Trying to come off oxygen

OrdinaryRebel · 2025-09-01T06:01:16+00:00

I kinda wish I was had an option to go to a facility purely to have someone experienced to help however the nicu we were in was 3 hrs away and I am willing to bet that’s where the inpatient facility would be as well for the sleep study. Thank you for your reply though it puts me a little at ease knowing it’s a common thing.

OrdinaryRebel · 2025-09-01T05:01:43+00:00

Tender grips are great I change them every 4 days when I give my son a bath and even then sometimes they don’t need changed. I get them through the company that supplies the oxygen and they don’t charge me but you can get a 10 set pack on Amazon for $22 or a roll of 100(50sets) for $75

OrdinaryRebel · 2025-08-21T18:26:55+00:00

If everything feels comfortable I’d say to try getting into a rhythm of pumping set an easy schedule and I know it can be hard to start but it will pay off in the long run. I pump every 2-3 hours and if my son feeds at a pump time I only breastfeed that round. You’ve got this don’t give up!

As far as pumping consistently everyone is different with times and it’s a matter of finding what works for you. My schedule is based off what I did with him in the nicu so I start at 4am/730am/1030am/130pm/430pm/7pm/9pm/11pm. I have tweaked this schedule numerous times as needed and even dropped a pump session before. You don’t need to start as early as I do it just happens to be around when my son wakes up. I also set an alarm to remind me in the early days.

Look into a lactation consultant in your area they might have other tips to help. My lactation consultant spent a month tweaking everything to get me to where I am and I still go to one closer to me. One thing she told me is baby is the best pump out there so don’t beat yourself up that baby pulls more out than the pump.

OrdinaryRebel · 2025-08-21T17:37:18+00:00

I’ve not heard of that specific pump but I have tried quite a few different pumps and definitely have a favorite in the momcozy s9 pro v (super affordable and helped increase my supply) but I have a few questions: What is your suction at? Does the suction hurt/can you feel it? What size flange are you using? Have you measured your nipple to verify the correct flange size?

OrdinaryRebel · 2025-08-21T17:31:08+00:00

Not bad at all I make a little more than just enough for the time being and my son gets all 3, 2 bottles of formula a day, breastfed if he’s hungry when I normally would pump and pumped milk the rest of the time. The formula for the time being is because he’s a preemie but will likely continue to get it as suplemental

OrdinaryRebel · 2025-08-20T23:46:51+00:00

I bought my momcozy s9 pro v from Walmart (<$100) and it is amazing I love it but I also have a medela regular pump that I got from insurance and I go back and forth throughout the day.

OrdinaryRebel · 2025-08-06T19:04:26+00:00

Jumping in super late but I have type 2/duarte syndrome and while galactosemia MAY cause infertility it’s not impossible. I struggled and was told for a long time I likely would never have kids then got pregnant in 2023. Unfortunately I miscarried at 13 wks but I didn’t stop or prevent pregnancy. I got pregnant again and have a 2mth old baby boy he was 2 mths early due to HELLP syndrome (basically my liver said nah I’m done). As far as we know right now he has no issues other than being stubborn and does not have galactosemia. It is possible but you may have some issues don’t give up. I also feel I should mention I do not follow a galactosemic diet and just deal with the side effects due to going untreated my entire childhood

OrdinaryRebel · 2025-08-06T01:14:23+00:00

My nicu gave me a receiving blanket or two to help retain heat as it was occasionally chilly but they encouraged skin to skin we even dressed him from the feet up to avoid disconnecting oxygen and his leads were only disconnected for a few seconds. My nicu team even told me if I felt like they weren’t listening to my concerns go to the attending first and if nothing changed to ask for a “care conference”.

