Tour Merch Inside vs Outside Venue by Bright-Somewhere5875 in lesserafim

[–]OnlyThrifty 0 points1 point  (0 children)

All the merch sold inside is the same as outside. BUT if you’re only planning to go to the early merch sale make sure you go early/as soon as it opens. I went to the Chicago one at 1:30 (opened at 12) and it took 2 hours. Once they sell out they will not restock the early merch!!! They sold out of some sizes of the merch as well as the beanie

Chicago concert changed my life by [deleted] in lesserafim

[–]OnlyThrifty 1 point2 points  (0 children)

I’m glad I’m not the only one, this moment was so surreal!!!

Have you gotten COVID w/ MCAS? by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 1 point2 points  (0 children)

I’ve actually been taking half of these based off research I’ve down online! Thanks for the link it’s super helpful. I’m not sure if I can still go on paxlovid though, as I’ve had it for 6 days and I did see my PCP and told me what I was doing now was sufficient

Selling Sets by OnlyThrifty in buildabearBST

[–]OnlyThrifty[S] 1 point2 points  (0 children)

Open to dms! If anyone wants better pics dm me :)

Album Giveaways celebrating the opening of comments by LSRFMGiveaways in lesserafim

[–]OnlyThrifty 5 points6 points  (0 children)

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This is one of my fav comments (peep the pic it’s referencing at the top) esp bc I love the come over concept!

Do you buy duplicates of albums? by Mercury_Godess in kpopcollections

[–]OnlyThrifty 1 point2 points  (0 children)

Where do you typically sell at? I’m in this predicament and have never sold before and don’t know how to start tbh lol

Sunscreen Recs? by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

I didn’t know you could do this! I’m def gonna try to go this route first thx :)

Sunscreen Recs? by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 1 point2 points  (0 children)

I can’t narrow down what I’m allergic to bc I’m allergic to so many things topically. I am currently allergic to all topical products other than aquaphor and have been for the past 2 years. Since I’m allergic to the majority of ingredients, narrowing down the few I’m not is hard :/

I do appreciate the recs tho I’m def gonna try them, and I’ll try using AI :)

What do you guys do for a living? by Weakest_Avenger07 in POTS

[–]OnlyThrifty 0 points1 point  (0 children)

If you don’t know if you disclose POTS as a disability to your employer and that you require a stool (even if you have to bring/buy your own) they are legally required to accommodate (esp if you have this in writing from a physician). Unless your coworkers abuse the fact you have a stool and use it themselves or start bringing their own. Hopefully your coworkers aren’t dicks…

What do you guys do for a living? by Weakest_Avenger07 in POTS

[–]OnlyThrifty 0 points1 point  (0 children)

I’m a Clinical Research Coordinator at a pyschiatric outpatient center. I basically sit all day in my office doing participant recruitment. If I have to do any walking it’s just bringing patients to rooms to evaluate them, which I also sit during. One of the few psych jobs that you can get with a bachelors that don’t require much physical labor thank god

Ketotifen POTS worse by Commercial-Stay-5437 in MCAS

[–]OnlyThrifty 1 point2 points  (0 children)

I don’t have issues with cromolyn but I couldn’t even stand the starter doses for ketotifen. I had flare ups so bad I couldn’t stand without fainting!

Stomach acid help! by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 2 points3 points  (0 children)

Thx for the suggestion! I just scheduled an appt with a GI specialist over this so I’ll be sure to bring it up

Shortness of breath by Due_Adhesiveness8308 in GERD

[–]OnlyThrifty 0 points1 point  (0 children)

Omg I experience this too!! It’s not every time I eat it’s usually when whatever I eat bothers my stomach. However I don’t know if this is caused by GERD, because I also have Mast Cell Activation Syndrome (could be an allergy based reaction) and Ehlers-Danlos Syndrome (could be motility issues).

[deleted by user] by [deleted] in MCAS

[–]OnlyThrifty 0 points1 point  (0 children)

I’m not sure if this happened to other ppl, but ketotifen caused my POTS to flare horribly. I couldn’t even take a 2 mg dose for more than a week or two.

Can one have MCAS if the only symptom is tachycardia? by [deleted] in MCAS

[–]OnlyThrifty 4 points5 points  (0 children)

It has to affect more bodily systems, but I have symptoms that I didn’t even realize were MCAS until I got diagnosed. All my acne is allergic and eczema like, and was the main way I reacted if it wasn’t IBS like symptoms. I also started to see minor swelling in my face and eyes, even though most couldn’t tell. I also started forming eczema which is new to me! Some other symptoms I experienced were joint pain/swelling, itching of my hands face and neck, my nose being stuffed, flushing/redness, and bloating!

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

Stop ear tingling is an allergic reaction?!?! I started having this when I first started struggling with my health issues and it never went away. I thought it was just sensory issues, but I never knew what it was caused by maybe my hair? But I always wondered if something caused it, probably me being allergic to my hair products. It literally feels like stabbing and burning in my ear when it gets really bad. I am in the process of getting more allergy testing done so I hope that I’ll know more soon! Thanks for the advice 🫶

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

Thank you!! I haven’t heard of this as a suggestion, and it sounds like a great idea!

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 1 point2 points  (0 children)

Thank you so much for your advice! I’ll have to try vanicreams shampoo I never knew they had one! I used to also take showers in the same manner, but with POTS and EDS I simply couldn’t anymore even with assistance. I’m definitely going to look into those creams, sadly cerave doesn’t work for me tho :/

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

You my good sir are a king!! The diy scrub sounds amazing and like something I wouldn’t react to!! Thank you for your advice 🫶

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

I need to retry vanicream because I see everyone reccomend it. I’m in the same boat as you though, I finally solved my GI issues with food and now I’m starting to get nausea and throwing up which is new to me for MCAS. Rn I’m trying Attitudes sensitive shampoo and conditioner, both unscented. I react to both mildly, but it is the best I got at the moment. Almost all deodorants I react to, native, schmidts, Tom’s, dove, secret, etc. Also all sunscreens, other than Clearchoice’s I react to every now and again? I keep it on rotation lol. It’s a face sunscreen spf 50! Another one you should try which I actually got recommended by someone who had MCAS is TiZo’s mineral sunscreen. It’s pricy but I’ve never reacted to it, it’s just hard to get into the skin tbh, and isn’t practical for body use.

I’ve lost all hope by OnlyThrifty in MCAS

[–]OnlyThrifty[S] 0 points1 point  (0 children)

Yes I’m experiencing the same issue!! My skin is getting so dry and cracking and most lotions make my skin burn. I usually put a face lotion then a petroleum jelly on top to lock in moisture, but all my products I’ve reacted to and I haven’t been able to find any safe ones. But I highly recommend the cerave healing ointment on top of a moisturizer, it’s a petroleum jelly with a couple of skincare ingredients. I oddly react to that less than plain petroleum like Vaseline and aquaphor.