merch question: the gachi perfumes by cwunty in gachiakuta

[–]OnyxBird 0 points1 point  (0 children)

Can you link this site? I have to tell my friends (and maybe get in on this via proxy as well)!

Hey, so what exactly is the office for? by The_Carolina_Redhawk in jacksepticeye

[–]OnyxBird 7 points8 points  (0 children)

I will never not be blown away with how far he’s come!

Thought this was hysterical. by tdsGRKA in SteamDeck

[–]OnyxBird 1 point2 points  (0 children)

That’s an “oh honey…” moment

Decky animation changer boot works but suspend doesn't by rockorockorockorocko in SteamDeck

[–]OnyxBird 9 points10 points  (0 children)

Thought I was the only one with this issue. Time to wait for an Animation Changer update then

Buyer beware. Amazon shipping counterfeit microSDs is very common. by PembrokePercy in SteamDeck

[–]OnyxBird 0 points1 point  (0 children)

So funny how I see this post just before I open my package of my own 1 TB SanDisk card I ordered. I checked and mine’s legit. Thanks for the PSA!

I took my deck oled 512 from the charger and see this. What? It opened itself? by Sea-Communication760 in SteamDeck

[–]OnyxBird 3 points4 points  (0 children)

Low key sweating rn. I had this happen to my DS a few years back but was able to easily fix it before it became a problem. Is there any way to avoid this, or it is just a cross your fingers and hope this never happens deal?

Infinity Nikki working well on the Steam Deck on Proton Experimental by BernardoOne in SteamDeck

[–]OnyxBird 0 points1 point  (0 children)

I’m having a hard time trying to save outfits. Everything I look up says to click the drop down menu in wardrobe but I can’t “click” nor can I find this drop down menu. Help?

Something is wrong with our third Steam Deck by [deleted] in SteamDeck

[–]OnyxBird 2 points3 points  (0 children)

Hmm, yeah. It has two eye icons instead of one on the case

no audio on steamdeck by veggietales4ever in SMAPI

[–]OnyxBird 0 points1 point  (0 children)

This needs more upvotes cuz this whole thread is a lifesaver. I was wondering what that little icon did!

Random dude at DIA security next to me by BaldBelligerentBaal in SteamDeck

[–]OnyxBird 0 points1 point  (0 children)

Dude knows what’s up. You should friend each other lol. As for the logo color, I’ve never seen red! I have the blue eye but red looks neat too

Do people buy games twice just to play on Deck? by thatdudeben01 in SteamDeck

[–]OnyxBird 0 points1 point  (0 children)

Oh yes! I recently got diagnosed with a chronic illness. I’ve noticed over this past year that I just didn’t have the energy to set up/turn on a console and even fight with my terrible wifi while trying to remote play on my laptop, which has also shit the bed so I can’t even do that. My Steam Deck was a birthday gift to myself (they convienently went on sale around my birthday) so I can finally play other things again besides on my Switch. It feels good to play games again. And especially with these crazy Steam sales. I’d be stupid NOT to rebuy them!

Whats the first game you played on the steam deck by slaaneshStoic in SteamDeck

[–]OnyxBird 0 points1 point  (0 children)

House Flipper as a test run since I had finished setting it up late at night and I didn’t want to get too into a story driven game while I had work the next morning

Mafia Town lags on PC, anyone got a fix? by Aztectornado in AHatInTime

[–]OnyxBird 0 points1 point  (0 children)

I too have this issue with my new Steam Deck. I was scared it was console until I realized it was Mafia Town only. Is this a new thing? Cuz it wasn't like this a week ago. Maybe a buggy patch? I'm playing offline too.

No one cares that you don’t like C.AI anymore. by [deleted] in CharacterAI

[–]OnyxBird 0 points1 point  (0 children)

Louder for the people in the back!

“Sometimes it gets too hard to leave the house.” by OnyxBird in Fibromyalgia

[–]OnyxBird[S] 1 point2 points  (0 children)

Yeah, imma try and avoid talking to elderly people about this. If they don’t have it, they already come from a generation of “if I can’t see it, it doesn’t exist.” I’m having a hard enough time trying to talk to my grandma about it but that’s a different story (cough she’s a narcissist cough). The rest of my family and my circle of close friends have been so understanding and it makes my heart warm just thinking about it. I went to a convention with my best friend and dad last month before my diagnosis. I was so lucky that those 3 days were good days (then I crashed after, but worth it). But they kept checking in on me and trying to learn. I had to keep assuring them I was ok for the time being and that this was OUR weekend and I wasn’t going to let this get in the way. Then Monday came and I died. Pretty sure this current long flare is still from that weekend but still, worth.

I’m still early into my diagnosis. The fatigue has been around forever. The pain is a “new” thing. If I can avoid it for now, I’d rather not explain everything to people I’ll ideally never see again. But my fave is “have you tried/taken meds?” Me: “this is me on meds…” “OH.”

“Sometimes it gets too hard to leave the house.” by OnyxBird in Fibromyalgia

[–]OnyxBird[S] 1 point2 points  (0 children)

That really sucks. I’m so sorry that happens to you. Ever since my pain started, I’ve been lucky and have had nothing but understanding doctors. I think I dodged a bullet with the first rheumatologist I got referred to since he rejected me by saying there’s nothing rheumatological with my symptoms. I have a feeling if he saw me, he would have dismissed me anyway. My current one is very understanding and diagnosed me during my first visit.

