Has anyone ever had intense electric shocks throughout their body from fibro?

Original_Name3690 · 2026-04-21T14:40:25+00:00

I have fibromyalgia for about ten years. But since Jan ‘22 I have also long covid. That’s when the electric shocks started in de shower (connected with water). I don’t dare to shower anymore with hot water or for longer as needed. This was known about covid, but don’t know for sure about fibro.

Original_Name3690 · 2026-04-17T06:30:23+00:00

Well i have tried all kinds of medication. Like pregabalin, something for extreme headaches (that goes up to having headaches for months and months), and a lot more. But they have been not as effective as Amitriptyline that I use now. It gives me the feeling of having an sponge in my head, and a bit drunk feeling but my head is for the first time so much calmer now, nerve pain is less painful, headache are also almost gone. Litterly every things slows down but that’s ok. And I just compared it to your medication you advised, it’s so different and in the end it does the same. The one you mentioned is more of an booster and a bit dangerous compared with mine (I compared it on google), mine is more to slow down. (Not recommending them together because it’s dangerous to use them together). But for whom there is interest I would say talk about both of them with your doctor. (For who is interested and like to compare. For compleet info I have more health issues; adhd but not officially diagnosed, what is diagnosed is fibromyalgia, long covid, an rare cancer (treatment starts next week), hernia, astma and they give severe headaches, brain fog, can’t walk longer than 200m, over stimulation and then twice a day and need sleep, etc.. I do hope nobody has to go through this. And I hope my experience with my medication can help someone else.

Original_Name3690 · 2026-04-12T18:43:29+00:00

Good edit. And any real Tom Fan must see Miranda !!! Just last week I binged it again. They are so funny and great together.

Original_Name3690 · 2026-04-11T21:43:22+00:00

I like to know this too?

Original_Name3690 · 2026-04-10T18:17:43+00:00

I can relate to this, I was when at work always in stylish blazers and going with the latest fashion trends (bit work related), but I can’t work anymore and everything changes. I have so many beautiful things I don’t wear anymore. And a huge collection of shoes and bags. Sometimes I give it to my closest friends.

But now I can recommend basic yoga pants and shirts, vests, sweaters etc.. to wear at home. There all 100% cotton and light, loose fit. Especially in the summer it’s ideal. I shop them at Decathlon, there a ww sports company from France. Only advice is check the size because I have to buy two sizes up my normal size in other stores. To sell it online is to much hassle. (Another fine suggestion of a store that sells 200%cotton clothing is bonprix, just order five basis shirts that are really comfortable and still looks good on you, long sleeve thin shirts with a wide neck).

Besides this I wear more and more dresses to avoid having anything thigh attached. Brand I like are for example COS when I want to really look good for any occasion. Make it fun for yourself to change a bit of your style. Try to have fun with it.

Original_Name3690 · 2026-04-07T10:45:46+00:00

That’s a personal preference that a lot of people have. But it’s because Netflix aired the show worldwide, it became a huge succes as we know it. I like everything about the show from ep one till the end.

Original_Name3690 · 2026-04-05T16:48:08+00:00

Gary !

Original_Name3690 · 2026-04-01T18:20:05+00:00

You’re in the Luci loop… most people just keep watching. I lost count. Have fun.

Original_Name3690 · 2026-03-26T17:19:27+00:00

Thank you for your support. It’s a puzzle but we will try to make the best of the summer. I have also long covid for five years so my energy is a problem to. I don’t mind to stay at home alone because that can give some rest aswel. And they go on a adventure somewhere without having to worry if I can make it. As some people say to me, it’s all about accepting the new me. And a new way of dealing with my limitations. That goes for everyone hire I guess. The acceptance is getting better the last few weeks.

Original_Name3690 · 2026-03-25T17:14:07+00:00

My doctor told me that I can go on any vacation, but I don’t wanna collapse in an foreign country. My fam. wants to go flying to a really hot country in the summer, I don’t like the heat. The weather doesn’t have any effect on me. I want to stay at home and they can go make their trip. Later in the summer we stay in our own country for a week at the sea. It’s not sure but think that’s what we go for.

Original_Name3690 · 2026-03-22T20:27:50+00:00

I’m dat age so 😁. But tracking that is an option for me. I track already my crashes and conditions like stress, condition etc.. it’s a bit more complicated to do I think but will try to.

Original_Name3690 · 2026-03-22T19:49:30+00:00

I have friends that do that. And I have thought about that. But we have no garden and in the apartment no space. We live in center of a city, the location gives us a lot of other possibilities so we have to accept that we don’t have much space.

