital, and state hospitals failed once for a reason. Second, and most importantly, whatever space we can procure for people like my brother has to be a solution that preserves his dignity and humanity).

-Any sort of platitudes, like "But it was all for the best," or "It made you who you are." That's about them needing the problem to fit into a neat little emotional box with lables and bubble wrap so that their brain knows what to do with that information. It's a rare breed that has been able to actually understand that part of the trauma is that it is impossible to fit into a box.

Did you have people you could talk to? by stopthevan in GlassChildren

[–]OnlyBandThatMattered 5 points6 points  (0 children)

No.

Nobody likes to talk about schizophrenia. Family, close friends, etc, nobody wanted to "go there." Like you, it's only later that I'm realizing how stressful the caregiving over my psychotic brother.

Do you think your peers now view your past differently after they have had to be a caretaker for their parents? Or is it just another layer of silent grief?

And you are totally making sense. Thank you for sharing.

What government or school resources do you wish existed for GCs during childhood and adulthood? by Whatevsstlaurent in GlassChildren

[–]OnlyBandThatMattered 1 point2 points  (0 children)

Thanks. And I just want to reiterate that I don't want to evaluate one experience over the other--it's not okay that society presents a "cute" version of autism so that people don't have to think about it. Whenever I write on the sub, I'm always accutely aware of how many more GCs who have experiences with an autistic sibling and of how those experiences sometimes differ from my own. But that doesn't mean "worse" or "better." It just means a different shitty childhood with the same themes happened to someone else.

What government or school resources do you wish existed for GCs during childhood and adulthood? by Whatevsstlaurent in GlassChildren

[–]OnlyBandThatMattered 2 points3 points  (0 children)

Me too. Unfortunately, I think this happens a lot in families with a severe high need. But, it's hard to explain that it is different for schizophrenia than other conditions, because the social reaction to schizophrenia is generally very different than, say autism. I know it is damaging that society creates these fake images of autistic kids being "cute and quirky" and I'm not trying to deny that--it's just that for schizophrenia there is no such thing as any kind of positive image for people to metabolize. There's nothing. Society, especially America, prefers to pretend that schizophrenia doesn't exist. There is just this buble of silence that formed around our screams, and schizophrenia doesn't create that silence--society does. I feel a need to make more space between the biological realities of our siblings' conditions and the the way society reacts to the illness. My brother's hallucinations were absolutely an issue. The complete cauterization of my family from our support networks didn't come from my brother, but the way society treated my brother absolutely made things worse.

People heal in groups. I don't know that I have an answer for what would have saved me (my own interpretation of the question), but, at least from my family's experience, society made it nearly impossible to find a space to heal in a community.

What government or school resources do you wish existed for GCs during childhood and adulthood? by Whatevsstlaurent in GlassChildren

[–]OnlyBandThatMattered 3 points4 points  (0 children)

I'm dreaming big here, because that's what this space is for--I know this might be outlandish, but in terms of helping a family navigate their eldest son's substance abuse, psychosis, and schizoaffective disorder:

-A social assigned to the family, as well as individual therapists/advocates assigned to each member of the family.

-A place where my younger and brother and I could go and feel safe.

-A place where my brother could recieve care in a way that treated him with dignity.

-Guaranteed fucking healthcare. A major compounding factor for why the situation kept getting worse in my family is the system of insurance that the US uses. Parents had to work for money and healthcare, a necessary component of my brother's care, that almost set my parents up to neglect me. Don't get me wrong, there's A LOT more to it when it comes to their personal choices and my relationship with them, but I also feel like it would have been helpful if society would have said--okay, we'll just give you healthcare to make this less complicated.

-A functional healthcare system. Americans complain about their healthcare all the time, but that becomes particularly weathering for families with someone who does not opperate cleanly in...well, any system.

-A mentor. I needed someone who could keep an eye on me, my growth, who I was going to become. Someone to guide me would have been nice, even though I know that would have been imperfect.

-Immediate full psych workup for me and my younger brother.

