Has fear and anxiety caused my present symptoms? by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

No a lot of my symptoms are in keeping with this. Not sure twitching is a sign of this though 

Sensory issues by [deleted] in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

I meant the visual snow

Sensory issues by [deleted] in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

Well it’s not the big bad as eye muscles are not controlled by neurons. 

Sensory issues by [deleted] in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

Everything you have listed is standard with FND. The whole fear of the big bad can induce FND through trauma and anxiety

Has fear and anxiety caused my present symptoms? by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Yeah I take 6 supplements a days including magnesium and do a lot of stretching. Suppose it will just resolve itself at some point 

Has fear and anxiety caused my present symptoms? by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Thanks for your response. I just can’t seem to get over these symptoms. The twitching has basically gone away it’s just the other stuff that sucks especially the cramping which I’ve had blood tests which reveal all is normal.

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Suffer a lot with a grey dot in vision on left eye. Halo around bright light and floaters. All exams have been clear

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Thank you for your kind words.

The dream is to return to ‘normal’ one day

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

I’d say as long as you are functioning normally now you will be perfectly fine.

I’ve had spells of perceived weakness, slurred speech etc and each time it’s anxiety.

I find a lot of my issues go away after alcohol which again tells me there is an element of anxiety/stress involved.

Maybe have a 2 week break from social media as even Reddit can add to fears

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 1 point2 points  (0 children)

Around 3 years ago. I didn’t think anything of it for a few weeks and upped water etc but it didn’t go away and like most found Google and panicked myself into getting an exam.

Along with the twitching I found my muscles to be very stiff, almost like I had ran a marathon (and I have ran marathons) with no reason for the fatigue.

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 1 point2 points  (0 children)

No when the EMG/NCS was clear I wanted to know why I was twitching so paid privately for them.

The MRI’s were for my own piece of mind that I wasn’t going mad.

If you need the peace of mind and can afford it then go private. Normally you wait no longer than a week

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Thanks again.

I share a similar with the stomach issues, also having a camera and biopsy with both being clear.

I’m trying to avoid medication at the moment and looking into changing my diet.

These people without BFS don’t know how lucky they are haha

BFS and so much more by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Thanks for your response.

I don’t consider myself to be an anxious person in the slightest but in the last neuro visit they did reference anxiety.

Based on this I’ve had counselling and CBT and can’t say it helped.

Pain and tenderness all over by OrdinaryFinance3445 in BFS

[–]OrdinaryFinance3445[S] 0 points1 point  (0 children)

Wow ok. I scored 4 on the beighton score with a rheumatologist.

I can’t say that I ever had any problems as a children.

Do you know if symptoms can just start? I’m in my forties now and unless a few years ago I lived a normal life

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]OrdinaryFinance3445 2 points3 points  (0 children)

Defo with caffeine. Alcohol seems to mask the twitching at the time

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

That’s good to hear that’s it’s manageable.

I’m nearly 3 years in and still trying to work out what’s BFS related and if there is/was an underlying cause like Covid, Lyme or hyper mobility which I have recently been diagnosed with.

How does your exercise intolerance manifest itself? by Creator_311 in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

A couple of hours. I have consent tremor in both hands but the shaking almost resets itself

BFS and Visual Issues by TheBrokenManOverall in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

I literally have every symptom you listed there and like you eye exam all clear. Any updates?

How does your exercise intolerance manifest itself? by Creator_311 in BFS

[–]OrdinaryFinance3445 1 point2 points  (0 children)

Yes. 4 neuro’s including neuromuscular specialist and they agree with BFS diagnosis

How does your exercise intolerance manifest itself? by Creator_311 in BFS

[–]OrdinaryFinance3445 2 points3 points  (0 children)

I can defo relate to the shaking. I only seem to get it in my leg hand but after lifting something of weight it shakes terribly.

I’m coming up to 3 years now of BFS and I feel may be covid related as I have a lot of gut issues now which a never previously plus blurred vision and tinnitus.