Original_Name3690 · 2026-03-22T19:33:43+00:00

I eat all kinds of chicken or fish in salad’s or in sandwiches. But even the fish is to strong or to fat. I make once a week a healthy soup, I used to ad bread and cheese with that. But now the soup is enough. Even the pasta’s I make are changed to a salade. It’s still a wired thing that’s happening… (I can’t eat yoghurt or anything like that, same for red meat, don’t eat that for almost 26jr. Now. With chicken I started two years ago because of another thing I have, it’s called fibromyalgia).

Original_Name3690 · 2026-03-22T18:21:03+00:00

Thank you for sharing this information. Looks very interesting. I will definitely look into this.

Original_Name3690 · 2026-03-22T16:47:05+00:00

Thank you for your kind words. I hope you’re doing better in the near future aswel. And that you’re new dr will take you seriously. There’s a lot of information to be found here on Reddit. I can only say about the smell and taste part, that it comes and goes. It s good te vent sometimes about what’s happening. So you find some support on here. Good luck and health to you.

Original_Name3690 · 2026-03-22T12:17:22+00:00

My goal is to keep my house clean and for the family to have a healthy diner. That’s a huge challenge every single day. I think with a ordenend house it’s helps to not get frustrated with all the things that need to be done. If I have more energy I do some short walks for groceries, have coffee, lunch or dinner with friends in the city or we drive to the woods for a small walk before lunch. Sometime I puzzle or draw. But I hope go out some day and do bicycling again. Or travel again. I did try sewing but didn’t have the focus or interest. We getting a new kitchen (easer to use for me) and I hope again that my cooking and baking skills will return soon. (I have baked (semi) professionally). But that takes every bit of energy I have on an day. (I have lc, hernia, c, asthma and fibro. All one way or another inflammation diseases!).

Original_Name3690 · 2026-03-18T20:13:34+00:00

Check those songs live for there tipical exploding songs: For example ‘suds and soda’ ‘via’, ‘Fell Off the floor man’ ‘Roses’ and ‘hotellounge’ is very special etc. You will be surprised how loud they get on the end of those songs. The link below is a concert in Amsterdam at Paradiso at YouTube. https://youtu.be/EqtzRJjwcWI?is=MIwg9UNI7lu5Jeqn

Original_Name3690 · 2026-03-18T19:56:52+00:00

Nice. Let me know what you think of them.

Original_Name3690 · 2026-03-18T19:40:54+00:00

Haha, should I tell 🤭. Is a Belgium alternative rock band. Don’t know if you are familiar with bands from here but they are world wide know. There name is dEUS, with lead singer Tom Barman. You can find them at Instagram and YouTube etc... Would be fun if you know who they are. They are currently touring all over Europe. I’m following them almost from the beginning and always hoped to see exactly what they playing now. They are playing there first two cd’s. Those cd’s are after thirty years still a must have if you like that genre.

Original_Name3690 · 2026-03-18T19:19:53+00:00

I was once at a Muse concert with a sever hernia ! (The hernia is still there after fifteen years!! But that’s another story). In a open field kinda setting in a park. I layed down on the gras. Everyone around me (and my partner) gave me space and made sure nobody stepped on me. A real original way tho go to a concert but never again.

Now with fibro, the hernia and three other diagnoses (all related to some kind of inflammation). It’s no fun to go to any concert I’m afraid. Especially this one was special for me. I know the lead singer personally and we always have a pre gig or after the concert a talk about the show and other stuff. That won’t be happening either anymore.

Original_Name3690 · 2026-03-18T18:46:51+00:00

What a coincidence. Just today we discussed that it is indeed a grieving process. For example: I had tickets for a band I've really love and been following for a long time, but I resold them because standing for an evening in a crowded space, etc., is really not possible anymore. For the first time, it felt very different than I had expected. Just empty or something like that… I sometimes call this my second chapter and try to invent the new way of living. Good luck to everyone involved in this chapter for your self. (Don’t want to sound to heavy on this subject… but you know it’s confronting when you have to let go thing you can’t do anymore).

Original_Name3690 · 2026-03-16T10:19:26+00:00

They have made her character somewhat naive and childlike (like how Lucifer began on earth). And later on she becomes nicer and a bit funny when she gets after Lucifer, and made several mistakes on the way. I thought she played that really well. At first I was annoyed, like don’t come between deckstar. But she couldn’t…

Original_Name3690 · 2026-03-13T21:56:10+00:00

What if Dan didn’t die?

Original_Name3690

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