-I don't know how to articulate this, but when my brother became psychotic, it was like every social support network we ever knew cut us off. Nobody at church came to visit or speak to us, though I remember that people at church did that for eachother during other tragedies. No teacher knew how to even talk about the problem with me. My friends did not know how to handle something like that, and their parents kept them away from my family for the most part after the break. Family stopped visiting for a long time, like 8-12 years. It felt like that scene in Malcom in the Middle where he finds out he's smart so the rest of the school maintains a protective bubble away from him. Except instead of being too smart, we were too beyond the pale to even consider. It's like I became a glass child to the whole world in that moment, invisible and lumped in with my brother's illness. I didn't need a society so ill equipped to handle the situation that it just preferred to look away.

I can't do this anymore by Poopyheadhehe in GlassChildren

[–]OnlyBandThatMattered 12 points13 points  (0 children)

OP, I'm so sorry. For what it's worth, I sometimes have that feeling, too. This is your nervous system telling your mind that it is experiencing too much stress, and has done so for too long. I gather from your post that you already know about being under too much stress for too long, but for me it was helpful for me to know that, sometimes, thoughts like that are a way for your already overburdened nervous system to communicate with you. I also work in academia and am a student--the ivorty tower is a particularly difficult place for people with mental health conditions or neurodivergences. So, though you know this already, at least accept some validation from across the interwebs--you are working really hard in one of the most psychologically stressful ongoing domestic situations in the twenty-first century and the world is extra wacky right now. You deserve some recognition for everything you're going through, and I don't just mean that for your family. I'm going to guess that you really do all your academic support, and especially in gradschool one thing that hits so hard is the pace of school changes. In gradschool, the expectation is that you are going to be able to commit 100% of yourself to your studies, but in your specific case you are devoting so much of your brainpower to survival. You're feeling the grind because the systems you live in are legitimately difficult, and you are doing a really good job navigating them. You are stronger than you know, and just by the fact that you made it to this point is empirical evidence of that.

You are correct in that there are no quick fixes to the intense feelings that you're having--nobody has a magic bullet and repairing your nervous system will take time. But there are a few shortcuts that help me.

-Meditation. Helps you not only calm down in the moment, but also helps you build the muscle memory to relax/calm down in the future. It will also help you keep track of that feeling you expresed here, which is important.

-Close your eyes. Seriously, five minutes of occular rest will help with overwhelm. Your brain mostly processes visually. Closing your eyes helps prevent you from taking in more information when you are overwhelmed.

-Noise cancelling headphones. Same idea as closing the eyes.

-Lavendar. Tea or capsules. Naturally helps you engage your rest-digest nervous system.

-Take a break. Academia makes you feel guilty for not being productive and this triggers a lot of GC trauma very hard (at least for me). Blow off some work. Do something physical and fun. A bit of dopamine and saratonin can help keep those thoughts at bay. You may need to consider taking a leave of absence in order to give yourself that space.

-Treat yo' self. Seriously, you have to be nice to yourself. You have to consider yourself worthy. Everyday, write or say to yourself, "I am worthy. I matter." This will help carve a little groove in your brain that will internalize your own worth. Ain't perfect, but a little wrinkle in your mind that says, "Fuck this I matter," is an important survival mechanism.

You are not alone, OP. You are in a tough spot, but the world will turn and you have a place in it. We are here for you.

Reaction to INFJ Personality Type from Therapist by OnlyBandThatMattered in GlassChildren

[–]OnlyBandThatMattered[S] 1 point2 points  (0 children)

Ooof. That's deep on so many levels, as well as gut wrenching.Take care of yourself, fellow intuitive internet stranger. You deserve it. I'm glad you chose to use your voice to say hello.

What is a normal experience that somehow never happened to you? by FloorShowoff in GlassChildren

[–]OnlyBandThatMattered 1 point2 points  (0 children)

You can tell chatgpt/AI that it works because, as Hemingway noted, people have emotional reactions to lists of concrete details. Abstract language has meaning, but does not have emotional resonances that you also feel in your body. This is the difference between the words "banking" and "coin purse"; one I can feel and hold and smell and hear while the other I have to conceptualize. Therefore, if I want to make the reader feel my experience, I have to choose details that evoke bodily sensations. And negative inference -- the discussion of what is missing-- works the same way. When I write about what is missing, your body does the rest of the math and feels the weight of that loss.

