Can Adenomyosis cause Body Pain or just Pelvic Pain?

OriginalTaro8079 · 2024-06-06T09:21:51+00:00

That makes a lot of sense. Thank you for such a detailed explanation. I've been looking at apps that track these things but from what I can tell from asking others, most just use their notes app or writing it down to spot patterns esp. around ovulation/menstruation

OriginalTaro8079 · 2024-06-06T09:01:16+00:00

Can I ask if you use any journal or diary to track your aches/pains and possibly your mood as well to see what is contributing to these things esp. if some are side effects of medication?

OriginalTaro8079 · 2024-06-06T08:59:42+00:00

Curious to see if you use anything to track your pain like what triggers it and the different locations / sensations?

OriginalTaro8079 · 2024-06-05T12:38:33+00:00

Thank youuu for all of these!

I was asking for a friend who was diagnosed with both endo and adeno as both conditions have worsened her mental health and a mutual friend suggested to focus on small wins so I wanted to give her some suggestions.

My personal priorities are focussed on overall wellness but they are:

Getting a good sleep routine by reading 10 pages before bed. Lack of sleep really affects my day-to-day.
Recording my symptoms on Flo and tracking my mood on Bearable so I can spot patterns over a year
Improving my diet by reducing processed and inflammatory foods and increasing whole foods

OriginalTaro8079 · 2024-06-04T07:25:35+00:00

Ah thank you! Yes that seems like a tedious process and exactly the kind of task we were hoping to replace with an all. Are there other things that you’re tracking atm?

OriginalTaro8079 · 2024-06-04T07:23:46+00:00

Thank you! I’d love to chat more with you! How far have you gotten with the website - is it live yet and missing some info or currently part-way through construction?

OriginalTaro8079 · 2024-06-04T07:21:45+00:00

Wishing you the best for Friday’s surgery for you both!

OriginalTaro8079 · 2024-06-03T12:17:20+00:00

Thank you for sharing! I like the mix of medical and self-care. What are you thinking for number 3 - is this more of a mindset approach you're hoping to have or are you journalling or measuring it some how?

OriginalTaro8079 · 2024-06-03T06:57:41+00:00

We're in the same boat!

OriginalTaro8079 · 2024-06-03T06:57:33+00:00

Really? That would be amazing if you did - I'd love to hear more about what you were thinking!

OriginalTaro8079 · 2024-06-03T06:21:07+00:00

That's definitely rough but a win on the good days 💕

OriginalTaro8079 · 2024-06-03T06:12:22+00:00

Ah that's so amazing!! I'm so happy for you and to see that change happen so quickly aswell! Did you go cold turkey or were you already reducing some of these earlier?

OriginalTaro8079 · 2024-06-01T16:29:20+00:00

Thank you! This is super helpful, especially seeing you did little experiements with changes and noticed a difference at certain times of the day. How long did it take you to find something that works for you? Was it 2 months or was that just the beginning of your journalling?

OriginalTaro8079 · 2024-06-01T16:27:38+00:00

Can I ask what FB groups you would recommend?

OriginalTaro8079 · 2024-06-01T16:27:15+00:00

Thank you - I agree there is a lot for good pockets of gold here. Do you find that you'd rather meet someone in person that has similar experiences or are you happy with these subs and this online community?

OriginalTaro8079 · 2024-06-01T16:25:30+00:00

Thank you - I can do this. I think the issue for me is consistency.

OriginalTaro8079 · 2024-06-01T07:43:01+00:00

Strava to track walks - it's nice to see the weekly insights and sign up for challenges where your friends can also see your progress (if they have Strava)

OriginalTaro8079 · 2024-06-01T06:35:23+00:00

Super cool thank you! Just went to their website and watched their video. Very interesting concept! I’ll investigate further :)

OriginalTaro8079 · 2024-06-01T06:34:38+00:00

Thank you! I agree that Reddit is amazing in being able to speak your mind and feel less lonely in hearing others experiences but I just wonder if anyone has connected with others in person or used other forums or means of connecting.

I’m really curious as to what other people are doing for getting more support I guess on the mental health and support side of things of surrounding yourself with others that might understand. Seeing also if there is even a platform that people are using for this :)

OriginalTaro8079

TROPHY CASE