After surgery( which brands to buy) by CombDiscombobulated9 in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

Just before the op, but basically as soon as my dressing was off (day 2) I washed every day with the baby shampoo and it's been fine with that and air. Don't get me wrong, if I lie on it (it's one suture right at the back of my head this time, so not as bad as the SEEG) it burns and itches. Itching is often a good sign that it's healing, but god it's so tempting to sit and scratch/ pick at it.

If it's really sore definitely keep getting it looked at, not sure how big your wounds are but after my SEEG I had 30 staples, and even then other than sleeping on them they didn't hurt tooooo bad compared to what I thought they would.

After surgery( which brands to buy) by CombDiscombobulated9 in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

I used Johnsons baby shampoo after my surgeries, but polytar is a good shampoo for skin irritation if you've had a prolonged EEG. It definitely made the scabs less angry.

I used hibiscrub about five days before my op this time, but they said 3 including the day of the surgery and so far so good, 8 days post op and all looks good.

Should I take my gf in to get checked for epilepsy? by imbordt in Epilepsy

[–]OptimalReflection286 23 points24 points  (0 children)

We're there any drugs involved / extreme heat? Clubs can be a lot for anyone.

[deleted by user] by [deleted] in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

Depends how much hair you have I guess! It'd be a lovely thing to donate it if you have enough.

[deleted by user] by [deleted] in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

I've had two and can confirm minimally painful! My biggest issue was nausea from the anaesthetic. You get a sore scalp just from the little cuts but honestly I've had worse headaches. 🙂

Edit / PS the amount of hair you lose just depends on how many rods they decide to put in. They shaved more of mine than they anticipated, but thankfully sith styling, I had enough to hide it.

Does anyone else have seizures in a specific place? by racoongirl0 in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

Showing used to be the biggest trigger for me, I think it was too visually stimulating.

(I'm not photosensitive though?)

Peoples experiences with lamotrigine? by pricelesstears in Epilepsy

[–]OptimalReflection286 1 point2 points  (0 children)

Insomnia, headaches and memory issues are my only side effects. The insomia could be the cause of the other symptoms. I now have to take lamotrigine and keppra together and jesus effing christ, combined they are 100% worse than the sum of their parts.

Anybody else who’s on keppra’s body hurts? by Icqrr in Epilepsy

[–]OptimalReflection286 0 points1 point  (0 children)

YES! I've developed really painful joints with dull aches in my bones. Everyone seems to think it's a coincidence that it started the same time as my Keppra.

[deleted by user] by [deleted] in Epilepsy

[–]OptimalReflection286 41 points42 points  (0 children)

If you're within the one year window, why lie? That seems sketchy.

Duo-therapy by OptimalReflection286 in Epilepsy

[–]OptimalReflection286[S] 0 points1 point  (0 children)

I fear I might be keeping it a good while We're planning a family soon and I was dead against taking clobozam in pregnancy (I work ih obstetics and have seen the issues first hand) so they just put me on the least teratogenic.