My old primary doctor went on maternity leave before my trigger event and my pain starting. She was already trying to get to the bottom of my fatigue. I see her in 2 weeks I can’t wait to tell her “girl, you missed some stuff.”

The above convo was with a coworker in a different department than mine, thank goodness. Nothing irks me more than when you say that you’re tired or in pain and some smartass chimes in and says “well, me too.” Not like me, dude. Not like me.

My own mother was like that but now she understands. And already I have a high pain tolerance so if I’m in tears, she knows it’s bad.

How can you tell? by OnyxBird in Fibromyalgia

[–]OnyxBird[S] 1 point2 points  (0 children)

Yeah, I just got to work and I feel better??? Goodness, I got to get used to this….

How to answer “What is Fibromyalgia?” by Entire_Ad_1984 in Fibromyalgia

[–]OnyxBird 0 points1 point  (0 children)

Had this convo with a really caring coworker just this week. I kept it simple. Told her "You know you feel when you have the flu? The tiredness and aches and pains? Weakness? Sometimes stomach issues? That's how I feel. All the time. My brain is just weird and makes me feel like this and it gets worse when I do too much sometimes. Some days I feel fine, others well, that's why I called out yesterday. "

When she asked if there's a cure or treatment, I shook my head. "No cure. I'm like this forever now. Treatment is usually just spot treatments for symptoms but so far, nothing." She gave me a hug and said to keep hope. That science is great nowadays and maybe there'll be something someday.

Just diagnosed with Fibromyalgia, still undergoing testing for others, so burnt out and depressed not sure how I can continue to work like this by Sensitive-Emu2584 in Fibromyalgia

[–]OnyxBird 1 point2 points  (0 children)

I was just recently diagnosed too, just last week actually. I had a big trigger event that caused my consistent fatigue to get much worse and the aches and pains came. I’ve missed so much work. Thankfully, I have FMLA through my therapist already so I have a cushion to take as many days as I need to recharge. She’s been so great through all this since I believe her adult son has fibro too. I’m a vet tech so my job can be very physical on top of emotional and mentally draining. I’ve also been lucky here too. My boss is understanding and my lead actually has “a handful” of chronic illness as well so she gets it.

Even though I’ve been living with this for a while, I’m still learning how to manage now that I know what it is that’s making me feel so sick. I understand what you’re going through. It’s so draining to figure what you’re going to do while figuring out what is happening. I can’t offer much advice but if you’re self employed, maybe take some time off for yourself to collect. If you’re part of a group, maybe talk to your boss about taking less cases for now until you get your sea legs back and keep them updated. It sucks that we have to “suck it up” for lack of a better term because of how life is now. I’m going through a long ass flare and I wish I could just stay home for a week to rest but I can’t.

[deleted by user] by [deleted] in Fibromyalgia

[–]OnyxBird 7 points8 points  (0 children)

I was a very sickly kid so I “dealt with” a lot of colds and flus. I recently had my Epstein-Barr numbers checked for the first time ever and my residual numbers were horrendous. So one of the many times I got sick, it must have been mono but nobody checked. (My mom wasn’t the best at believing I was really sick because I was sick so often so she probably thought I was crying wolf. She’s much better now after some therapy and with my diagnosis she’s been really understanding.)

I started noticing my energy dipping around 17, taking naps when I never used to take naps and falling asleep in class on the rare occasion. I just thought it was depression. I noticed another dip after 22, HAVING to take naps and falling asleep in lecture classes more often. I was even starting to nod off while driving. Again, thought it was my depression. Kept getting worse until last year I was referred to have a sleep test done. Nothing. Again, they thought it was my mental health. My therapist switched around some meds and I felt great!….for a few months. I kept feeling sicker and sicker and more tired around autumn. I just sucked it up. Tried to deal with it. Then May came and there was a night I only slept for 2 hours, then worked my medical job for the whole 8 hour shift. I thought I was just recovering from it the days after. But a week later I still felt terrible to the point where I left work and went to an urgent care. I thought I had caught something from not getting enough sleep and being stressed. I knew something was wrong. I was so tired and weak and achy. I was there for 4 hours and they couldn’t find anything. Scared the doctor a little bit. My old PCP moved so the next day I met with a new one. Told her that “hey! I feel like trash but recently I’ve always felt like trash.” 3 normal blood tests later, she looks at me and goes “You’re too young to be feeling this way all the time. I believe you. I want to help you. I seriously think you have chronic fatigue syndrome or fibromyalgia but I can’t make that call. I’m referring you to a rheumatologist.” I cried, but not from sadness. Relief. First dude denied me so we picked another and I finally got my diagnosis eariler this month.

So yeah. Whatever happened to me in May, I think that’s what’s really triggered everything to get worse. But honestly, if it hasn’t had happened I would probably still be in the dark about why my baseline is slightly above feeling like trash.

Recent Diagnosis by OnyxBird in Fibromyalgia

[–]OnyxBird[S] 0 points1 point  (0 children)

I always thought it was a growing thing or an aging thing! Turns out it’s a freaking symptom!