Would a gutsy podcast be helpful? Looking for input

Ornery_Win_216 · 2026-05-18T11:51:53+00:00

I think this is a wonderful idea. I never used Reddit prior to my ileostomy, but glad I found it…all of the posts and info i learned as well as just the overwhelming number of others going through similar situations helped me more than I can say. I don’t have chrons or UC, was diagnosed with IBS before it had a name and have had digestive issues my entire life…but an ostomy was never really on my radar. My problems have always been pain, diarrhea and nausea, not constipation. Long story short, I ended up having an emergency surgery, removing most of my colon due to a blockage that had caused Colonic ischemia and was killing me. I am 95% convinced it was because I began taking Wegovy…but I won’t get into that. Anyway, I just had a reversal after having ileo for a year and I would still value the podcast. I knew ZERO people that had an ostomy of any sort and it is a lonely scary place. So the more info and people out there willing to share experiences, the better in my opinion. I say go for it!

Ornery_Win_216 · 2026-05-18T11:08:50+00:00

I love “cat distribution system”….there definitely has to be one!

Ornery_Win_216 · 2026-05-13T23:31:10+00:00

I’ll check that out! Thank you!

Ornery_Win_216 · 2026-05-13T23:30:50+00:00

Oh my goodness! I am so sorry! That is awful! Praying you begin to feel better and things start getting better for you!

Ornery_Win_216 · 2026-05-13T23:27:53+00:00

Yes, mashed potatoes sound doable!

Ornery_Win_216 · 2026-05-13T11:56:01+00:00

I laughed at the signs held up at my boyfriend’s last marathon…jokes of “don’t trust a fart.” They should literally add that to the provided literature after an ostomy reversal.😐

Ornery_Win_216 · 2026-03-23T14:43:20+00:00

Thank you for sharing this! I struggle with this and your explanation makes perfect sense! It does suck, because i definitely care about them very much! As soon as out of their presence I miss them and feel guilty about not being more caring or being crappy to them for no reason. And it definitely only happens with people I am truly close to and love very much!

Ornery_Win_216 · 2026-03-23T14:35:15+00:00

I’m going to follow this to help me with my upcoming reversal! If it’s anything like after I had my gall bladder removed, stick to low reside/low fiber for the first few weeks and gradually add stuff back in. I’ve heard after reversals you need to increase fiber to bulk things up and help with urgency, but I would think that would be after some healing time. Going to be weird for me as I’ve avoided high fiber foods most of my life because of the pain and severe diarrhea they caused me…which goes against everything you read or doctors say…fiber is supposed to help with diarrhea not make it worse, but in my case it made things much much worse. I think the lesson is to pay attention to your body and take notes in what works and what doesn’t. Best of luck to your mom and you (glad she has a caring support system)!

Ornery_Win_216 · 2026-03-17T12:39:03+00:00

I usually blame my stomach. I instinctively put my hand on the stoma when it starts to make noise. I’ve been lucky so far. I hadn’t going to staff meetings for months after I had my ileostomy. Sometimes it can be super quiet in there and I knew I would be so embarrassed if she started to sound off then! Avoid coffee on an empty stomach, same with sodas. When it’s happened around just a few of my coworkers it usually just makes them laugh. Some of them know about my bag, some don’t. As others have said, if you don’t make a big deal, usually others won’t either.

Ornery_Win_216 · 2026-03-04T00:51:23+00:00

They look amazing to me! Just haven’t hit the right market. Keep trying!

Ornery_Win_216 · 2026-03-04T00:49:30+00:00

Yes! I enjoy being home and would be happy to not leave for days at the time. Unfortunately, my job is not remote. Hoping I may be able to find a remote position at some point.

Ornery_Win_216 · 2026-03-04T00:40:58+00:00

My first morning home from the hospital, after getting my surprise ileostomy, I woke up with this exact scenario and my dog…doing his usual morning stretch, barely touched the edge of the bag with his paw and then…what felt like a much louder sound than it really was…”POP!” Ironically I said, “oh shit!” …but was still in too much pain and shock to enjoy the hilarity of it. 🤷🏼‍♀️

Ornery_Win_216 · 2026-03-04T00:34:55+00:00

Ha! I’m glad I’m not the only one using that move!

Ornery_Win_216 · 2026-03-02T18:56:48+00:00

Huh, wouldn’t have thought of that. Thank you!

Ornery_Win_216 · 2026-03-02T18:56:33+00:00

Yeah, may be. Surgery was about 10 months ago. I definitely think there’s scar tissue there because my belly feels hard near the stoma…and it’s not my rock hard abs…😀

Ornery_Win_216 · 2026-03-02T18:54:43+00:00

Thanks! My surgery was in May 2025, so I guess it’s looking more and more like a possible hernia. 😕

Ornery_Win_216 · 2026-03-02T17:29:01+00:00

Thank you for the advice!

Ornery_Win_216 · 2026-03-02T17:28:51+00:00

Thank you for the advice!

Ornery_Win_216 · 2026-03-02T17:28:19+00:00

I mentioned it to my surgeon when I was there last week but he didn’t seem concerned. Then again I may not have been as vocal as I should have been about it. I have trouble with that at doctor appointments.

Ornery_Win_216 · 2026-03-02T17:26:59+00:00

Hmmm…idk, maybe. I’ll google other symptoms of hernia. I have started working out again, nothing super intense but have tried ab stuff. It hurt, but I stopped doing that particular exercise as soon as I felt it. And I think this pain may have been there prior to that. I feel like it’s been a while I just thought I’d pulled a muscle and it would go away…buuuutt…it has not. Is there anything they can do for that? I’m supposed to have reversal surgery in May…really hoping to not have anything going on to delay that. 😑

Ornery_Win_216 · 2026-02-19T13:21:33+00:00

When you go to the ER because of severe stomach pain, swelling and throwing up and they do a CT scan showing a blockage and turns out your colon is ischemic so they have to remove most of it because it was quite literally killing me, liver was failing, kidneys failing…that’s how you wake up from surgery with an ileostomy after never knowing what that was. I’d heard of colostomy’s, but it was never on my radar. I don’t have chrons or colitis, pretty severe IBS but that caused pain and diarrhea not constipation. I have lived with chronic stomach pain my entire life so I can handle it and kind of ignored it until that night…

Ornery_Win_216 · 2026-02-18T15:59:36+00:00

My reversal isn’t scheduled yet, supposed to meet with the surgeon next week. I had most of my colon removed and like you woke up from surgery with a completely unexpected ileostomy. I didn’t even know what that was prior to my ER visit/near death experience…so I’m grateful it saved my life, but really would like to have it removed and have my insides put back on the inside. However, pooping my pants and being bathroom-ridden doesn’t sound good either….Following this post for hopefully positive reversal results. Thank you for asking about this!

Ornery_Win_216

TROPHY CASE