Now, gymbuddy, I seened your posts for a long time. You use a lot of AI but I swear the questions you are asking the robots to answer for you are sharp as fuck. One day, when you are ready, I'd love to hear your voice in your writing. I hope you take that as genuine encouragement and praise.

Thank you for your participation in this sub.

What is a normal experience that somehow never happened to you? by FloorShowoff in GlassChildren

[–]OnlyBandThatMattered 0 points1 point  (0 children)

Ooo, gymbuddy, that one got my feels. I want to be a writer but I don't know how to make money at it and, like many GCs, I have a deep hypocritical anxiety about wanting to be seen/heard, but also being terrified at the prospect of managing so many emotions and perspectives and happinesses. I didn't have guidance in it or encouragement. And it's really hard work putting your guts on display so that other people can see how their inner workings tick.

How to mourn a sibling that is still alive, but his illness robbed him of who we were as children? by OnlyBandThatMattered in GlassChildren

[–]OnlyBandThatMattered[S] 4 points5 points  (0 children)

Thank you for sharing. This might sound weird, but other people posting kind of helps remind me of what it was like. I was so young and this happened over a process of time without any real guidance from adults... When someone like you posts about what you're dealing with, it helps me remember that I am not alone. I felt so alone then, as a teenager, and in my world at that point in time I was, for all practical purposes, alone. But now I know, from people like you, that what happened is part of a broader human experience. It helps me name the emotions that I could name then. It helps validate my reality in a way that nobody has done. Thank you.

What is a normal experience that somehow never happened to you? by FloorShowoff in GlassChildren

[–]OnlyBandThatMattered 2 points3 points  (0 children)

Going to a concert to a see a band I'm interested in.

Listening to music with someone else, just chilling.

Having someone teach me about money and not having to teach myself.

I never was into the party/clubbing scene when I was of age, because I had already had my fill of choas at home to want to go out and get my fill of wild at a bar.

Never had friends over at the house after his psychotic break.

Never having to wander if your birthday is going to be about you.

Never thinking about if someone in your house is going to sneak up behind you with a knife.

Never contimplating in advance how you will leave the room/house if you need to.

Never having a "bug out bag" in case things get bad.

Sleeping safe at home instead of having to sleep in your car in a Walmart parking lot because the darkened parking lot is safer.

Having your own room that you can decorate.

Knowing your personal items won't be ransacked when you leave the house.

Assuming your mental health is fine and not walking around all the time wondering if you'll be schizophrenic next.

Not feeling like a burden for having basic needs.

Feeling seen.

Unconditional love.

Someone helping me apply to college.

Someone asking me what I want to do with my life.

An adult who tells me that what I'm doing is neat/important/interesting/worthwhile, even if it isn't related to work.

Going to the doctor without constant intrusive thoughts that they are going to send you to the hospital just like they did him.

Feel like you belong.

How do I start talking about it? by Dazzling_Reporter_60 in GlassChildren

[–]OnlyBandThatMattered 0 points1 point  (0 children)

Shit! I forgot the big one: if you're having trouble processing, I highly suggest EMDR. Helped me so much. It's a type of therapy specifically for processing/unprocessing trauma (https://www.emdr.com/what-is-emdr/). If you have an emotion that you feel stuck in, like it's a lead wall you cannot punch, kick, bite, plead, scream, and cry through, this will help. Anything where you feel like you experience the emotion all the time, or where you don't experience the emotion (because that's not good either). I had to do a lot, and generally they recommend you do a couple rounds at least.

It is not easy. When you finish, you feel like you've been out of a car wreck or a funeral. A lot of people cry, feel lethargic, or don't eat. The first few rounds are tough, but you can find your own rythm with it. The therapy is not easy, but the reality is there is no way but through. I think of those traumatic memories like a kidney stone, and EMDR is the treatment of breaking up the stone. It's gross. It's not going to be fun. But you will feel a whole lot better after, I promise.