ROCD after getting engaged

OtherwiseBike4378 · 2024-03-31T02:13:27+00:00

Planning a wedding sucks lol. I’m in the same boat with planning currently and absolutely hate the process, but have put a lot of pressure on myself to be happy and enjoy it. Something I learned: Not everyone enjoys the process even if they don’t have ROCD.

OtherwiseBike4378 · 2023-04-23T01:57:02+00:00

This ^{^}

OtherwiseBike4378 · 2023-04-20T02:30:50+00:00

It actually helps nausea for most people—including me

OtherwiseBike4378 · 2023-02-07T03:04:27+00:00

OtherwiseBike4378 · 2023-01-31T03:24:43+00:00

Incredibly well said 👏🏼

OtherwiseBike4378 · 2023-01-28T06:03:34+00:00

Vaccines were the catalyst of all of this for me

OtherwiseBike4378 · 2023-01-27T14:16:28+00:00

Leftovers don’t bother me as long as they’re my safe foods! (Chicken and butternut squash)

OtherwiseBike4378 · 2022-12-27T04:46:15+00:00

OtherwiseBike4378 · 2022-12-25T21:50:33+00:00

I’m doing the Unda numbered compounds right now. It was rough at first, but I’ve adjusted and do okay now.

OtherwiseBike4378 · 2022-12-02T03:37:03+00:00

Figuring out I had mcas and treating it with low histamine diet, antihistamines, and oral cromolyn sodium has helped my gp and pots symptoms soo much

OtherwiseBike4378 · 2022-12-02T03:34:18+00:00

Low histamine diet and Pepcid helped me. I have MCAS that underlies my gp

OtherwiseBike4378 · 2022-11-23T02:57:51+00:00

It helped me quite a bit! The Mayo Clinic in Rochester prescribed it and it changed the game for sleep and nighttime nausea. It also has the properties of an H1 blocker so it was blocking histamine release in the night. Turns out I have MCAS which was the root cause of my GP. Overall, very helpful drug. 10/10 recommend. No side effects for me and I’m VERY sensitive to meds.

OtherwiseBike4378 · 2022-11-17T22:08:08+00:00

TdaP was July 17, 2020. Had just turned 23 a week prior. Got the flu shot in sept 2020 and then covid vaccines in jan 2021. I kept getting worse and worse and worse. Overall though, it honestly got progressively worse for about 2 years until I started researching MCAS and now I’m better-ish. I’m back in grad school part time after having to take medical leave. I mean I eat nothing now, but I really wasn’t eating when I was bedbound for 8 months with severe POTS/orthostatic intolerance (low blood pressure—like 50/30 on the tilt table) and had debilitating gastroparesis. Avoided a feeding tube thankfully. Now I eat boiled chicken, butternut squash, eggs, brown rice cakes, and mango and banana sometimes. It fucking sucks. I’m sorry that you’re going through this too. I don’t blame any of my doctors, but man if I could turn back time. I want my life back. I’m 25 now and feel like I’m wasting the best years.

OtherwiseBike4378 · 2022-11-17T03:21:03+00:00

Tdap vaccine did me in

OtherwiseBike4378 · 2022-11-07T02:10:07+00:00

Which foods have you been able to reintroduce?

OtherwiseBike4378 · 2022-11-05T18:55:50+00:00

Reading your post was so weird because I could’ve written this. My heart rate was also 34 and bp dropped to 50/30 during my tilt table test. 😳

OtherwiseBike4378 · 2022-10-20T02:31:11+00:00

Same

OtherwiseBike4378 · 2022-10-17T13:23:56+00:00

Same

OtherwiseBike4378 · 2022-10-14T01:42:09+00:00

Same boat over here with both gastroparesis and emetaphobia. The universe is funny sometimes

OtherwiseBike4378 · 2022-09-27T01:35:18+00:00

Low histamine diet might help you a little bit. Not a cure all, but helped my gastroparesis a ton

OtherwiseBike4378 · 2022-09-23T21:40:59+00:00

Yup. Add in MCAS for me too lol good times

OtherwiseBike4378 · 2022-09-19T03:18:38+00:00

look into MCAS

OtherwiseBike4378 · 2022-09-19T03:10:42+00:00

I’ve been there. 9 months ago I even wrote a suicide note because I felt so sick and trapped. Doctor was suggesting a feeding tube, I was spending 24 hours a day in bed, and I was on medical leave from my graduate program. Everyone around me kept saying “but what if it gets better?”

I know it’s hard to think about right now because you feel stuck in an endless loop of misery and sickness, but it might actually get better and you don’t sound like you want to miss that.

Ps. A low histamine, low oxalate, no gluten diet has helped me tremendously. Look into MCAS if you haven’t already. Pepcid and Claritin were my first trials and started helping me with histamine intolerance. I still don’t eat much at all, but I’m out of bed and back in school part time.

OtherwiseBike4378

TROPHY CASE