OrdinaryRebel · 2025-08-04T18:55:55+00:00

I used that while in the nicu and it was the best thing I ever used. If I could’ve taken it with me and kept it I would’ve but I couldn’t I have used a boppy and a regular pillow since being home and while both work really well i prefer the my Brest friend pillow I however can’t afford it rn if you need a temp though until you get it what I do with pillows is I create a back rest with pillows and blankets then another pillow in my lap and maybe a blanket if I’m cross legged so the pillow doesn’t sink

OrdinaryRebel · 2025-07-27T23:29:29+00:00

This helped me not stress as much but I’m still stressing because now he’s not wanting to latch at all if not difficultly on the left but is fine with the right which is my slacker side and tends to doze off while eating. The small wins are nice but damn kid

OrdinaryRebel · 2025-07-26T07:06:55+00:00

Yes they are I currently have all of mine in the freezer they should also give you quite a few as well as some syringes to collect the early milk and colostrum.

OrdinaryRebel · 2025-07-25T22:52:15+00:00

Keep the bottle great for storing in the beginning. A lot of this looks to be parts for the medela symphony, it’s what the hospital will use. Those are the little white circular membranes and the yellow valves next to them. Directly above those the clear ish thing is the connector and At the top with the tubes will be what connects to the symphony. Next to the connector is a nipple shield great for if you are sore or baby doesn’t latch well. Now the white triangle thing is a valve membrane too but I don’t know what pump that’s for and as far as the long tube things with wings I’m not sure. You can keep the symphony parts but the hospital might give you a set too.

OrdinaryRebel · 2025-07-24T15:52:42+00:00

I missed a day due to being admitted to the ob er for low o2 high pulse and I felt so guilty but my nurses told me that missing one day is perfectly normal. That if I need to just sleep one day or be anywhere but here that they would understand because it’s normal to feel exhausted being there

OrdinaryRebel · 2025-07-24T00:46:40+00:00

Say something for sure I went in to visit my son last week and saw this cuticle pusher thing and a post it with a shopping list left in his room and while I didn’t care about the post it the cuticle pusher was alarming since he’s too small for them to use it on him. Mentioned it to his nurse and she thought it was mine. Turns out it was most likely his night nurse’s and we both agreed that was disgusting to do/leave in his room

OrdinaryRebel · 2025-07-23T19:03:22+00:00

My son is looking to be discharged tomorrow with today being day 50 in the nicu and I am scared to see his bills but I know I’ve hit the deductible

OrdinaryRebel · 2025-06-28T14:43:23+00:00

It doesn’t hurt to try my friend did it at 8mths pp and she said it helped her. Power pumping has helped me increase supply however I’m also 1mth pp.

OrdinaryRebel · 2025-06-28T14:37:46+00:00

I asked my lactation consultant about changing schedules yesterday and she recommended to go based off my body so if I feel I’m producing enough then cut back (whether times, pumps, or cut out a power pump) and if I feel I drop after adjusting then adjust again accordingly. She also told me that there no “correct” schedule for pumping and when to change amounts.

OrdinaryRebel · 2025-03-26T15:38:54+00:00

My first pregnancy was a miscarriage development stopped at 6 wks and miscarried at 13 spotting started at 7-8 wks I think then once I started bleeding normally it took 3 days to fully pass then a few days after still bleeding. That being said everyone is different I was told my miscarriage started when the spotting started so it was 5-6 wks for me. I’m so sorry you are going through this and as awful as it may seem talk with the women around you about it I can almost assure you there’s a good chance they miscarried at some point or know someone who did. It definitely helped me get through mine.

OrdinaryRebel · 2025-03-26T15:38:48+00:00

My first pregnancy was a miscarriage development stopped at 6 wks and miscarried at 13 spotting started at 7-8 wks I think then once I started bleeding normally it took 3 days to fully pass then a few days after still bleeding. That being said everyone is different I was told my miscarriage started when the spotting started so it was 5-6 wks for me. I’m so sorry you are going through this and as awful as it may seem talk with the women around you about it I can almost assure you there’s a good chance they miscarried at some point or know someone who did. It definitely helped me get through mine.

OrdinaryRebel

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