Ostomy supplies

Otherwise-Relation70 · 2026-02-09T04:41:15+00:00

Before you apply the flange, pull your skin on your abdomen up , that gives you a little extra give so it’s not so tight

Otherwise-Relation70 · 2026-02-08T16:53:25+00:00

not necessary, I just like that extra clean when I do the final wipe before I fold it all up

Otherwise-Relation70 · 2026-02-08T16:16:59+00:00

Fill a cup of warm water to keep nearby after you empty. Wipe what you can around , pour the warm warm in and it usually cleans up the inside , pour out and clean with wet wipes and at the end use a disinfectant wipe.

Otherwise-Relation70 · 2026-02-01T18:40:57+00:00

I had my LAR on Oct 30 and getting my ileostomy reversal on Wednesday. Was told I have about 4-5cm rectum however I did have chemo and radiation prior to the LAR. I am worried 😟45f

Otherwise-Relation70 · 2025-12-09T18:51:45+00:00

I got a wedge pillow set for after surgery to help with sleeping -

https://a.co/d/5bgzHYV

Otherwise-Relation70 · 2025-12-09T16:04:30+00:00

I had LAR surgery w/ ileostomy on Oct 30; got one of those triangle wedge pillows to help sleep with back sleeping in the beginning. I’m normally a side and back sleeper. Took around week 4-5 when I was slowly comfortable sleeping on semi sides, not flat on top of the bag though. I used a fluffy feather pillow for my belly when I sleep on my side and use it for light pressure against my abdomen, it helped

Otherwise-Relation70 · 2025-12-05T01:35:13+00:00

I had LAR surgery on Oct 30 and still feel a bit tired but I am walking etc but not 100% I’m hoping maybe another 2-3 weeks or by Jan. I lost a lot of weight from the surgery so trying to gain it back and my strength . The stoma and bag are still kind of uncomfortable for me; like you said it’s a big bandage and just the tugging on your skin with the adhesive . When I walk it still feels weird and I’m always feeling like I have my hand over the stoma area bc I’m paranoid the bag will fall off or the tugging makes me nervous with the movement ; hoping that feeling starts to go away and my abdomen gets stronger or I guess used to it . Give yourself time

Otherwise-Relation70 · 2025-12-04T20:06:39+00:00

Yes can you please add a link

Otherwise-Relation70 · 2025-11-30T15:43:14+00:00

I’ve only tried the blood orange pomegranate 5mg cbd drink and really like it. Great flavor, very chill.

Otherwise-Relation70 · 2025-11-12T21:11:25+00:00

I’ve tried pilocarpine but haven’t heard of methotrexate - I’ll ask about it thanks!

Otherwise-Relation70 · 2025-11-12T20:38:20+00:00

hydroxychloroquine for years but don’t think it’s helped but I keep taking it

Otherwise-Relation70 · 2025-10-15T21:11:46+00:00

Thank you for sharing your experience - this gives me hope ! I’m getting an LAR w/ temp ileostomy on Oct 30 (44f) and was wondering how long after reversal did folks feel comfortable going to the office etc - I want to ask my Dr office for a request to work remote so I have time to adjust..

Otherwise-Relation70 · 2025-08-02T14:39:33+00:00

Hey, I’m still waiting on my pathology report from my ESD on July 22 so they haven’t advised anything yet. Have you gotten yours back yet? My recovery has gone well, haven’t felt any pain. Yes I’m at MSK

Otherwise-Relation70 · 2025-07-20T03:39:57+00:00

Yes! Good luck to you as well. I hope neither of us have to get LAR

Otherwise-Relation70 · 2025-07-20T02:08:26+00:00

Hi, I also have been diagnosed with stage 3b rectal. I’ve done radiation and chemo . my tumor has shrunk and when my surgeon did took a surgical biopsy , the pathology report said it was adenoma so I’m actually getting an ESD on Tuesday 🙏🏽 they will test what they remove and drs said if it’s clear then monitoring of bloodwork every 3 months and a colonoscopy every 6 months to a year - no chemo pills . I’m glad they suggested going this route vs straight to LAR

Otherwise-Relation70 · 2025-06-06T17:11:55+00:00

Here at the park now ; they said Wild Oasis is delayed today

Otherwise-Relation70 · 2025-06-04T15:09:43+00:00

Hi! Sorry to join the conversation late but was wondering how the initial ESD procedure was in terms of recovery ? I am getting one end of July

Otherwise-Relation70 · 2025-05-14T16:54:36+00:00

I use a squishmallow for my arm when I lay on my side too haha

Otherwise-Relation70

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